DownWithGluten

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Everything posted by DownWithGluten

  1. Hi. I've never posted before. Lurked around a little bit before, then came back today. I have ... well let's see. I guess my first and main question is, I notice that once people become gluten-free, their tolerance for ANY gluten becomes a lot worse. Meaning, a lot more susceptible to horrible random attacks if one makes a minor slip-up, worse than perhaps the pain they experienced before. This sounds not so nice, especially coupled with giving up a LOT of food. (Probably 95% of what I've always eaten is gluten-ous food lol.) It's almost like...I suppose I'm wondering, is it worth it. I suppose a lot of you didn't really have a choice, being diagonsed with it. Though I haven't been, but I'm really wanting something to fix my problems and feel it is worth a shot. The only problem is, it seems once you start, you can't go back. Ever. Not even a spoon with wheat touching your plate. Lol...so...has it been worth it? I mean...does the good outweigh the bad? I guess I'm just hoping for some positive reincforcement that, despite the drawbacks, it really HAS improved your quality of life. That's what I'm looking for. Um...and just in case anyone happens to be curious and wants to keep reading, I'll just give a little background as to what's up with me. I'm college aged and I have been at least diagnosed with IBS. I vaguely remember always having some digestion related problems growing up. Sensitivity to grease and whatnot, (doubled over after eating french fries, leading me to squeeze the grease out in napkins - all on my own, too! Dedicated little 10 year old). and often had this bloated feeling, where "lying flat" was the only thing that would relive my pain. I had my appendix out at 10 as well. Anyway...I remember my mom hoping that would fix some of my other pain, but alas, nope! But my stomach problems got noticeably worse around 16-17 years old. I ate some nachoes on a trip, and had one of those horrendously painful "D" attacks. You know, the type where you'd almost rather bang your head against the wall to knock yourself out as opposed to feeling the intense pain (which does at least get 'relieved' with a 'movement). Since then, it's been worse. I get those episodes every 2-3 months, sometimes more than one within a week...and have had this since then until the present moment. Also now alternating with "C" too. Grease and all that definetly aggravates it. And still had that bloated lying flat thing. And just overall feeling-like-crap, thanks to digestion. I'm also a bit intense, which doesn't help. Anyway. I finally started going to doctors about it. They took blood and a 'sample' to rule out Celiac's. They say I don't have it. They ruled out Crohn's as well. Thus I was left with the IBS label. The medication they provided for that made me bleed. So, so much for that. Recently, I attempted Flagyl in meager hopes that maybe I had that giardia parasite inside me all this time...but it didn't seem to have any effect. Now, there's nothing I love more than my pasta and bread and all that sort of stuff. I rely on it so much. But, honestly, I'm so (literally) sick and tired of how horrible I feel all the time, and fearing those intensely and dehabilitatingly painful attacks every so often. I never just feel "good," if that makes sense. And, though I was probably in denial of it before, I MIGHt notice some slight connections with pasta eating. Feeling nauseaous after, feeling like a block is sitting in my stomach, just feeling more cruddy. I attributed that to 'over-eating' since I love pasta and all that so much...but now I'm not so sure. Somewhere deep down I have a feeling, even if it's not Celiac, that maybe getting rid of the gluten will make it go away. (Oh, I should mention - a holistic doctor I tried told me to remove carbonation from my diet - and of all things, THAT'S the only instruction from any doctor on this that has had actual, direct and lasting results. Finally took away that bloated 'need-to-lie-flat' feeling pretty much completely, which I used to wake up with almost every day. Thank God for at least that). Anyway. But considering I've elminated pratically all grease, and soda, and all that great stuff - but still just feel generally bad digestion-wise...and I eat SO much gluten...I really think it could be worth a shot. And though I love pasta and bread and all that SO much...I'm really at that point that I'm willingly willing to eradicate it in hopes that it will make me feel better. (though that will be pretty tedious to learn...). but then it goes back to my original question...is it worth it? Will the sensitivty to specks of gluten popping up in random food to haunt me make me regret it? Ah I don't know! Thanks for any response in advance! Sorry this was so long. edit: oh, and for what it's worth, I have hypothryroidism. The doctor missed my appendicitis but caught that! (back when I was 10...I went in. He thought I just had a stomach ache, but he noticed my neck should be checked for a thyroid problem. And yes, I did have it! Despite not showing symptoms. And then a few days later I went to the emergency room for the stomach pain...haha...anyway.) Hypothyroidism is an autoimmune thing too, if that's any indication.
  2. DownWithGluten

