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Dixiebell

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Dixiebell Contributor

My son is 8 and we have been going back and forth to his Dr. and a GI for about 3 mo. now to see what is causing his stomach pain. They have given us acid blockers, stomach coatings and miralax. The stomach pains started about the time he had ,what I think was, the flu. No vomiting, just stomach pain, headaches and he said his legs felt weird. He did have an ex-ray and blood work done. His Dr. wanted to have a celiac panel done, he said that it was normal. He was constipated though, apparently very constipated. We finally got in to see the GI and he also said that the blood tests looked normal but that the celiac tests were only 95% accurate. So he is still taking the acid blocker and the miralax. He is still having stomach pains on and off. The Dr. said we needed to wait about 3 more weeks to see if the acid blocker will help him. He also gave him a rx for a stomach relaxer, hyoscyamine, he has not taken this one yet. He said the next step would be an ultrasound. I do have a question, does anyone know if these meds cause pale stools? miralax or omeprazole. Thank you.


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    • trents
      Yes, it does. And joint pain is another celiac symptom that is now well-recognized. 
    • ThomasA55
      Does my iron loss sound like celiac to you?
    • trents
      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it is important for you to get tested is that many or most people who don't have a formal diagnosis find it difficult to be consistent with the gluten-free diet. They find ways to rationalize that their symptoms are due to something other than celiac disease . . . especially when it becomes socially limiting.  The other factor here is by being inconsistent with the gluten free diet, assuming you do have celiac disease, you are likely causing slow, incremental damage to your gut, even though you are largely asymptomatic. It can take years for that damage to get to the point where it results in spinoff health problems. Concerning genetic testing, it can't be used for diagnosis, at least not definitively. Somewhere between 30 and 40% of the general population will have one or both of the two genes known to be associated with the development of active celiac disease. Yet, only about 1% of the general population will develop active celiac disease. But the genetic testing can be used as a rule out for celiac disease if you don't have either gene. But even so, that doesn't eliminate the possibility of having NCGS (Non Celiac Gluten Sensitivity).
    • ThomasA55
    • trents
      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint pain before you began experimenting with a low gluten diet. Anything else?
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