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Simona19

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Simona19 Collaborator

Hi Everybody!

I would like to tell you what have been happening in my life since I have been positive for SIBO. I was on two antibiotics for 14 days (morning and evening). Durring that time I was going to the bethroom 6-10 times a day. I drank water and I went. Uff! It is much better now, only 3-4 times. Which is great.

About one week later I got glutened or it was reaction to something diferent that I ate (apples). O, My Good! I woke up at 4:00 AM to a unbelievable pain. I tought that somebody is cutting my stomach with nife. I had pain from my ribcage to the "other" end of my body. I wasn't able to move. I was bloathed, but not able to pass gass - sorry for this. I was in pain for two hours. Next day I called my doctor in New York and asked her for the fructose test because I also ate an apple a day before. This Friday I had the test for fructose intolerance which came back possitive - more things that I can't eat. :(:(

I just got back from wisiting my allergologist. She tested me for the wheat, eggs, chicken, soy, corn, fish, tomato. Everything was negative. In August I tested positive for wheat allergy. The reaction was delayed, but it lasted for more than 24 hours.

The result from that is: wheat intolerance. I don't have the imediate reaction to wheat, but I have delayed which will cause digestive issues. I don't know, if I have the real celiac disease yet, but I know that I have wheat intolerance.

I don't have the results from my genetic test at Kimball Genetics yet, I don't know If there is even possibility of having the celiac disease. I shoul get it this week. I will let you know the result.

I still have one issue which nobody knows what it is- feeling of fainting, dizziness, blackouts,palpitations, fatigue, sleapiness. It's 6 months and I have just a very mild improvement. Does anybody know what is wrong?

I will see my regular doctor on Friday. I would like to ask him to check again my iron, vitamin D, and magnesium levels and also pancreas enzymes.


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aLayla Newbie

Yeah, I was thinking about magnesium too, when you mentioned palpitations and fatigue etc. Also try to get the test results, different countries measure magnesium levels differently ('normal' in some countries can be 'low' really..)

And it depends how the tests are done too, you probably got info on that already,or you can research it..

There are other vitamins/minerals that could be a problem too.. You might wanna track your nutrition on fitday.com to see approximately what you might be deficient in?

How is your blood pressure like? When I was younger I had fainting and such, my blood pressure was extremely low..

Do you manage to get any exercise? Also what is your air quality like? Any chemical industry near-by? (Or indoor pollution?)

I'm not so sure about apples myself either.. might also depend if you eat them alone or with any grains? (grains+fruit=gases and bloating..)

Simona19 Collaborator

Yeah, I was thinking about magnesium too, when you mentioned palpitations and fatigue etc. Also try to get the test results, different countries measure magnesium levels differently ('normal' in some countries can be 'low' really..)

And it depends how the tests are done too, you probably got info on that already,or you can research it..

There are other vitamins/minerals that could be a problem too.. You might wanna track your nutrition on fitday.com to see approximately what you might be deficient in?

How is your blood pressure like? When I was younger I had fainting and such, my blood pressure was extremely low..

Do you manage to get any exercise? Also what is your air quality like? Any chemical industry near-by? (Or indoor pollution?)

I'm not so sure about apples myself either.. might also depend if you eat them alone or with any grains? (grains+fruit=gases and bloating..)

My magnesium level was 1.7, low ref. range 1.8 - 2.4 on 8/10/2010.

iron was 35 ref. range 35-150

iron saturation 10 low ref. range 11-46

vitamin b12 417 ref. range 200-1100

vitamin D 31 ref. range 30-100

vit D, 25-OH,D2 <4

The tests were done in The USA by Quest Diagnostics. I was born in Slovakia. English isn't my first language. Sometimes I will make spelling mistakes. Sorry for that. Two years ago I didn't even knew how to create a sentence. Look at me now. I'm writing in English with people from other countries. :)

I'm gluten free from May 23. It took me about two weeks to learn all things where I can find gluten. I ingested gluten by accident a few times. I can say that from the first week of June, I didn't ate nothing with gluten in it. From June 15 I'm also milk free. I tested positive for the milk allergy. I was already milk intolerant, but from time to time I had some icecream or cheese. After positive test I'm 100% milk (casein) free.