    Lesbian, celiac and coping

    I don't date much at all ...like, really, next to 0. But if/when I ever do, I almost want to require that they have celiac or gluten intolerance too because I just don't want to deal with the BS. Haha. Or maybe at least some kind of chronic condition so they can be sympathetic and non judgemental jerks. They should make a celiac dating site (or maybe they do). I mean eating really IS such a huge part of life, and we unfortunate souls face daily challenges with eating, so if the person is not game for that, it's going to suck. Getting to be on the same page with someone about that would be SUCH a refreshing relief.
  3. DownWithGluten

    Pretending To Be Fine But Really Falling Apart

    Hello, I understand! People have given you good advice about the roommate thing. Yes you have to go kind of leper-mode when it comes to your food, and you will begin to feel like a leper too (this whole thing can be isolating, sorry to say. Ive been doing it for 10 years and sometimes the heartache of that last part you mentioned...knowing how much I'm inconveniencing everyone, confounded by the underlying fact that they don't really think what I'm doing is actually completely necessary, that I'm somehow choosing to make it more difficult than it has to be....all that sometimes has just made me decide it's easier to do a lot of things on my own. Particularly travel....) So, I send you a huge hug and tears of kinship and understanding. The world outside of us truly does not understand and I'm sorry that you have to be part of this leper island club of secret woe, endless frustration...etc ad infinitum. Stay strong, keep safe, keep healthy, and keep coming on here and venting because we all do actually understand on here...unlike most of the rest of the world.
  4. DownWithGluten

    Dealing With People Who Don't Understand

    It is difficult! And cristiana, I know what you mean about other celiacs or gluten intolerants poking holes in our credibility. They'll claim to need to be gluten free but then will go and eat some cookies occasionally. I mean ...I know one who was gluten intolerant (lots of food intolerances actually) and she'd still eat gluten in front of me sometimes. On the one hand I liked being around her since at least she tolerated/understood my problem, but still, it made me cringe. Then even last year (shoot, two years ago now) in Paris I was with someone who supposedly is gluten intolerant who went ahead and ate a whole basket of bread...I was like...uuuh. She said she had some muscle soreness after but...yeah. I was inwardly horrified, I would NEVER do that for my own self! That would be horrific. It'd be like consciously choosing to eat meat with salmonella or e.coli. So I suppose you're right. She didn't even seem to get my paranoia over cross contamination in their tiny kitchens. But for me, those people...it's their funerals. I don't get it for myself, I would never do that, I'm still in pain from my accidental glutening this past Wednesday...I feel like my intestines have been beat up and eating anything is like gently swallowing teensy bits of glass along with it. I hope it gets better soon. But anyway...to me, that's their business, their bodies. So it's still unfortunate to me that the people who have NO experience, personally, with this ailment are quick, so quick to jump on those outliers who fudge the rules as the "real" ones and we (the serious ones) as the ones who are overreacting or faking. So, because some people "cheat"....that automatically must mean the entire thing is a farce. Riight. I just wish people would give other people the benefit of the doubt. Is that so hard? If someone says "I have a problem. I can not do xyz." LEAVE IT ALONE. JUST GO WITH IT. ARGHGHGHGH. NO ONE WANTS YOUR DAMN OPINIONS OR THOUGHTS OR LECTURES ON SOMETHING YOU KNOW NOTHING ABOUT, BUT I LIVE WITH DAILLLLY. ok OMG cutting the gluten free cake with a gluten covered knife. You see, this, this is the reason we have to be so "paranoid" all the time, which people sometimes regard as attention-seeking behavior. It's not, though. For the millionth time, I'd be MORE than happy if I didn't have to do ANY of this. But we know the truth...if we're not hyper-vigilant....if we let our guard down even a little....a disaster is waiting to happen.
  5. DownWithGluten

