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Wondering If This Could Be A Neurologic Symptom


katg

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katg Newbie

My eight year old has been having episodes of fast motion feelings (everything around her moving super fast) or her hands feeling very large, puffy and even heavy. It seems to happen in the mornings mostly and only about once a week lasting about 1 to 5 minutes. We have taken her to her pediatrician who says he has heard of this before but it one of those unexplained things that we should not worry about. My daughter will start crying because she doesn't like when this happens and I'm try to do some reasearch on my own to see if maybe it has to do with her diet. Has any one had these experiences as a child? I typed in fast forward feelings and did come across a chat discussing the exact same thing my daughter has experienced but no one has a reason as to why and it appears to go away as the person has gotten older. She also complains that her stomach aches after she eats some times and often doesn't want to get involved in after school activities because she says she is tired. She also had a huge issue with cavaties this past year and had to have eight fillings. We couldn't believe it. It's like her teeth are very pitted or soft.

Kind of fell in to the idea that she might have a gluten problem as I did a cleanse type thing with the gym I attend where I was eating very cleanly for 10 days. After that I started feeling all bloated again and am wondering if I myself have an issue with wheat and I started looking into it. Now wondering if my daughter actually is having symptoms from gluten.

Any feedback would be really appreciated. Thanks!


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GF Traveling Dude Newbie

Neuro symptoms could be. They are very difficult for an adult to describe, let alone an 8 year old. I would describe celiac neuro symptoms as just not feeling with it; your nerves don't accurately respond to stimuli around you; would be felt most acutely in a busy setting where all your senses were activated at once. Thus, you see how everything around you would feel like it was moving too quickly if you couldn't keep up.

My eight year old has been having episodes of fast motion feelings (everything around her moving super fast) or her hands feeling very large, puffy and even heavy. It seems to happen in the mornings mostly and only about once a week lasting about 1 to 5 minutes. We have taken her to her pediatrician who says he has heard of this before but it one of those unexplained things that we should not worry about. My daughter will start crying because she doesn't like when this happens and I'm try to do some reasearch on my own to see if maybe it has to do with her diet. Has any one had these experiences as a child? I typed in fast forward feelings and did come across a chat discussing the exact same thing my daughter has experienced but no one has a reason as to why and it appears to go away as the person has gotten older. She also complains that her stomach aches after she eats some times and often doesn't want to get involved in after school activities because she says she is tired. She also had a huge issue with cavaties this past year and had to have eight fillings. We couldn't believe it. It's like her teeth are very pitted or soft.

Kind of fell in to the idea that she might have a gluten problem as I did a cleanse type thing with the gym I attend where I was eating very cleanly for 10 days. After that I started feeling all bloated again and am wondering if I myself have an issue with wheat and I started looking into it. Now wondering if my daughter actually is having symptoms from gluten.

Any feedback would be really appreciated. Thanks!

MovieMaker Newbie

wow... I am blown away! I have just recently discovered every symptom I've had my whole life fits into the Celiacs Disease. Had my blood work done on Thursday, I should know by Tuesday for sure. But I don't need blood work to tell me I have this I've never been so sure of anything in my life. I am a 22 year old female and when I was about 10 or so, these " fast forward" feelings you describe terrified me when I was younger. Normally they occurred in the middle of the night, mostly when I would wake up from a nightmare. I was pace around my hallway to this really fast "rhythm" I would describe it sometimes it would take my a while to shake it and now that I'm older I have grown use to it, so I'll do my business in the middle of the night with "fast forward" movements and then go back to sleep. I share the same symptoms you daughter does. I hope that this information has helped.

Best of Luck

katg Newbie

wow... I am blown away! I have just recently discovered every symptom I've had my whole life fits into the Celiacs Disease. Had my blood work done on Thursday, I should know by Tuesday for sure. But I don't need blood work to tell me I have this I've never been so sure of anything in my life. I am a 22 year old female and when I was about 10 or so, these " fast forward" feelings you describe terrified me when I was younger. Normally they occurred in the middle of the night, mostly when I would wake up from a nightmare. I was pace around my hallway to this really fast "rhythm" I would describe it sometimes it would take my a while to shake it and now that I'm older I have grown use to it, so I'll do my business in the middle of the night with "fast forward" movements and then go back to sleep. I share the same symptoms you daughter does. I hope that this information has helped.

Best of Luck

I can't believe this. It's so nice to hear that someone else has experienced what my daughter is. Could you please let us know how your tests turn out. Very grateful for your reply. This is really confirming that I am on the right track here. Thanks

georgie Enthusiast

These Youtube videos show what celiac can do re neuro symptoms....

Open Original Shared Link

Open Original Shared Link

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    • trents
      Yes, it does. And joint pain is another celiac symptom that is now well-recognized. 
    • ThomasA55
      Does my iron loss sound like celiac to you?
    • trents
      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it is important for you to get tested is that many or most people who don't have a formal diagnosis find it difficult to be consistent with the gluten-free diet. They find ways to rationalize that their symptoms are due to something other than celiac disease . . . especially when it becomes socially limiting.  The other factor here is by being inconsistent with the gluten free diet, assuming you do have celiac disease, you are likely causing slow, incremental damage to your gut, even though you are largely asymptomatic. It can take years for that damage to get to the point where it results in spinoff health problems. Concerning genetic testing, it can't be used for diagnosis, at least not definitively. Somewhere between 30 and 40% of the general population will have one or both of the two genes known to be associated with the development of active celiac disease. Yet, only about 1% of the general population will develop active celiac disease. But the genetic testing can be used as a rule out for celiac disease if you don't have either gene. But even so, that doesn't eliminate the possibility of having NCGS (Non Celiac Gluten Sensitivity).
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    • trents
      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint pain before you began experimenting with a low gluten diet. Anything else?
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