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Gluten Challenge - Have You Done It? Need Advice!


kthies2

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kthies2 Apprentice

Anyone out there done the gluten challenge? The doc says I need to add gluten back into my diet on a daily basis for 4-8 weeks so that I can have tests done to prove I have celiac. I've been mostly off of gluten for some time so my body needs it reintroduced in order to have the tests show positive. Has anyone out there done this? How did it go? Was it worth it? Did your tests come back positive or was it a waste of time and sick days/nights on your body? Any advice on the best foods to eat so I don't gain a gazillion pounds? I'm currently 8 lbs away from my goal weight on weight watchers and don't want to blow it! Share your experience and/or thoughts please!

Thanks!


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seashele2 Newbie

I will be interested in reading what you hear back. I can't offer anything except that my daughter is facing the same dilemma. I am lab & endoscope diagnosed celiac. My uncle is as well. My husband's sister is diagnosed, not sure the method(s). My daughter gets very ill eating gluten and we removed it from her diet about a year ago. Now in order to get a verified diagnosis, she will have to go back to being sick while eating gluten for two months. She is a 16 year old college freshman planning to take classes through summer quarter too so she doesn't have two months of the year to go through that.

With celiac on both sides of my daughter's family tree, I am certain she is celiac, not "just" gluten intolerant, but to be diagnosed and counted, she needs tested. I wish there was another way to diagnose celiac.

Michelle

Western Washington State

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    • trents
      Yes, it does. And joint pain is another celiac symptom that is now well-recognized. 
    • ThomasA55
      Does my iron loss sound like celiac to you?
    • trents
      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it is important for you to get tested is that many or most people who don't have a formal diagnosis find it difficult to be consistent with the gluten-free diet. They find ways to rationalize that their symptoms are due to something other than celiac disease . . . especially when it becomes socially limiting.  The other factor here is by being inconsistent with the gluten free diet, assuming you do have celiac disease, you are likely causing slow, incremental damage to your gut, even though you are largely asymptomatic. It can take years for that damage to get to the point where it results in spinoff health problems. Concerning genetic testing, it can't be used for diagnosis, at least not definitively. Somewhere between 30 and 40% of the general population will have one or both of the two genes known to be associated with the development of active celiac disease. Yet, only about 1% of the general population will develop active celiac disease. But the genetic testing can be used as a rule out for celiac disease if you don't have either gene. But even so, that doesn't eliminate the possibility of having NCGS (Non Celiac Gluten Sensitivity).
    • ThomasA55
    • trents
      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint pain before you began experimenting with a low gluten diet. Anything else?
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