    Dealing With People Who Don't Understand

    I don't have much encouragement, but at least I can say I know how you feel and I would like to go smack all those people at your party. Lol. I actually experience a lot of anger over the way other people react. My intestinal reactions to gluten ingestion are pretty severe (as are most people's on this thread). It was bad enough in college that I felt like I didn't want to keep living if it was going to keep happening. The gluten free diet stopped all those symptoms and "intestinal/digestive attacks" for me, and yet it's constantly being mocked in the (American) media, which trickles down in the way people around you act. Like we're just these self-indulgent whackos. And people...yeah I don't even want to get into it right now. Unfortunately I was "glutened" recently (on Wednesday) and I still feel awful physically so I think it just makes me more sad how people like to put it down, or act like you're overreacting, or act like they know better, or act like you could just "eat a little" instead of being so strict, as if you're choosing to make your life WAY more difficult for fun and not out of medical necessity. Following the gluten free diet, trying to avoid cross contamination, makes something most people take for granted (eating) a daily challenge! As far as when it comes to eating outside your own kitchen (where you can make your own food)...but even then, you have to be stressed about grocery stores, buying ingredients. Even getting prescription medications can be a challenge, have to watch for gluten in medicine, too....anyway, all that is no easy (or cheap) task. It's time consuming and frustrating to say the least. I guess, to me, enduring the ever-present challenge of eating gluten free is of course worth it given the alternative. But it's difficult, and we don't have a choice. Trust us, we'd rather not have to live this way, either. But the alternative is getting really, really, sick and increasing the risk for other illness...etc ad infinitum. I already have another autoimmune disorder and recently low b12 was added to my list of magic. So for me, to have to deal with people's BS on top of all that gets me very angry. Verrrry angry. I need anger management on it or something, I think. I wish I had a better way of letting the BS of others regarding this roll off my back. I guess we just have to accept that people will not understand and will judge you and make jokes or think they know better and that you're choosing to be difficult....just accept that's a reality, even though it's completely wrong, and they're being diminutive, patronizing, ignorant, narrow-minded, arrogant, stubborn and rude. I don't think you're skin thinned. And, I just "celebrated" my 10 year "anniversary" of being gluten free this January. 10 years! So uh, i can't say it's gotten easier in my experience. I started before it was considered a whole "fad" thing, so that added anger about it for me over the five years. It just causes so much frustration and is nothing any of us would VOLUNTARILY want to deal with. So why do people need to give us s**t on top of that, like it's our choice?? How does that even make sense? What has really grated on me over the past 10 years IS other people's reactions, more than the whole difficult challenge of staying completely gluten free itself. Anyway I need to go take my wailing, wrecked, inflamed intestines off to bed now...
  6. DownWithGluten

