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About seashele2

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  1. seashele2

    Soy Lecithin

    Since my diagnosis 8 1/2 years ago and going gluten-free, I have had to take one food after another out of my diet: corn (which causes me gluten reactions/damage), dairy, soy, beef, pork, sulfites (onions, garlic, brussel sprouts, cabbage, and a hundred others). I can only do very few things with soy lecithin in them. I think it has to do with how the particular soy lecithin is made and if the soy proteins have truly been "processed out." I think my problems all come back to leaky gut so this year, my plan is to go on the extremely limited diet to try to heal it. Hopefully, someday I'll be able to eat like a semi-normal person again. Gluten-free wouldn't be so bad if I could eat all the other things that keep coming out of my safe foods.
  2. That is totally disheartening. There is no way we can afford to buy EZ Gluten test kits, so I depend on manufacturers being truthful. I know when I have a gluten reaction to not buy it again but that is all I can go by. Michelle Western Washington state
  3. seashele2

    Confused About Test Results

    I have been diagnosed for 7 1/2 years. (Undiagnosed for 32 yrs before that.) My diagnosing physician, who is also celiac, said that any celiac who is gluten-free would have negative results on labs and endoscopes. Sometimes people who were undiagnosed as long as I was sometime have residual damage, but a young person should completely heal on a gluten-free diet over a few months. My daughter is now 18 1/2 and we removed gluten from her diet 4 years ago when she had undeniable symptoms. Her new gastroenterologist wanted her to go back to eating gluten so he could test her and get an "official" diagnosis. He said as long as she was gluten-free, he wouldn't be able to tell anything. My daughter, her primary care doc and I all said "no way!" She didn't want to spend her last summer before moving to college sick in bed. Based on what we've been told over the years, if your daughter has been gluten-free, she would show no positive celiac results.
  4. seashele2

    Online/dl Food Journal

    The app is designed for simplicity, but you can alter it to be a little more precise by adding, editing or deleting foods or symptoms. I took wheat off and added things like rice, potato, xanthan gum and guar gum. I am already soy-free, but sometimes eat something with soy lecithan, so I changed soy by adding lecithan. I am already MSG-free, so took that off, etc. Then I added to the symptoms list to make it reflect mine. Any new food or symptom later can be added, then tracked. I'm looking forward to using this app.
  5. seashele2

    Online/dl Food Journal

    I have been conversing with the app maker via e-amil this afternoon and the Food Allergy Detective app allows users to change the default/current time/date when entering foods or symptoms, so I am going to buy it. It is available for the iPhone, iPad and iPod Touch. So excited to get a handle on what's bothering my system. Before I was diagnosed, I seemed to be able to eat almost anything. Since going gluten-free, I have had to remove dairy, soy, corn, broccoli, onion, vinegar and some others, but I only feel better for a while and then something else begins to bother me. I have big hopes for this app to help me track down the trends in symptoms.
  6. seashele2

    Online/dl Food Journal

    Yes, that's the one I was talking about. The main reason I haven't gotten it yet is that you can not enter specific times for foods or symptoms. It relies on the user to be able to do that at the time they eat or have a problem. If I get a stomachache at 3:00am, I don't want to have to go put it in my phone, but if I wait until the next morning, that would throw the data off. Same with entering food. If I eat a quick snack while doing something else and don't click that into the app until later when I have time, that data won't correctly correlate with symptoms. I have suggested the time addition on the app contact us link. Hopefully, someday it will have those capabilities.
  7. seashele2

    Online/dl Food Journal

    I am searching for something like this too. I found an app I might buy for iPhone for $2.99 called Food Allergy Detective. It has good reviews although not a great number of them yet. I think it was 9 or 10. Since almost everything I eat is at home, I'd be interested in a computer based one too. I look forward to seeing what anyone else recommends.
  8. seashele2

    Toaster Bags

    I have three or four sets of toaster bags from the last 7 years. I don't travel often and it seems every time I need to go somewhere, I can't find where I put them so I wouldn't lose them. :-/ I think they are all different brands. The last pair of "Toast It" bags I got was on Amazon. I have never bought any that weren't full bags. I haven't even seen any that aren't full bags, but I guess that's something you should watch out for.
  9. seashele2

    Gluten Free In College?

