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TPT Explorer

Today I go to the dermatologist again. I should be getting a biopsy, hopefully. I just want this to be over and start healing. If by some chance it's not celiac, I need to start looking into other things. My issues mostly involve my skin, but they more and more I read about celiac, the more I think, "That sounds like me."


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ravenwoodglass Mentor

Be sure the derm does the biopsy properly. The biopsy needs to come from skin next to the lesion not the lesion itself. Once you are done with all the celiac testing you choose to do then give the diet a good strict try for a bit and see if it helps.

TPT Explorer

Raven~ She took a sample of the rash and the skin next to it. They were concerned that the rash wasn't active enough, but I said do the test anyway. Also, the rash on my face( my main reason for seeing the derm.)they think might be something else altogether. They didn't biopsy that yet. I guess that makes sense for now. Why scar my face with a biopsy, if the other biopsy and meds they gave me, might give us answers?

I'm still a little frustrated, as I was hoping they'd come to a reasonable conclusion that it was or wasn't DH based on what's been progressing, and the info about my brother testing + for the gene. I'm starting gluten-free on Friday.

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    • trents
      Yes, it does. And joint pain is another celiac symptom that is now well-recognized. 
    • ThomasA55
      Does my iron loss sound like celiac to you?
    • trents
      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it is important for you to get tested is that many or most people who don't have a formal diagnosis find it difficult to be consistent with the gluten-free diet. They find ways to rationalize that their symptoms are due to something other than celiac disease . . . especially when it becomes socially limiting.  The other factor here is by being inconsistent with the gluten free diet, assuming you do have celiac disease, you are likely causing slow, incremental damage to your gut, even though you are largely asymptomatic. It can take years for that damage to get to the point where it results in spinoff health problems. Concerning genetic testing, it can't be used for diagnosis, at least not definitively. Somewhere between 30 and 40% of the general population will have one or both of the two genes known to be associated with the development of active celiac disease. Yet, only about 1% of the general population will develop active celiac disease. But the genetic testing can be used as a rule out for celiac disease if you don't have either gene. But even so, that doesn't eliminate the possibility of having NCGS (Non Celiac Gluten Sensitivity).
    • ThomasA55
    • trents
      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint pain before you began experimenting with a low gluten diet. Anything else?
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