    Just So Tired Of It All

    Hanshotfirst, unfortunately I have no solutions. I just want to offer another voice of support to show that I know what you feel like. In some twisted sense it might be "easier" for me in that the pain/sickness was so bad beforehand that I kinda wanted to just jump out a window, so being on the diet at least eliminates that and gives me a sense of control that I didn't have before. (Since before, I didn't know what was causing it). And I was a loner anyway, not the life of the party and spend a lot of time alone by choice. But, good Lord, I know what you feel and how you mean. I've been gluten free for nine years now. It is hard being on the diet. People don't understand. You have to deal with a lot of attitudes from people, on top of all the difficulties of just being "paranoid" all the time about getting glutened, not knowing when you'll be able to eat next (if on a trip, etc.) It's like you're offending other people, or putting them out , or bothering them...nevermind how you feel, right? Haha. I find that it's just way easier to travel and do things alone because food is inevitably such a big part of life and socializing. And it causes such problems there. And so if I'm starving and thus feeling irritable, or am getting "paranoid" over a food or at a restaurant or whatever, better that I'm alone than with someone else rolling their eyes or feeling put out or judging me for overreacting. and of course those people want to eat, too, "real" food you know...and being around us might damper that some. Sigh, I don't know. Sorry that you weren't as bad before (sickness wise) so that you don't even see the payoff so much now. The diet is hard, socially, for sure. I do feel kind of angry/defensive/bitter about it a lot. But I agree with the others though, if diagnosed with celiac, you really need to stick to it, though, for your own well-being and health in the long run. :/ Hang in there and, just know ...even though it DEFINITELY FEELS LIKE IT DAY TO DAY...in this big wide world, you're not really alone in your struggles.
  7. Wow you all have more balls than I do. I've been gluten free since 2007 and I'm still afraid of offending people. It gives me lots of troubles, really. I'm more like rockstarkate I guess...the "people pleasing" aspect. I love how you all just have the flat out rule I Will Not Eat It Unless I or a Celiac Made it. (Or a trusted family member). I still simper and grovel and cringe and apologetically turn things away. People still put dishes in my face and say "This should be gluten free..." and I have to awkwardly not eat it and then seem rude. I've done the whole...checking the bottles thing too. I do try to dart out of things more though now. I volunteered in other countries in recent years and I felt as vulnerable as all heck, having to rely on them to make food, as well as definitely feeling like I offended people who didn't get it at all. I was feeling brave when I signed up for those but after the second time I was like okay, the fear/anxiety/stress about the food is too much. I managed to dodge out of getting sick, and for the most part people humored me...but it was pretty difficult because I don't like offending people, especially other cultures, with them trying to be nice and make food for me...pretty sure I did offend people as well as annoy many others. Anyway...no OP, you are not alone. For sure I have trust issues eating other people's food. They say they know but I do truly doubt they are as strict as I would be. A few times I will still brave eating something...like some little mozzarella balls with vinegar...though, I did still look at the labels. Someone had to give me a persuasive speech and show me all ingredients (just salt and pepper) after making me chicken wings once. I do tell people, basically, NOT to make me stuff. But they still do. Another time a friend had worked really hard and was having a terrible time and offered me a burger patty when I arrived, assuring me it was gluten free. I knew I hadn't been there to watch whether she used the "bun spatula" on it or not...but I just didn't feel like giving her a fight about it since she was having a rough time and hosts like to feel they are feeding guests, blah blah. So I ate it. And got glutened. And wailed and gnashed my teeth haha. Lesson learned. I need to stick to my guns more. I just always feel like I'm being too "difficult" as it is. But...sigh. It is refreshing for me to read these empowered no BS responses though. You all remind me of where I'm coming from, and not that I'm just being some kind of high maintenance, rude, crazy person. You'd think after, what, nine years now, I wouldn't still be bothered by it...
  8. FDA approved gluten free but might have like .0001% of gluten in it, or something. I'm on the fence on whether to drink or not. Anyone tried/used it?
  9. ah I remember you too. I don't post on here as much either. Nice of you to give encouragement to the newbs. It's been 7.5 years for me now. Within that time, I've only been "glutened" three times....and each of those times reminds me exactly what all this extra work and frustration is worth. I air on the strict side, and for me, 7.5 years of having to deal with other people's reactions, lack of understanding, eye rolling, confusion, lack of cooperation, backtalk... from friends, family, coworkers, waiters...well, it has taken a toll on me but....it is still worth it in the end for your health. You just have to stand up for yourself, and your own health, even though people will judge you for it and not understand. Definitely, 100%, body-wise I am better. For me it was an overnight change the moment I eliminated gluten. From daily pain, full blown 'gluten attacks' every 3-6 weeks, or more...and increasing...occurring with the slightest triggers like getting up early, stress. I still don't know how I would have kept a full time job if I hadn't gone gluten free. So frm that...to just evaporating overnight. No more daily pain, random sickness attacks...it was really depressing me before to be at the mercy of the illness. So, now, I control it. That's what the diet does for me. Another plus is there are a LOT more options out there now...and awareness...than even when I started 7 years ago. A lot more products labeled as gluten free, more gluten free food even in non specialty stores...etc. So, that's a plus Not that I'm saying "oh it's so easy to be gluten free now"...just that, I've seen awareness build over the years and it gives me hope it will get better over time, too.
  10. Interesting topic! All these people telling her not to go ...clearly don't get it. Anyway...it's interesting because I've actually wondered this before. What if I were to get stuck somewhere where bread was the only option...prison, kidnapped...etc. I guess I'd have to eat it, but I've realized how much more miserable it would make the situation than someone without gluten intolerance.
  11. DownWithGluten