The pain what I experienced was very bad. That day I ate the coconut yogurt SO Delicious ( only this was something new, I never had it before)and one slice of bread Glutino, home made chicken soup- more like broth for lunch, some fruit between ( I don't remember what - maybe strawberries, blackberies or peach), at 5 PM I had another yogurt (It was very tasty. I didn't have yogurt for about 9 months. A very long time). For dinner at 6:30PM I had potatoes, chicken breast from soup and cucumber salat. For snack about 9:00 PM one big apple. When I ate my dinner I had some milder bloathing and pain in stomach. After dinner I had pain, level 8 from 0-10 points. I took one Gas-X. It helped, but I ate apple to "help me" digest the food. I was wrong!!!! My bloathing came back, and before I went to sleap I took another Gas-X. Then at 4:00 AM I woke up on pain level 11 from scale 0-10. :o:(:o:unsure:

It was apple or yogurt? I don't know, but something didn't agree with my stomach.

Looking for answers Contributor

My magnesium level was 1.7, low ref. range 1.8 - 2.4 on 8/10/2010.

iron was 35 ref. range 35-150

iron saturation 10 low ref. range 11-46

vitamin b12 417 ref. range 200-1100

vitamin D 31 ref. range 30-100

vit D, 25-OH,D2 <4

The tests were done in The USA by Quest Diagnostics. I was born in Slovakia. English isn't my first language. Sometimes I will make spelling mistakes. Sorry for that. Two years ago I didn't even knew how to create a sentence. Look at me now. I'm writing in English with people from other countries. :)

I'm gluten free from May 23. It took me about two weeks to learn all things where I can find gluten. I ingested gluten by accident a few times. I can say that from the first week of June, I didn't ate nothing with gluten in it. From June 15 I'm also milk free. I tested positive for the milk allergy. I was already milk intolerant, but from time to time I had some icecream or cheese. After positive test I'm 100% milk (casein) free.

The pain what I experienced was very bad. That day I ate the coconut yogurt SO Delicious ( only this was something new, I never had it before)and one slice of bread Glutino, home made chicken soup- more like broth for lunch, some fruit between ( I don't remember what - maybe strawberries, blackberies or peach), at 5 PM I had another yogurt (It was very tasty. I didn't have yogurt for about 9 months. A very long time). For dinner at 6:30PM I had potatoes, chicken breast from soup and cucumber salat. For snack about 9:00 PM one big apple. When I ate my dinner I had some milder bloathing and pain in stomach. After dinner I had pain, level 8 from 0-10 points. I took one Gas-X. It helped, but I ate apple to "help me" digest the food. I was wrong!!!! My bloathing came back, and before I went to sleap I took another Gas-X. Then at 4:00 AM I woke up on pain level 11 from scale 0-10. :o:(:o:unsure:

It was apple or yogurt? I don't know, but something didn't agree with my stomach.

The carageen(sp?) in that yogurt is known to cause abdominal distress. I found out the hard way as well. I hope you feel better soon.

Looking for answers Contributor

The carageen(sp?) in that yogurt is known to cause abdominal distress. I found out the hard way as well. I hope you feel better soon.

BTW, work on getting your vitamin D up. I also was recently tested by Quest and came in at the range of 44. My doctor just called me about an hour ago and said she likes to see it between 50-100 for optimal health, despite that 44 is still considered in range. She told me to take 5,000 IUs per day.

Simona19 Collaborator

BTW, work on getting your vitamin D up. I also was recently tested by Quest and came in at the range of 44. My doctor just called me about an hour ago and said she likes to see it between 50-100 for optimal health, despite that 44 is still considered in range. She told me to take 5,000 IUs per day.

Wow! My doctor told me to take only 1000 UI a day. It looks like it's to low, if I'm taking into consideration my level of the vitamin D.

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    • trents
      Yes, it does. And joint pain is another celiac symptom that is now well-recognized. 
    • ThomasA55
      Does my iron loss sound like celiac to you?
    • trents
      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it is important for you to get tested is that many or most people who don't have a formal diagnosis find it difficult to be consistent with the gluten-free diet. They find ways to rationalize that their symptoms are due to something other than celiac disease . . . especially when it becomes socially limiting.  The other factor here is by being inconsistent with the gluten free diet, assuming you do have celiac disease, you are likely causing slow, incremental damage to your gut, even though you are largely asymptomatic. It can take years for that damage to get to the point where it results in spinoff health problems. Concerning genetic testing, it can't be used for diagnosis, at least not definitively. Somewhere between 30 and 40% of the general population will have one or both of the two genes known to be associated with the development of active celiac disease. Yet, only about 1% of the general population will develop active celiac disease. But the genetic testing can be used as a rule out for celiac disease if you don't have either gene. But even so, that doesn't eliminate the possibility of having NCGS (Non Celiac Gluten Sensitivity).
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    • trents
      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint pain before you began experimenting with a low gluten diet. Anything else?
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