GFreeIowaMom
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Aretaeus Cappadocia reacted to a post in a topic:
Celiac Crisis - Experience?
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No, that is great advice, thank you! I don't think I have ever heard of an immunology specialist but happy to look into that.
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I don't know if I was glutened. I cooked at home all day on Sunday but I do cook in a shared space, and I made all typically safe foods. It came on super suddenly around 10:30 pm after consuming part of a black cherry fresca and we were leaving for the ER by 2:30 am. While the pain was resolved by Morphine and not eating, I only consumed plain salted mashed...
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Aretaeus Cappadocia reacted to a post in a topic:
Celiac Crisis - Experience?
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I have heard of ncgs, but I dont know anything about a potential flare with that. I did cut out dairy for awhile - around 3 months and I didn't feel better or worse. I also spent some time being completely grain free, again no better or worse. Truly I'm looking for something acute, or slow moving with an acute onset as I had zero issues for nearly 5 years...
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knitty kitty reacted to a post in a topic:
Celiac Crisis - Experience?
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I should say that I live my life like I have Celiac disease. I never cheat, I manage cross contact. I almost never eat out but if I do it's all safe restaurants that I have vetted. I eat a low lactose diet, but I do eat dairy. I do live in a household with gluten but I do the majority of the cooking and only cook and bake gluten free.
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I am considering getting a genetic test done, but haven't decided where to get it yet. I'm happy for suggestions if you have any. I just completed a full celiac panel and all tests were negative. When I say that there is no confirmation, there is literally none. Recent tests: Deamidated Gliadin Abs, IgA = 5 (Negative Range: 0-19) Deamidated...
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Hello! I have never posted on here. I want to preface this post by saying a have no official diagnosis of Celiac disease, but I have been gluten free for the past 5 years. I was too ill to wait to see a gastro, and out of desperation started the low fodmap diet. Surprise, the only things I couldn't eat were gluten and oats but I wasnt tested until I had essentially...
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I think right off the bat, before anyone offers advice it would be helpful to know what exactly you have been eating since going gluten free just so you don't get a string of unhelpful diet suggestions. When I first got sick, I did a round of dicyclomine because my doctor thought it was just IBS. I think that it was more helpful than I gave it credit for...