    French Baguettes

    Bonjour...I don't live in France but I've thought about it, so I've looked this up a little before. I would say...no, you can't eat the baguettes. If you want to be gluten free, for real...you can't eat any gluten...not even a little. Sad, I know, because the baguettes are so good. I was in Paris before I figured out gluten was my problem...and I'd always have a baguette for lunch! But, won't be able to if/when I go back. I'm like you in that I was diagnosed with IBS...but nothing was helping. As a last resort, I eliminated all gluten and magically the problems stopped. Anyway...this article might have some good resources for you. She says to look for magasins bio....which are like health food stores that would carry gluten free brands. Probably just schar and whatnot..tastes nothing like a true baguette....but hey, that's what we get. http://www.celiac.com/articles/21485/1/France-sans-Pain-How-to-Travel-Gluten-Free-in-France/Page1.html Also they have a French gluten intolerant website, which I'm sure has tons of resources... http://www.afdiag.fr/ Although it looks like right now the site is having some problems. But, when it's back in full force...should be helpful. Je souhaite que ça était utile.
  12. Oh and, just more on this...as far as restaurants. Probably the best and most consistent one I've found to work is Outback Steakhouse. I know, you don't eat meat! But I have a vegan sister and she can find things there. As well, P.F. Changs is good, they even bring their gluten free dishes out on a different kind of plate and the staff always seem to remember to warn you not to eat the regular sauces and offer to bring out gluten-free soy sauce. I've had success with Uno's as well. Depending on where you live, some areas have a lot more cute little non-chain places that offer gluten free items, more than others. (mine is one of the 'others' but I've travelled to places with better options haha). Chipotle has always worked for me, too, however some more sensitive people may advise against it. Do not eat the flour tortillas. I avoid the salad dressing and the hottest salsa as well. Always, you have to give them the song and dance about your diet and double check that they know what you mean and that they will avoid cross contamination. I get all whip-cracking on them, and usually have to witness with my own eyes that they write down 'gluten free' next to my order. I stress it to them probably at least five times. It's very annoying but better safe than sorry. You can usually size up how comfortable the waiter is by how they respond. For example, If they ask you "well you tell me what you can eat" it's not a good sign. I've seen many a face fall, a bead of sweat drip, a tremor of nervousness when I mention to them that I'm gluten free and will get sick if I consume it. lol. I will be stubborn and resort to "can you ask the chef? the chef should know.." b/c sometimes the waiters are just ignorant. I had one guy who was sarcastic and rude when I asked to double check about their broccoli dish, he was all "uum it's broccoli" (but of course, what about the seasoning?) and then he came back basically groveling and apologetic so I assume the chef put him in his place. Anyway...it is definitely a song and dance. For new and unfamiliar places (still, I try to stick to ones that I've found have gluten free options online)...it's ALWAYS recommended to call them ahead of time and go through the whole song and dance. Being honest, this is all a huge pain the butt. There will be heartbreak and frustration and anger navigating "eating out." Your friends and family are going ot have to get used to eating at the same 2-3 places a million times, or just eat out less...or on occasion you'll have to eat beforehand and just sit and drink some Coke while they eat. Awkward but I've done to at least still go out and socialize. I feel I've struck a balance. But I do so long for the days when I could just eat out on a whim, without having to plan it beforehand, stress about it all day...etc. there's an art to the gluten free restaurant dining experience. Let me know if you have any more questions. I feel I air on the more strident, "paranoid" side. Then again, there are people more strident than me who wouldn't recommend ever eating out. So...you'll find your level of comfort. again, in time!
