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Advice/help?

MNS

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MNS Rookie
MNS
Posted

Today I received my blood work from my doctor--of course, they didn't order what I asked them to order--and they didn't let me see the lab sheet before I had my blood drawn! I DID give them a list...but this is what they ordered:

Gliadian antibody (IGG)--Result 9 (In range) Under 11 is negative; 11-17 equivocal; >17 positive

Gliadin antibody (IGA)--Result <3 (In range) <11 is in range; 11-17 is equivocal; >17 is positive

My Enterolab results 4 years ago were negative; recent results were POSITIVE.

I'm 99% sure any other lab work I have done will be normal...I just have that sense. I don't know whether I should bother to get it done or not. I just don't know whether to "believe" the Enterolab results or not--but I DO sense that there is an issue and will try a gluten elimination on my own. However, convincing others is going to be an up-hill battle!

By the way, my other symptoms/conditions that make me think that gluten is possibly an issue are: reflex sympathetic dystrophy (diagnosed after a fracture about 3 years ago--I am wondering if this could have been my "triggering" event), acid reflux for many years (confirmed several years ago with barium swallow), history of duodenal ulcer, recent history of migraine-type headaches, fatigue, history of eating disorders, low vitamin D status (on supplementation now--I was NOT deficient until a year ago--and had been tested repeatedly), osteopenia--probably related to eating disorder but perhaps related to gluten issues

Thank you for any advice. I am also concerned for my son, who has been anemic at several points in his life, despite eating a diet rich in iron-fortified foods. However, these fortified foods have mainly been grain-based foods, as he detests meat, chicken, fish, etc. I remarked to his pediatrician that I was surprised he was anemic because of the high level of supplementation in grain products (his favorite food is Cheerios!) but this was before celiac disease was on my "radar." I don't know whether I 'believe' enough in Enterolab's testing to have him tested. I'm not sure what to do...

Thank you!!

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      Iron loss and potential celiac.

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      Iron loss and potential celiac.

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      Iron loss and potential celiac.

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      Iron loss and potential celiac.

      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint...
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    • trents
      Iron loss and potential celiac.

      By trents · Posted

      Yes, it does. And joint pain is another celiac symptom that is now well-recognized. 
    • ThomasA55
      Iron loss and potential celiac.

      By ThomasA55 · Posted

      Does my iron loss sound like celiac to you?
    • trents
      Iron loss and potential celiac.

      By trents · Posted

      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it is important for you to get tested is that many or most people who don't have a formal diagnosis find it difficult to be consistent with the gluten-free diet. They find ways to rationalize that their symptoms are due to something other than celiac disease . . . especially when it becomes socially limiting.  The other factor here is by being inconsistent with the gluten free diet, assuming you do have celiac disease, you are likely causing slow, incremental damage to your gut, even though you are largely asymptomatic. It can take years for that damage to get to the point where it results in spinoff health problems. Concerning genetic testing, it can't be used for diagnosis, at least not definitively. Somewhere between 30 and 40% of the general population will have one or both of the two genes known to be associated with the development of active celiac disease. Yet, only about 1% of the general population will develop active celiac disease. But the genetic testing can be used as a rule out for celiac disease if you don't have either gene. But even so, that doesn't eliminate the possibility of having NCGS (Non Celiac Gluten Sensitivity).
    • ThomasA55
      Iron loss and potential celiac.

      By ThomasA55 · Posted

    • trents
      Iron loss and potential celiac.

      By trents · Posted

      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint pain before you began experimenting with a low gluten diet. Anything else?
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