Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Has It Been The Bread All Along?


chronicowie

Recommended Posts

chronicowie Newbie

Hi everyone,

I've been reading through these forums because it has been suggested to me by a doctor (who is also a registered naturopath) that I may be gluten intorlerant and/or celiac.

I've been doing the run around with doctors for about 2 years now after developing disturbing gastro-symptoms while living overseas. I had convinced myself that I must have contracted some stubborn parasite/bacteria that was some how escaping doctor's tests...which led me to this new doc.

After an hour's consultation about my medical history, symptoms, etc. the verdict was not as I'd suspected. Although she agreed that my gut was most likely a mess she felt about 90% sure it was because of gluten and not a sneaky worm. I had bloodwork for celiac done and it was negative...because of my other symptoms, however, the doc wanted me to have an endoscopy anyways. Problem is, I'm not living in my home country and simply can not afford this procedure. When I told her this, she recommended that I should do a 3 month elimination diet instead.

Anyways, I'm hoping to list my symptoms and get some adivce as to whether or not my efforts are in vain (I don't want to be celiac, obviously, but if removing gluten ends this horrible ordeal I am soooo down!)

Problems:

Gastro - A strange combination of both C and D...with terrible abdominal pain

Multiple vitamin deficiencies - low iron, B12, zinc, vitamin d (which I now am suppose to take 4 times the daily dose of!)

Borderline hypothyroid

Wonky periods - Completely off my whole life...never came monthly, have since basically stopped (only 24 years old, by the way)

Fatigue - Always so tired and sleep waaaay too much!

Thanks for reading and for any advice/opinions you might have!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Hi, and welcome to the forum.

Kudos to your doctor for suggesting gluten intolerance. I second her suggestion that you eliminate gluten (and also lactose) for three months on a trial basis. Those are all indications of gluten intolerance. And you may have intestinal damage that will make digesting lactose difficult (you could try using Lactaid tablets if they are available where you are). I would anticipate that after three months you will notice a marked improvement.

Cypressmyst Explorer

I agree with your Naturopath, at least from everything listed here. 3 months is solid but you should begin to see improvement within the first few days with as severe as your stomach symptoms are. So take some comfort in that.

Get off the gluten. You will live a longer, healthier life for it and be amazed at all the little things that clear up that you never even realized were a problem. :)

Please keep us posted as to your progress!

I should add that this isn't a diet you can cheat on. It is 100% or bust, especially during the first month while your system gets to breath for the first time in your life.

Best of luck and use this forum for support whenever you need it! :wub:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Iron loss and potential celiac.

    2. - ThomasA55 replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Iron loss and potential celiac.

    3. - trents replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Iron loss and potential celiac.

    4. - trents replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Iron loss and potential celiac.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,086
    • Most Online (within 30 mins)
      10,442

    Joseph01
    Newest Member
    Joseph01
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Yes, it does. And joint pain is another celiac symptom that is now well-recognized. 
    • ThomasA55
      Does my iron loss sound like celiac to you?
    • trents
      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it is important for you to get tested is that many or most people who don't have a formal diagnosis find it difficult to be consistent with the gluten-free diet. They find ways to rationalize that their symptoms are due to something other than celiac disease . . . especially when it becomes socially limiting.  The other factor here is by being inconsistent with the gluten free diet, assuming you do have celiac disease, you are likely causing slow, incremental damage to your gut, even though you are largely asymptomatic. It can take years for that damage to get to the point where it results in spinoff health problems. Concerning genetic testing, it can't be used for diagnosis, at least not definitively. Somewhere between 30 and 40% of the general population will have one or both of the two genes known to be associated with the development of active celiac disease. Yet, only about 1% of the general population will develop active celiac disease. But the genetic testing can be used as a rule out for celiac disease if you don't have either gene. But even so, that doesn't eliminate the possibility of having NCGS (Non Celiac Gluten Sensitivity).
    • ThomasA55
    • trents
      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint pain before you began experimenting with a low gluten diet. Anything else?
×
×
  • Create New...