  13. Hey, hope you're feeling less overwhelmed. I think we can all relate to that initial disappointment and despair. Even the rice cakes...haha, for the first few months all I ate were random rice chips and like chicken broth. But don't despair, it's not as bleak as it seems. I've been gluten free for six years now and can pretty much eat whatever I want...however, yes, the eating out thing will not be the same. I'm reduced to about 3 or 4 options and don't have the freedom to just eat out on the fly. Before I go on any trip, I still take about 3-4 hours researching restaurants in the area. Etc. But my main point is, even as a vegetarian, I can say with confidance that you'll be able to eat practically as much as you did before. Restricted to certain brands, will take a lot of Googling and callin companies...but once you find your "safe" go to brands and items, you'll be set. I don't feel at all deprived eating at home. (Again, yes the freedom to eat out or eat at work functions or parties etc...indeed not the same. But as far as cravings, eating what I want on a regular basis...no problem!) My friend I love pasta and bread, too. I used to just go to bakeries and eat bread for lunch, and pasta is one of my favorite things. they're beginning to make better tasting gluten free bread. And the brown rice gluten free pasta, to me, tastes the same as "real" pasta. I swear to you I don't miss "real" pasta in the slightest. The texture is more obnoxious and doesn't hold as well -- but the taste is perfect. I was afraid to try it the first time but was so pleasantly surprised. It's not like whole wheat pasta which does have a drastic taste difference. You can still have all your veggies. With some research, you can find salad dressings and dips that are gluten free. And regular brands, too. Like Kraft and Newmann's. Not everything has to be organic or "healthy" brands. Although sometimes those are more convinient b/c they take the time to label products as gluten free. But I'm sayin,' you can go grab a bag of Cheetos and pop in some M&Ms and be fine. All is not lost...it's just a matter of finding substitutes to the main things like pasta, cookies, bread...and a matter of doing the grunt work of calling brands and research brands online,... (pretty much, don't eat anything unless you have checked beforehand or unless it's labelled as gluten free. that's my rule). I don't know how much cooking you've done, but you will likely have to rely on preparing your own ingredients and less on pre-made things (like hamburger helper types). Anyway, once you have your safe brands, you're good to go. (Though good to check ingredients from time to time as products can change). Conveniently for you, as far as frozen meals and that sorta thing... gluten free and vegeterian often get lumped together so you should be able to find variety there too. Usually only healthy and organic brands do the 'frozen food's' though. (A note with the vegetarian thing __ one hindrance to look out for is 'vegetarian' meat. They almost always have wheat in them. So, those occasional bites of real chicken you mentioned might have to suffice instead.) And like someone else said, hard cider is a great non-strong "fun" beverage to have instead of beer. And more and more varities of gluten-free beer seem to be cropping up. Hope that helps. Don't feel you have to resign yourself to rice cakes and carrots forever. With research (and give yourself time ) you can still have flavor and fun and eat just as much as you used to.
  14. Okay! Wanted to close the loop for those who are curious and for future individuals who may Google "swiss miss gluten free" in hope of answers. I called them today and she confirmed that, yes, ALL varieties of Swiss Miss hot cocoa are gluten free. This includes the dark chocolate variety I was asking about, and any of the others. Mint, marshmallow, you name it. She said they are still in the process of getting all the boxes labelled as gluten free. So circa Jan. 2, 2013, Swiss Miss hot chocolate, all varities, is gluten free.
  15. Hi y'all good people. Been a while since I've posted on here. Okay, Swiss Miss. I've been seeing conflicting things online as to how it's labelled gluten free etc. In particular, I want to know if the DARK CHOCOLATE variety is gluten free. I had milk chocolate the other day, and was fine. Then in my greed for variety and flavor, I went to the store and bought the Dark Chocolate kind because it looked good. When I got home and Googled as a safegaurd, I saw reports saying that "all Swiss Miss is gluten free, AND is labelled as such." Well my lovely Dark Chocolate hot cocoa does NOT say gluten free anywhere on it. Sooo does that mean it's not gluten free? Are the milk chocolate ones really still labelled as Gluten Free or did that stop at some point within the last year? Or was that only in January that they did it and dropped it? Thus meaning that the dark is probably safe too? why whyyy the humanity. It does say "Allergens: milk" no wheat, but we all know barely and stuff could secretly be hidden. In my heart of hearts I think it's probably fine, and I thought all swiss miss was okay, but of course can't know for sure and the labelling thing is confusing me now. So if one of you fine people out there has drank the Dark Chocolate hot cocoa and been fine, please let me know! otherwise I'll have to bring it back, but I'm sick and that was my one adventure to the grocery store probably for the next few days lol.
  16. DownWithGluten

