
marlene57
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by marlene57
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Just wanted to throw my 2 cents in.... Also had the uncontrollable cravings and they do seem to be calming down, now, but I had to stop buying the Namaste Spice cake mix. It is so good!!! I would have eaten the whole cake, but hubby would have noticed, so I ate it in 2 days instead of one. I recently made the cake for my birthday, and was able to...
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ARCHIVED Anyone Else Have A Problem With Constipation?
marlene57 replied to marlene57's topic in Coping with Celiac Disease
Hi everyone, Thank you so much for all of the info! I've been trying some of the suggestions....prunes are gross but I can drink prune juice and that worked for awhile. Fleet enema did nothing... I ordered the HCI but they kept emailing me with problems concerning my credit cards so I just cancelled the order. Have to get out to the health food store... -
Hi Gillian, I have to say that I love your name. My daughter's name is also Gillian. Also, I've wondered about the "other" smoke, too, but since I've not had a reaction, it seems fine. As far as Cigarettes, I really don't know. I smoke about a pack a day and have tried to quit many times. The problem is, every time I quit, I get very ill with severe fatigue...
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ARCHIVED Sandy Bowel Movements
marlene57 replied to Kujda's topic in Parents, Friends and Loved Ones of Celiacs
Hi, Just thought you'd like to know.... I've had "sandy" stools for quite some time now. Since being gluten-free, it only happens when I get glutened. I notice it when I wipe myself. It is terribly abrasive and makes me raw down there. A cool wipe helps make it feel better. Just hold the wipe on the sore area and your baby will feel better. Marlene... -
ARCHIVED Anyone With Same Symptoms? Help Pls!
marlene57 replied to a topic in Related Issues & Disorders
Hi CarlaB Thank you for bringing up the Lyme disease. It made me check it out and I not only have 38 of the symptoms listed, but I've have that very distinctive rash several times. I went straight to the phone and asked the Dr. to test me for Lyme. I live in NH where there is a moderately high incedence. Would you be so kind as to give me the address to... -
Hi Georgie, I also am folate deficient, but have been for a few years. Only found out about the celiac about a year ago. I did go off of the folate supplements, thinking as you do, that I'm better and can get it from foods. I'm back on it because my last test shows I'm still deficient. I attribute it to my intestines not being completely healed yet. I've...
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Thanks! I will email them tomorrow. Have a nice night, Marlene57
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Cathy, I'm in the same boat as you. Just can't lose weight. At this point, I'd just be happy to feel more energetic. Marlene57
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ARCHIVED L-glutamine
marlene57 replied to Emme999's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I have just read your post and went and ordered the l-glutamine. I'm excited to get it and see if it helps my digestive problems. I've also done some research to see if it's safe. Here's an excerpt from a site I found: However, the use of glutamine as a free amino acid has never been associated with any form of brain damage. Glutamine is in fact abundantly... -
Is there anyone who can recommend a good Dr. for Celiacs in southwestern NH. I live near Peterborough, but will go to Concord or Manchester if I have to, to find a doctor who knows about Celiac! Thanks, Marlene57
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I saw that episode and was shocked to find out about the neurological symptoms of Celiac. I just saw the dr a couple of weeks ago because I'm losing my balance, have trouble with short term memory, problems with my eyes, and say or type things that I'm not thinking (wrong words). Now I'm waiting for an app. with a Neur. and will ask about Gluten Ataxia...
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ARCHIVED Anyone Else Have A Problem With Constipation?
marlene57 replied to marlene57's topic in Coping with Celiac Disease
Thank you Burdee, I'm going to try the enzymes. I was taking tums every night for years, and I don't feel that I'm absorbing nutrients the way I should. Folate, Vit. D dificiencies. Marlene -
Hi everyone, I need to find a Dr. who knows about celiac disease. My GP knows absolutely nothing. My Gastro says there's nothing to do except suffer with the symptoms. I was dx about a year ago just by going gluten-free and getting great results within 48 hrs. But...I have not been checked for all vitamin dificiencies. I've had Pernicious Anemia...
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ARCHIVED Anyone Else Have A Problem With Constipation?
marlene57 replied to marlene57's topic in Coping with Celiac Disease
I don't eat dairy because it bothers me. I haven't for many years. I try to drink a lot of water, but I will try the 64oz. per day. Thank you all for the advise. There is so much more info here than I've been able to get from Drs. Marlene -
ARCHIVED Anyone Else Have A Problem With Constipation?
marlene57 replied to marlene57's topic in Coping with Celiac Disease
Thank you! I will try it. -
ARCHIVED Anyone Else Have A Problem With Constipation?
marlene57 posted a topic in Coping with Celiac Disease
I'm one of those Celiacs who's overweight and constipated. Although, when I do go, it's very loose. The Gastroenterologist says to take laxatives, but I'm very leery of anything that may harm my intestines more than they already are. Any suggestions on what to eat, take, or do to get going again? Also, any ideas why I get like this? I feel like this happens... -
ARCHIVED Family Acting Weird
marlene57 replied to natalie's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi, No, I never thought of it as being related to Celiac. I have found Hydrenitis Suppurativa on some "suspected" autoimmune lists. I believe that it is autoimmune as it does "flare up" and causes fatigue and inflamation. It's also one of those diseases that not all Dr.s know about. The first time I asked about it, I was told it was from being dirty. I was... -
ARCHIVED Should I Go Ahead With A Biopsy?
marlene57 replied to jjgirl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I agree with the above answers, but would be concerned about triggering other autoimmune diseases. I suffer from a few of them and know that they can become worse with stress...emotional and physical. Stress can also trigger new autoimmune diseases. I also would be very cautious and only go thru that if I thought there was a very good reason to do it.... -
ARCHIVED Weight Gain
marlene57 replied to geeze's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Can you tell me the symptoms of malabsorbtion? I have gained about 100lbs in the last 9 years. Since I was diagnosed a year ago, I've been able to maintain my weight if I eat 1200 - 1500 calaries a day, but cannot seem to lose weight. (This is gross, but I need to ask) I see undigested food in my bm everyday. Is this a symptom of malabsorbtion? Thanks for... -
ARCHIVED Smoking And Celiac Disease
marlene57 replied to Kellygirl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
About 15 years ago, I quit smoking for a year and a half. I became extremely ill with migraines, bowel problems, severe weight gain (60 lbs), severe fatigue.... My doctor at the time insisted it was PMS. I started smoking again, got better right away and lost all of the 60lbs. I always believed it had something to do with quitting smoking, but... -
ARCHIVED Family Acting Weird
marlene57 replied to natalie's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I agree that family members act strange. My mother recently discovered that she carries the Celiac gene. She called me and appologized, saying it was all her fault. My grandmother keeps telling me that no one else in her family is sick and she's never heard of these diseases (autoimmune diseases). During a conversation about my childhood, I discovered that... -
ARCHIVED Ridges In Fingernails
marlene57 replied to lindalee's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I have had the ridges for as long as I can remember. I never really thought much about them til now, just filed and buffed to make them look better. I'm very curious about the RA thing. My son has extremely long fingers and toes. People have always commented on them. Next time I see him, I will check for ridges, too. He doesn't have RA, but now I will... -
ARCHIVED Fed Up With Wheat And Diagnostics
marlene57 replied to Mme's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thank you, thank you, thank you all for this post and replies! I've suffered for years with constipation and pain. Every doctor said the same thing - "eat more whole grains". Now I think I've eaten so much Shredded Wheat, 12 grain breads, and whole wheats, that I've made myself very ill. It was when I decided to search the internet for reasons for my...