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Can You Look At My Symptoms


blondebombshell

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blondebombshell Collaborator

- bloating

- constipation since toddlerhood

- hives only on calves, and front and back of thighs

ever since i can remember i can never go to the bathroom. TMI maybe, lol.

i have a bowel movement about every week, week and a half. now i have a history of colon-rectal cancer in the family and would truly like to get to the bottom of my issues so that i can live a long, healthy life. i also recently was pregnant and all symptoms went away while pregnant; felt great once i got past the first trimester. no hives, regular bowel movements, etc.

i had skin testing done and that showed nothing except for fruit issues. (which i love eating and have never had issues with). had an endoscopy done and they said no evidence of celiac. had blood work done (igg, iga?) and that was all negative.

GI said i had ibs - now i know it could be something else because WHY do i get hives all the time after eating certain foods? i KEEP a food diary and it could be anything really - wheat or dairy.

any help would be greatly appreciated.


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    • trents
      Yes, it does. And joint pain is another celiac symptom that is now well-recognized. 
    • ThomasA55
      Does my iron loss sound like celiac to you?
    • trents
      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it is important for you to get tested is that many or most people who don't have a formal diagnosis find it difficult to be consistent with the gluten-free diet. They find ways to rationalize that their symptoms are due to something other than celiac disease . . . especially when it becomes socially limiting.  The other factor here is by being inconsistent with the gluten free diet, assuming you do have celiac disease, you are likely causing slow, incremental damage to your gut, even though you are largely asymptomatic. It can take years for that damage to get to the point where it results in spinoff health problems. Concerning genetic testing, it can't be used for diagnosis, at least not definitively. Somewhere between 30 and 40% of the general population will have one or both of the two genes known to be associated with the development of active celiac disease. Yet, only about 1% of the general population will develop active celiac disease. But the genetic testing can be used as a rule out for celiac disease if you don't have either gene. But even so, that doesn't eliminate the possibility of having NCGS (Non Celiac Gluten Sensitivity).
    • ThomasA55
    • trents
      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint pain before you began experimenting with a low gluten diet. Anything else?
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