    Actually, in our state, we found the big universities really didn't care. Our daughter selected a smaller state school after visiting 4 schools that offered good programs in her major and they are wonderful. She also got a freshman exception to the first-year dorm rule, but for her corn allergy, not her gluten or dairy-free requirement. With her corn allergy, any aerosol from cleaners to hairspray will cause an asthma "attack" so she will be living in an on-campus apartment in an upperclassman complex. The dorm rooms there all have fridges and microwaves in each room, but that didn't help the air-born allergen problem for her. She will still be eating her lunches and a few dinners a week in the dining hall with them working well with us to make sure she is safe.
  10. seashele2

    Gluten Free In College?

    We're very lucky that my daughter's college in the fall does not use Sodexo. If they did, we would probably have researched longer to find another university! We met with the head of dining services and the campus dietitian last summer before she decided where to apply for transfer. We also met with the university's disability services office. Her college is very food allergy/celiac friendly and they have even added online tools to look up the ingredients in everything they cook so she can determine what to eat before going to the dining hall. All food prep and servers there are also taught about cross-contamination. I would recommend you contact the dining services manager/head cook/campus chef/whoever the top person is at your school now. Let him/her know about your dietary restrictions and set up a meeting to talk with them in person to find out what the school offers for gluten-free students and how they prevent cross-contamination. Also look up the disability services office and give them a call. They will probably have paperwork your physician needs to fill out detailing your diagnosis and treatment, which is obviously a strict gluten-free diet for celiac. As far as away games and team dinners, all athletic teams should be concerned with their athletes health and well being and this would include gluten-free foods for celiac athletes. Gluten-free foods are not out of the norm any more. Team dinners shouldn't be pizza and breadsticks, so it should be fairly easy to make your meal gluten-free. Meat, potato, vegetable, fruit and salad are easily adaptable. If your coaches make a big deal out of your dietary requirements, there is definitely something wrong. Good luck in your quest. I am happy my daughter feels very safe eating away from home at her university in the fall. I hope you get to that point as well.
  11. seashele2

    Where Do You Buy Hazelnut Flour?

    Where I buy my hazelnut flour is: http://www.holmquisthazelnuts.com/Products/Hazelnut-Flour-1-lb__41603.aspx . If the link doesn't post, it is from holmquisthazelnuts dot com. Bob's Red Mill also makes hazelnut flour and that brand is available in most healthfood stores and regular grocery stores around me. It can also be ordered online at http://www.bobsredmill.com/hazelnut-flour-meal.html or on a m a z o n dot com. (The page wouldn't let that name post at all.) I have tried making my own in my Magic Bullet, but I can never get the consistency correct. When I try to grind it finely, I have ended up making nice hazelnut butter or almond butter or sunflower butter or whatever I am trying to grind into flour. I am better off saving up money to order it "professionally" ground up. lol. Michelle Western Washington State
  12. seashele2

    Corn Intolerance?

    A study was done in the late 1970's that indicated that around 40% of celiacs react to corn, about the same amount as react to oats. Oats were out, but corn was not for some reason. (The corn lobby is a very powerful force.) My daughter and I both can not tolerate corn, but my daughter is corn-allergic. My reaction to corn didn't start until after I healed my intestine by going gluten-free. I do fine with oats however. Intolerances have such a variety of symptoms, but what you are describing could very well be that. They are different than my symptoms, but the same as I have heard about from others. My corn-intolerance has gotten worse the more years I have been gluten-free. I also used to be fine with popcorn and cut corn or corn on the cob, but now, it all bothers me. The hardest part of being a corn-intolerant celiac is that so many gluten-free items use cornstarch as a substitute flour. That means a lot of gluten-free items are off our shopping lists. I wish manufacturers would take notice and eliminate corn like they do oats. Michelle Western Washington State
  13. seashele2

    Celiac And Colitis

    My daughter and I both have microscopic colitis and we both have celiac. It is more of a case of correlation than causation though. Celiacs have a higher chance of having microscopic colitis than the general population. I'm not sure about "regular" colitis however, the kind they can see without a biopsy and microscope. Michelle Western Washington State
  14. seashele2

    Corn Reaction To Namaste Products

    Which Namaste products are you getting the reactions from? My 18 year old daughter, who has been allergic to corn since birth, hasn't reacted to any of the Namaste products we are using. I also react to corn, in addition to others, but not as strongly as she does, and I haven't noticed anything either. Maybe we're just not using the same products? ~Michelle~
  15. They diagnose microscopic colitis via biopsies taken during a colonoscopy. It is not visible when they look around, but is under a microscope. My daughter (17) has it and so do I. We are both celiac too. Michelle Western Washington