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Should We Be Tested?

Rachel

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Rachel Newbie
Rachel
Posted

Hi!

My names Rachel and I

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Alexolua Explorer
Alexolua
Posted

Well gluten is in more things than just wheat. Umm.. Barley, Rye, some other grains I can't think of, lol. But, Wheat is a big source of gluten for most people, since we eat it more than the others, on average, I'd think.

But, not being an expert, I would say get tested for it! The removing wheat, feeling better, then feeling worse once it's introduced.. could be Celiac. If you can't find a doctor willing to test you though, just go gluten free on your own, sounds like you had success when you removed wheat, could have even more when you remove all sources of gluten. =)

celiac3270 Collaborator
celiac3270
Posted

If you think your daughter has it, definitely test her. Since you have symptoms, you should be tested, too. If it turns out your daughter has celiac disease, then everyone in her family should be tested, regardless of symptoms (brothers, sisters, uncles, aunts, grandparents, parents)....it's likely that if she has it, someone else in her family will have it--after all, it's genetic, so it's passed down.

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    • trents
      Iron loss and potential celiac.

      By trents · Posted

      Yes, it does. And joint pain is another celiac symptom that is now well-recognized. 
    • ThomasA55
      Iron loss and potential celiac.

      By ThomasA55 · Posted

      Does my iron loss sound like celiac to you?
    • trents
      Iron loss and potential celiac.

      By trents · Posted

      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it is important for you to get tested is that many or most people who don't have a formal diagnosis find it difficult to be consistent with the gluten-free diet. They find ways to rationalize that their symptoms are due to something other than celiac disease . . . especially when it becomes socially limiting.  The other factor here is by being inconsistent with the gluten free diet, assuming you do have celiac disease, you are likely causing slow, incremental damage to your gut, even though you are largely asymptomatic. It can take years for that damage to get to the point where it results in spinoff health problems. Concerning genetic testing, it can't be used for diagnosis, at least not definitively. Somewhere between 30 and 40% of the general population will have one or both of the two genes known to be associated with the development of active celiac disease. Yet, only about 1% of the general population will develop active celiac disease. But the genetic testing can be used as a rule out for celiac disease if you don't have either gene. But even so, that doesn't eliminate the possibility of having NCGS (Non Celiac Gluten Sensitivity).
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      Iron loss and potential celiac.

      By ThomasA55 · Posted

    • trents
      Iron loss and potential celiac.

      By trents · Posted

      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint pain before you began experimenting with a low gluten diet. Anything else?
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