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My Symptoms- Could It Be Celiac


smitchell

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smitchell Newbie

Here is my story.

Overweight, family hx of colon cancer. I had a terrible flu in December and haven't been the same since.

I have been diagnosed with:

Thyroiditis

Arthritis

GERD

severe joint pain

costochondritis

Vitamin D defiency

PCOS

Depression

I recently had a biopsy of my nodule on thryoid and it was benign. I had a colonscopy and endoscopy on Friday. I begged for the endoscopy since I constantly feel like something is in my throat and I have gas all the time. I fasted for a day for the colonscopy and felt great? I now have been off Gluten the entire week. I haven't had 80% of the joint pain I was experiencing at all.

I asked to be tested for celiac since my GP suggested it. The doctor and nurse looked at me like I was crazy since I am overweight.

Question, if I fasted would that affect biopsy results? He said he took several biopsies of my stomach and esophagus. He said they are inflammed. It just seems my entire body has inflammation- joints, stomach, esophagus, thryoid. Any relation or should I take a different route? My next appt if this goes nowhere is with a rheumatologist.

Thanks.


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katrinacara Rookie

This is really scary, but your case sounds almost identical to mine.

My main issues were arthritis and inflammation all over...especially the stomach, bowels, esophagus.

The way I found that I have celiac is just by the diet. I really got the run around from doctors and just gave up on all the meds and tests. I've never done the biopsy, I just know I have celiac by the diet because I'm 100% better.

For your question about the biopsy...It depends how long you fasted. Since gluten causes damage to the small intestine for a celiac, if you're not eating it, your intestines start to heal. If you feel completely healthy, I wouldn't do the biopsy since it takes a week or two to heal completely. Normally you have to be consuming gluten for 6-8 wks on a daily basis to get positive results if you do have celiac. Even then...the results could come back negative.

I would say that if the results come back negative you should still go gluten free. It has definitely worked for me...except for the GERD...I'm still working on that one

Hope everything works out for you :)

ang1e0251 Contributor

Sounds to me that you just fasted for a few hours for your test. That won't be a problem. But the other poster is correct. Going gluten-free is a good trial for you. Your tests could prove negative that's not uncommon. You could still be gluten intolerant and no test will prove that. But a solid dietary response will. No matter your test results, give the diet a try.

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    • trents
      Yes, it does. And joint pain is another celiac symptom that is now well-recognized. 
    • ThomasA55
      Does my iron loss sound like celiac to you?
    • trents
      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it is important for you to get tested is that many or most people who don't have a formal diagnosis find it difficult to be consistent with the gluten-free diet. They find ways to rationalize that their symptoms are due to something other than celiac disease . . . especially when it becomes socially limiting.  The other factor here is by being inconsistent with the gluten free diet, assuming you do have celiac disease, you are likely causing slow, incremental damage to your gut, even though you are largely asymptomatic. It can take years for that damage to get to the point where it results in spinoff health problems. Concerning genetic testing, it can't be used for diagnosis, at least not definitively. Somewhere between 30 and 40% of the general population will have one or both of the two genes known to be associated with the development of active celiac disease. Yet, only about 1% of the general population will develop active celiac disease. But the genetic testing can be used as a rule out for celiac disease if you don't have either gene. But even so, that doesn't eliminate the possibility of having NCGS (Non Celiac Gluten Sensitivity).
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    • trents
      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint pain before you began experimenting with a low gluten diet. Anything else?
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