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Celiac Disease


manpriya

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manpriya Newbie

I am a 15 year old girl residing in Delhi,India and celiac disease is in my genes.In Nov'09, my Ttg test was positive. It was 84.20(the normal range being<20)..while my endoscopy was negative.Since then I have been on a strict gluten free diet , However After 3 months, my Ttg was 38(normal range= <20)...and now it is 48.15(normal range <20)

What could be the possible reasons of an increase in my Ttg (IgA) level as I am on a strict gluten free diet??? Can a person be termed as celiac when only their is an increse in Ttg level???


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starrytrekchic Apprentice

Hi, not sure about the ins and outs of the testing, but if you're still showing positive numbers, you're getting gluten in your diet somewhere. It may be coming from drinks, make up, shampoo, any personal care products, or even pet food. Gluten has a way of getting places it shouldn't be.

You may be getting cross-contaminated when you prepare foods, if the kitchen you use isn't gluten free. Cafeterias or restaurants will need to know they have to be careful when preparing your foods.

Also, consider that some of the food you're eating might not contain gluten in the ingredients, but might be contaminated with wheat in the factory. You'll actually have to call the places you get food from (assuming you can't find out online) and find out if your foods are made on the same equipment as wheat containing foods. Good luck!

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    • trents
      Yes, it does. And joint pain is another celiac symptom that is now well-recognized. 
    • ThomasA55
      Does my iron loss sound like celiac to you?
    • trents
      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it is important for you to get tested is that many or most people who don't have a formal diagnosis find it difficult to be consistent with the gluten-free diet. They find ways to rationalize that their symptoms are due to something other than celiac disease . . . especially when it becomes socially limiting.  The other factor here is by being inconsistent with the gluten free diet, assuming you do have celiac disease, you are likely causing slow, incremental damage to your gut, even though you are largely asymptomatic. It can take years for that damage to get to the point where it results in spinoff health problems. Concerning genetic testing, it can't be used for diagnosis, at least not definitively. Somewhere between 30 and 40% of the general population will have one or both of the two genes known to be associated with the development of active celiac disease. Yet, only about 1% of the general population will develop active celiac disease. But the genetic testing can be used as a rule out for celiac disease if you don't have either gene. But even so, that doesn't eliminate the possibility of having NCGS (Non Celiac Gluten Sensitivity).
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    • trents
      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint pain before you began experimenting with a low gluten diet. Anything else?
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