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DawnE8199

Could This Be Celiac Or Something Else?

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I just typed this all out and then the board ate it. GRRRRRRR.

Symptoms:

SEVERE lower right abdominal pain about where my ovary is. At times so bad that it hurts to put my right foot on the ground, hurts to breath, walk or talk. Hurts to be touched on any part of my body because it will make that spot hurt worse. It will even wake me up in the middle of the night or make some morning terribly hard to get out of bed until it eases up.

Bowels have never been “regular’ like most people. As I’ve become an adult they have become much more regular but I’m not a once a day kind of person. Usually every 2 days or so.

Just found I have slight acid reflux which is helped without meds as long as I stop eating 3 hrs before bed and prop the bed up.

I can’t have things on my abdominal section. Maybe this is a personal quirk but it just bothers me. For instance my husband might lay his arm over my stomach and I will move it above my ribs or below my hips.

History:

2004ish – blood work came back that I might have a case for celiac (this was not the dna test)

- first biopsy said an almost positive it for celiac although I was on a gluten-free diet because one doctor told me to eat gluten-free and the GI did not know that I was eating gluten-free

- had a barium enema to check out my intestines which showed up fine

- demanded second biopsy AFTER eating a full gluten diet a month prior which came back inconclusive

- I was told I have IBS and to live with it

- since that test I have been eating a normal gluten diet, although I eat 95% unprocessed foods/organic/natural

- August 2009 the pain came back with a KICK. I am sure I had it prior to that but it was just something I lived with.

- 12/3/09 had endometriosis taken out but on the left side and they found none on the right side to explain the pain

Today – I am in pain. I’ve been gluten-free for 5 days and the pain has not eased up one bit. I’ve been exercising, drinking water (it’s all I drink), and living a healthy lifestyle minus the pain.

I know the text book cases of celiac but what are the non text book…..could I be one….or does this sound like something else? What should I ask my doctors beyond…what is the next step? I would love to have some ideas to research before diving back in. I just really want this pain to be gone gone gone.

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