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carecare

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Everything posted by carecare

  1. carecare
    Edited to add....I shouldn't have said Anemic but I can't edit the post topic . I haven't been told I am Anemic...just have low iron. Hi, It's been so long since I've visited here. Life's been busy. I have been gluten free since last December. I had my biopsy and bloodtest and both negative for celiac. I'm not concerned about that because I do...
  2. carecare
    The dietitian sent me a message after reading up on EE that she doesn't think that my daughter will be safe eating in the cafeteria at the present time. I suspected it but it's hard. Only thing available as far as apartments on campus is a room available in a 3 or 4 bedroom apartment with upper classmen. Even that I would think would be difficult because...
  3. carecare
    Thanks. Yep....I'm not sure she'll be safe eating in the cafeteria. She just won't have that many options. I hope the dietitian can work with her this week and come up with a plan. Otherwise...we'll have to push for some changes. I stopped at the grocery store with her before dropping her off. Anything gluten free either had soy or sunflower oil...I...
  4. carecare
    Thanks for the replies. I did see that there is a proven link to celiac disease. One thing...being positive to wheat, barley and rye on the allergy testing at least solidifies the fact she needs to stay away from those. I hadn't thought about a 504...I will have to look into that. I had a great talk with the college dietitian today. They are working...
  5. carecare
    She had her biopsy last month and it was negative. However she was diagnosed with eosiniphilic esophagitus. I went ahead and had her get allergy testing yesterday and she was positive to wheat, barley and rye...along with peanuts, hazelnuts, cashews, corn, soy, sunflower and a few others. So since she knows "gluten" has bothered her she will be staying...
  6. carecare
    I hope she remains gluten free. How old is she? My husband gave up gluten just over 2 yrs ago. It took 5-6 months for the diarrhea to disappear but he was feeling so much better almost immediately despite the D while his intestines healed. He too had episodes of passing out and worried it would happen while out of the house. The passing out from intestine...
  7. carecare
    So sorry you are dealing with crappy doctors. I am sure I am now labeled the WACKADOO in our peds' office as well as the whole clinic in our city as I was refused a second opinion within the clinic even though it would have been another office across town. The GI dr within the same clinic denied us as well saying he wouldn't take her because she's 17...
  8. carecare
    I guess I knew we'd still do the gluten free house no matter what. I know each of us feels better gluten free so we'll just move on. My 12 yr old's esophagus was slightly irritated...but I don't think the nurse mentioned the dr wanting to do anything for that. My 10 yr old looked clear but because he has so many stomach complaints the dr prescribed an...
  9. carecare
    Was he just having a routine blood test then? Interesting they did an IGA for that. Is he being seen for other nonGI issues? My son who tested positive on blood work was not having any GI issues. His complaint was muscle pain..which resolved on a gluten free diet and came back stronger when reintroducing gluten for the biopsy. His pediatrician didn't...
  10. carecare
    I am very interested to know what symptoms he was having that the dr's chose to do a celiac panel. Most doctors don't just test for celiac unless there are symptoms or if another family member has it. Kudos to your doctor for doing the test and possibly getting your son healthy before too much damage is done. Best of luck next week with the GI. ...
  11. carecare
    Do you know if the gliadin IgG and IgA were the deamidated gliadin test? If it were then that's more specific and indicative of celiac. My son was high positive on the deamidated gliadin IgG and everything else was negative. So he was considered "weak positive." He had his endoscopy on friday and we are still awaiting the results. From everything I've...
  12. carecare
    Ravenwood, I considered that because with her dad the first thing to improve going gluten free was his severe indigestion. The only challenge she faces is eating in her college cafeteria. If her biopsy does not confirm celiac the college won't have too provide to much in the way of helping her with her gluten free diet. It'll make me nervous sending...
  13. carecare
    That's what it appears...by doing some reading throughout the last couple of years I have seen a lot of people talk about it on the forum. Must be. Anxious for the tests to all come back. Grrr...Nexium was not covered by our insurance. Have to wait for the pharmacy to call the dr tomorrow and see if there is an equivalent replacement.
  14. carecare
    She is 19 but the celiac specialist pediatric gi dr my boys see said he would do her endoscopy as well. So it was done this afternoon. We have to wait a week for the results of the biopsies. However, he saw "extensive irritation to her esophagus" and she has a hiatal hernia. He said the esophagus irritation is often seen in someone with food allergies...
  15. carecare
    Thanks. Good to know. No fever or anything else so I think I'll just keep an eye on it. Sounds like you had a similar experience. Yes...he said it's a different kind of pain...never had it before. Merry Christmas to you too!
  16. carecare
    Is this normal? He says it's pain he's never had before. Not that it's severe but it's a different pain. He said it kind of comes and goes...but like comes...gets bad for a second and then slowly fades away. Should I be concerned about something related to the endoscopy he had yesterday morning?
  17. carecare
    My boys ages 10 and 12 got their endoscopies this morning and handled everything really well. The drs and nursing staff were absolutely wonderful. Only a couple minor things like they couldn't get the IV started in my 12 yr old son's hand so they went to the other hand. Nice battle bruise to show for it. Then after the procedure my 10 yr old was in recovery...
  18. carecare
    My biopsy came back clear too. I'm not bummed though...I'm still going to live gluten free because I know it makes me feel best. Good luck to you!
  19. carecare
    I had mine on Monday and have to wait until the 21st for my results. Doctor said everything looked clear for me too. Regardless I am now gluten free and can tell already that I feel better. It will be nice not to have cramps and D so often! Hoping my fatigue lessens as the weeks go on as well. Good luck!
  20. carecare
    So...just talked to the GI doctor this morning before my scope and asked him about the low ferritin level. He was not concerned...and just said well, you aren't anemic because your iron levels are good. Man...sometimes doctors just don't know stuff. He said they'll just watch it. From everything I've read having a number that low can cause so many...
  21. carecare
    yep...easy procedure. I just had mine this morning...and had the colonoscopy at the same time. I have no ill effects whatso ever from the procedure. They said I might have a little sore throat for a day or two but I don't even have that. It's like I had nothing done. I did come home and took a 4 hour nap but now I'm totally feeling fine.
  22. carecare
    A little background. Husband has been gluten free for 2 yrs after 17+ yrs of digestive issues...so he's undiagnosed...just took the matter into his own hands finally and went gluten free with success. Me and 3 of my kids are getting tested for celiac (bloodwork + endoscopies) as we all show symptoms and when we were gluten free we all felt better and symptomless...
  23. carecare
    I'm happy to hear this. I hate my cracked dry heals...and have not been able to sleep without socks on for such a long time because I can't stand the feeling of them brushing up against my sheets. Crossing my fingers that my cracked heals improve once I'm through testing and am gluten free after Monday!
  24. carecare
    Yeah, I believe all my kids are intolerant or celiac. Their dad was having digestive issues pretty bad for 17 yrs or so. Finally went gluten free 2 yrs ago and his issues cleared right up. My niece has celiac. Lots of other autoimmune disorders in my family. My kids have always been on the little side too. My 17 yr old was always 10% or below the...
  25. carecare
    Your daughter sounds a lot like mine minus the siezures. She was always getting "sick" and the school starting saying "maybe it's nerves." When I knew it wasn't. She had her appendix out at 11 and that's what I'm curious about. What did the scan show about your dr's appendix? My daughter had a dull ache on her side for a week...kept being sent home from...
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