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Gluten Intolerant Or Not?


mizryluvscompany

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mizryluvscompany Newbie

Last summer my chiropractor had lab work done to determine if I had any sensitivities. I had saliva and stool testing and Diagnos-Tech was the lab.

The results indicated a strong gluten sensitivity and some milk sensitivity. I had been having serious digestive problems for about 3 years prior to this. Symptoms were chronic episodes of nausea, weakness fatigue, lightheadedness, etc. that would last 1-4 weeks then suddenly go away. I had CTscans, colonoscopy, upper endoscopy and was tested for Celiac all with negative findings.

Since the lab work came back I have been pretty diligent about avoiding gluten with a few slip-ups along the way. I have felt both really, really good and really bad during this period. Recently, I have been feeling pretty well and, for my own edification, have reintroduced some foods that definitely contain gluten and not just trace amounts. After 2 weeks of this I have had no adverse reactions whatsoever. Bowels remain pretty normal, no nausea or fatigue.

My question is if I were seriously gluten intolerant, would I be experiencing some symptoms by now? I have never been completely sold on the results of the test but I don't know if reactions to gluten are fairly prompt or take time to build up.

Any feedback appreciated.


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All I can say is that everyone seems to be wildly different. For instance, some gluten foods really affect me while others are more mild, if much at all. The other night I had Chinese (because I'm in the window for bloodwork to see where I'm at in this Celiac cunundrum) - it really whalloped me, then last last night I went to Wendy's and ordered a Fillet of Fish sandwhich - today, very little effect, so who knows. If I have gluten in my diet more than 2-3 days in a row, it affects me.

I feel that many of us sail our own journey's that are uniquely different - some share the same stories but we often have "our moments" that is ours to deal with.

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    • trents
      Yes, it does. And joint pain is another celiac symptom that is now well-recognized. 
    • ThomasA55
      Does my iron loss sound like celiac to you?
    • trents
      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it is important for you to get tested is that many or most people who don't have a formal diagnosis find it difficult to be consistent with the gluten-free diet. They find ways to rationalize that their symptoms are due to something other than celiac disease . . . especially when it becomes socially limiting.  The other factor here is by being inconsistent with the gluten free diet, assuming you do have celiac disease, you are likely causing slow, incremental damage to your gut, even though you are largely asymptomatic. It can take years for that damage to get to the point where it results in spinoff health problems. Concerning genetic testing, it can't be used for diagnosis, at least not definitively. Somewhere between 30 and 40% of the general population will have one or both of the two genes known to be associated with the development of active celiac disease. Yet, only about 1% of the general population will develop active celiac disease. But the genetic testing can be used as a rule out for celiac disease if you don't have either gene. But even so, that doesn't eliminate the possibility of having NCGS (Non Celiac Gluten Sensitivity).
    • ThomasA55
    • trents
      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint pain before you began experimenting with a low gluten diet. Anything else?
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