    How To Know If It's Really Gluten Free?!

    Oh my friend I'm the quintessential "whimpering chick." I've been on the gluten free diet since 2007 and have only gotten glutened twice, both in 2008. The price of this success is being the whimpering chick, the doubter, the annoying person who doesn't eat what people offer, who looks rude or possible hypochondriac or attention-seeker, that high maintenance person who has to call restaurants and venues themselves every time. I loathe being high maintenance but it's the price I've had to pay, and my intestines thank me. This includes at workplace functions, workplace outings...those are often the hardest. And then parties with friends, etc. It's especially difficult when they THINK they're doing it right and are at least considerate enough to think of me...but I still have to be the whimpering chick and not take them at face value. They usually endure 20 questions, indicate some doubt over an ingredient or reveal something they hadn't thought of that they forgot to check for gluten... enough for me to be afraid and not eat it anyway. And then everyone feels awkward and bad. So what's my point? I've fared very well physically...will be exactly Six Years Gluten Free come tomorrow (New Year's Day), and only two times, within the first two years, have I gotten sick from accidental glutening. But to do so, yes, I have HAD to be the whimpering chick. The choice is yours. Sadly, those are our options. However, there are more gluten free options nowadays even from when I started! getting off my soapbox...As for the OP and fast food...the only thing I ever get from Wendy's is the Frosty, as others have mentioned. Fast food frightens me. I believe I got a baked potato at Arby's another time, with no butter or anything, but that's it.
  17. Okay I called. Since it's new years they didn't have any live people. But the automated robot gave me a bunch of rigamarole that basically said if there is barley, rye or wheat in any ingredient, then they will list that in parentheses next to it. I don't see any of that on mine so I'm thinking it is probably safe. The said other stuff about distilling and possible exposure to wheat, so maybe that's why they don't label them as 'gluten free'...but basically I don't think there are any gluten ingredients in it. hmm
  18. Thanks. I think I will call them just to be sure. There isn't barley or wheat or rye listed but it does have 'natural flavors' kinda stuff.
  19. I've been fairly frustrated the past few days. Trying to eat healthier...less calories, less salt, blah blah. But of course, with that comes less flavor. So I'm trying to find stuff that is quick to make (to eat while at work for lunch), healthy, flavorful. In my quest I hit many roadblocks thanks to stupid gluten-ness. I researched the Net as much as I could on each but alas. First, McCormick spices. Their single spices are gluten-free, I know. But the mixed ones ares ones I'm after, particularly for flavoring so I won't be tempted to douse everything with salt! The Perfect Pinch flavors looked good, like Lemon Pepper, Garlic & Herb etc. However, of course, is it gluten free?? The site's FAQs say that the mixed ones MIGHT have gluten in it. And they say "IF the source of gluten is WHEAT, we will list it." Well to me that is cryptic and vague. Do they mean, IF and only IF it is WHEAt, they'll list it. But if it's from something else (barley, rye)...what, they won't list it?? The one I picked up does not say WHEAT but I'm scared to try it. HAs anyone used any of the Perfect Pinches and not gotten sick? Second, Green Giant. I was all set to get this Antioxidant vegetable blend with garlic sauce. I did not see anything gluten-y in it. Yet, when I went to their site (General Mills) this was NOT under the gluten free section. They also say, if gluten-free, it will say gluten-free. Well, one that they had listed as gluten-free does NOT say gluten-free on it...so I'm confused b/c it is inconsistent. So basically what I'm asking here...has anyone had the Antioxidant frozen thing you steam in the microwave and not gotten sick? yeesh.
  20. DownWithGluten

    Bad Experience At Greene Turtle

    Right. I ate bits of the bleu cheese and did not get sick, therefore it was off of my complaint list. It was the fryer thing mostly, and also that's what the COO was concerned about when we talked. I didn't bring up the cheese again lol. And I didn't really make an active issue of it... they sought me out after I posted and wanted to straighten things out because they were upset to see what I experienced! Which is good, I think.
  21. I ate at Greene Turtle earlier tonight and wanted to share my experience for those considering eathing there. I went to one in Maryland. Maybe they are not all the same, but, mine was not a good experience. If you want to know the specific location in MD, please PM me. Anyway so, as of now the jury is still out on whether I got 'glutened' or not. Since going gluten free, I've noticed it's about a 12 hour turnaround time before I get sick. I won't know till 8:00 a.m. ish. So it's a sports bar. They have a menu which includes yummy things like cheesy fries, hot wings, etc -- things you don't usually see on gluten free menus. Which made it intriuging...yet I was skeptical. I called ahead of time, and the hostess talked to the chef and she said he reassured me that they are "very careful" when someone has a gluten intolerance and that they have a lot of gluten intolerant customers who "are very satisfied." I felt a little encouraged. I got there, and they remembered me calling, which was a good sign. Also my server was VERY nice. The problem, in a nutshell, is that they fry EVERything together in one bin, including batter/flour -- which of course rules out the cheesy pub fries and even the chicken wings. Yet, THESE THINGS ARE ON THE GLUTEN FREE MENU. A less savvy gluten free diner might not have thought to ask, and would have been lambs to the slaughter. It went like this...I asked the waitress if the fries were cooked in a dedicated fryer, because in most places, they aren't. She said "Well, they are on the gluten free menu which means they are gluten free, but let me double check about the fryer." Thankfully she was very accomdating b/c she has a friend who is gluten intolerant. She comes back and said she has bad news. They are indeed SUPPOSED to have a dedicted fryer for the fries...however, she said, in a "bind" or when things "get really busy," the cooks will just toss everything and anything into that same fryer, including flour/batter. So, scratch the fries. > I actually felt momentarily depressed knowing that, in theory, I SHOULD have been able to eat the cheesy fries (which I had been looking forward to all day!), if only the staff took the gluten thing a little more seriously and kept the fryer dedicated like it was supposed to be...instead of cutting corners to save time. Then, my friend and I decided to split chicken wings instead. I noticed on her menu (the non gluten-free one) that they looked fried. I got a little worried again, but hoped, since it was on the gluten free menu, that they were safe. So I ask the waitress again. She tells me she'll double check. Aaand she comes back with more bad news. Apparently the chicken wings themselves are gluten free (like the fries)...however, they too get tossed in that communal frier which is also shared with batter and other things. Like the fries. So now I'm extra disappointed, and also bad b/c my friend was looking forward to chicken wings that now she couldn't eat on her own (because we were going to split). I then tentatively asked about the chips and salsa, also on the gluten-free menu. She went back to check, and, alas, the stupid chips were fried in that same stupid shared fryer. So, scratch THEM as well. By now I had no faith in their knowledge of what was gluten-free. I didn't want to put my friend out so figured I'd still give SOMEthing there a try. I got roasted chicken so we'll see if I get sick. (I asked for it without gravy b/c, again, at this point I didn't trust that something on the gluten-free menu was actually gluten-free.) We got the appetizer of celery and buffalo dip. Which, unbeknownst to me, had blue cheese...which sometimes has gluten. I ate some of it, tried to pick around the blue cheese...but that's why I'm sitting in fear right now that come 8a.m. I'll be writhing in pain. Oh -- and they added the chips to the dip plate after I had just had the converstation about the chips not being safe. > Again the waitress was super nice and felt really bad. My friend overheard her talking to the chef, saying something like "I can't believe we're mixing everything in the fryer, yet are claiming that these items are gluten free on the menu." Those menu items are probably gluten free in of themselves, but the staff at this particular location apparently didn't give a crap about mixing them in the same fryer as flour, wheat, and gluten. Oh...and then my friend got sick right after we ate. Coincidence? She's not gluten intolerant (that she knows of)...but still. Not recommended.
  22. DownWithGluten

