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Could I Be


lmnap

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lmnap Newbie

Hi. I just had the blood test for Celiac on monday and am awaiting the results. My Aunt was diagnosed about 10 years ago and encouraged everyone in the family to get the bloodtest. So far, everyone's test came back negative. I have been putting off getting tested because I never thought I had the symptoms and about 8 years ago I asked my doctor if I should get tested and she said, "No. You're not under weight". Gee thanks! Anyway, now that I've actually taken the time to research the disease, I realize I may have had symptoms for many years. I pretty much get sick to my stomach every time I eat at a restaurant, I get gassy and bloated everyday and 8 years ago my daughter was born IUGR without any explaination. She was only 4 pounds at full term. Although I am not underweight(as the doctor so kindly pointed out) I've always maintained a healthy weight without trying. I am quite a big eater too. Especially carbs. Obviously the bloodtest will let me know for sure but I was wondering if anyone thinks it sounds like I have it?


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psawyer Proficient

Welcome to the board.

While being underweight is a common symptom, it is by no means universal. Your symptoms are consistent with celiac disease so it is a definite possibility.

Kay DH Apprentice

Keep in mind that a negative result can still mean a person has gluten sensitivity, sub-clinical celiac, or just wasn't eating enough gluten to ping the antibodies and get a positive blood test. If the test is negative, you might try the gluten-free diet for a while to see if it makes a difference in your GI and other symptoms. My GI dismissed my having celiac because I'm normal weight, don't have anemia, and "only have a 10% chance of with with my HLA-DQ8 gene." Even minor cc causes a lot of symptoms in me. So, sometimes the best test is what your body tells you.

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    • trents
      Yes, it does. And joint pain is another celiac symptom that is now well-recognized. 
    • ThomasA55
      Does my iron loss sound like celiac to you?
    • trents
      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it is important for you to get tested is that many or most people who don't have a formal diagnosis find it difficult to be consistent with the gluten-free diet. They find ways to rationalize that their symptoms are due to something other than celiac disease . . . especially when it becomes socially limiting.  The other factor here is by being inconsistent with the gluten free diet, assuming you do have celiac disease, you are likely causing slow, incremental damage to your gut, even though you are largely asymptomatic. It can take years for that damage to get to the point where it results in spinoff health problems. Concerning genetic testing, it can't be used for diagnosis, at least not definitively. Somewhere between 30 and 40% of the general population will have one or both of the two genes known to be associated with the development of active celiac disease. Yet, only about 1% of the general population will develop active celiac disease. But the genetic testing can be used as a rule out for celiac disease if you don't have either gene. But even so, that doesn't eliminate the possibility of having NCGS (Non Celiac Gluten Sensitivity).
    • ThomasA55
    • trents
      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint pain before you began experimenting with a low gluten diet. Anything else?
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