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Painfullyfrustrated

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Painfullyfrustrated Newbie

Hello,

I am a 36 yr old male thats 5'10 180 and in pretty good shape. I have some allergy to lactose as milk and cheese cause numerous gastro issues. My issue is that I have been suffering with lower abdominal pain/pressure (above the male region and just below the stomach)for the past 2.5 years and cant figure out why. Some days I have no pressure and other days its painfull to the point where I just wanna poke myself to pop. At times the only thing that helps is releasing gas but then the pressure comes back within 10 seconds. I have been to a GI and also had a colonoscopy plus blood work which came back inconclusive for Celiac. Im not sure if that uncertainty is just a preview of whats to come or Im in fact not allergic. I have also been to mumerous general doctors as I cant find one that actually cares, needless to say I am alone on this and wonder if their are specific symptoms or signs that will help guide me to a yes or no on this allergy.

Thank You!


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sandsurfgirl Collaborator

Hello,

I am a 36 yr old male thats 5'10 180 and in pretty good shape. I have some allergy to lactose as milk and cheese cause numerous gastro issues. My issue is that I have been suffering with lower abdominal pain/pressure (above the male region and just below the stomach)for the past 2.5 years and cant figure out why. Some days I have no pressure and other days its painfull to the point where I just wanna poke myself to pop. At times the only thing that helps is releasing gas but then the pressure comes back within 10 seconds. I have been to a GI and also had a colonoscopy plus blood work which came back inconclusive for Celiac. Im not sure if that uncertainty is just a preview of whats to come or Im in fact not allergic. I have also been to mumerous general doctors as I cant find one that actually cares, needless to say I am alone on this and wonder if their are specific symptoms or signs that will help guide me to a yes or no on this allergy.

Thank You!

Celiac disease is not an allergy, it's an autoimmune disorder which makes it in many ways more serious. Did your doctor know how to read your blood test results because many of them don't? Is inconclusive meaning totally negative or partially positive? You don't have to be positive on all of them to have it.

Have you gone to an allergist for testing for food allergies? Not that those tests are always accurate but it's a start.

You can also play with your diet yourself but it's a big commitment and it takes time. You can either go gluten free and see if that does the trick. Or you can do an elimination diet which means you cut your diet down to the least allergenic foods for a week or two. You eat rice, chicken, squash, fruits, etc.

The major allergens should be cut out. Wheat, dairy, soy, corn, chocolate, eggs, berries, citrus, oats, pretty much all grains but rice at first because rice is the least likely to cause allergy. Then after doing the simple diet for a week or so you add back in one food at a time every 3-4 days. If you get sick from it, you cut the food and challenge it again in a few days time. You do egg whites and yolks separately because it's more often the whites that people are allergic to.

My mother in law is an allergist and she is a big fan of doing an elimination diet but she has a very hard time getting patients to do it. Food allergy testing may or may not show up positive but you can still react to the food.

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    • trents
      Yes, it does. And joint pain is another celiac symptom that is now well-recognized. 
    • ThomasA55
      Does my iron loss sound like celiac to you?
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      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it is important for you to get tested is that many or most people who don't have a formal diagnosis find it difficult to be consistent with the gluten-free diet. They find ways to rationalize that their symptoms are due to something other than celiac disease . . . especially when it becomes socially limiting.  The other factor here is by being inconsistent with the gluten free diet, assuming you do have celiac disease, you are likely causing slow, incremental damage to your gut, even though you are largely asymptomatic. It can take years for that damage to get to the point where it results in spinoff health problems. Concerning genetic testing, it can't be used for diagnosis, at least not definitively. Somewhere between 30 and 40% of the general population will have one or both of the two genes known to be associated with the development of active celiac disease. Yet, only about 1% of the general population will develop active celiac disease. But the genetic testing can be used as a rule out for celiac disease if you don't have either gene. But even so, that doesn't eliminate the possibility of having NCGS (Non Celiac Gluten Sensitivity).
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    • trents
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