    Bad Experience At Greene Turtle

    Okay so, just as an update. Via this thread, I was contacted by Greene Turtle, and ended up speaking to the COO. He was very concerned to hear about my bad experience and said it will be addressed. He also said thee Greene Turtle near me is a franchise so it is not as closely managed as their own restaurants. But he said he's been in touch with them and thinks it's a training issue. So, although my dining experience was bad, they do care and take the gluten thing seriously as a chain. He said they are indeed supposed to have dedicated fryers, utensils, etc...
  23. DownWithGluten

    Bad Experience At Greene Turtle

    Kareng -- I kinda think I should write a letter. Mostly to say "Stop saying you have a gluten-free menu if you're going to pull these stunts! Keep the fryer dedicated or get rid of it." And to the next post...I know, sports bars sound dangerous. But the point it, it DID have a gluten free menu. I've done the only-order-soda thing at several different places. But I specifically went there becaues they had it. For instance, a pasta/pizza place seems like the last place a gluten-free person would go...but something like mama Lucia's has gluten free accomodation and crusts and whatnot, so I went. Grr. However I do agree, I definitely dodged a bullet. My poor friend got sick though.
  24. DownWithGluten

    Bad Experience At Greene Turtle

    Menic, exactly!! I mean, Outback serves fries, too, which are inherently gluten free. But guess what. It's NOT on the gluten free menu because it's NOT gluten free, because it is cooked in a mixed fryer. What got me is that they were SUPPOSED to have the fryer dedicated, but get lazy and then contaminate it. Yet, nothing is changed on the menu. And they would have served me those fries/wings/chips if I had NOT asked, I'm sure of it. And it's even worse that I called them ahead, and they claimed to be 'very careful' about everything. Takala, I wonder if I should call the health department? It is deceitful and dangerous, frankly. I agree that they should just do away with having a gluten free menu, if this is the kind of crap they are going to pull. oh, by the way, I didn't get sick thank God. But that's after I ruled out 50% of the menu due to the stupid fryer issue.
  25. The "facts" were second-hand given to me by someone who called about this...the person on the phone DID say "FDA approved as gluten free" ... and I said ".0001 or something" b/c I wasn't exactly sure what it was nor was the person relaying the info to me. The main gist was that the customer service rep said it's FDA approved level of gluten free. So...I was just wondering if people here have tried it or not and what happened if they did.