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Mother of Jibril

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About Mother of Jibril

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    Gluten intolerance<br />Casein intolerance<br />Hypothyroidism<br />Pregnancy loss
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About Me

I'm a tenure-track professor in textiles and clothing. I also have two living children: a four-year-old daughter and a one-year-old son. Our food intolerance journey started when my son developed colic. It turns out he's severely intolerant to casein and corn. In August 2008, I was diagnosed with autoimmune hypothyroidism, halo nevi, and rosacea. On my own, I figured out that I'm intolerant to gluten and corn.

My symptoms of autoimmune disorders...

Idiopathic anaphylaxis (attacks with no identifiable cause), hair loss, depression, anxiety, pica (I enjoyed licking metal as a child), low blood pressure, angular chelitis, anemia, elevated liver enzymes, rosacea, depigmented spots on my hands (halo nevi), constipation, bloating (looked like I was pregnant for years), gas, heavy (irregular) periods, abdominal cramps, pain in my knees and shoulders, chronically dry eyes, pregnancy loss at 17 weeks, extremely dry skin, chronic dandruff, fatigue, muscle twitches, itchy rashes, brittle fingernails with vertical ridges, frequent hiccups, episodes of unexplained weight loss and gain, terrible acne as a teenager, hair is turning gray at 33 years old...

A lot of these have improved significantly on the GFCFMF diet! I still have a ways to go, but I haven't felt this good since I was a teenager.

  1. Maybe heat-induced anaphylaxis? Flushing and feeling like you're going to pass out is a bad sign... it means your cardio-vascular system is involved. Here's a note on symptoms of anaphylaxis from the Mayo Clinic: http://www.mayoclinic.com/health/anaphylax...ECTION=symptoms You should seriously get that checked out... and either avoid exercise when it's hot out or carry an epipen. Anaphylaxis can be life-threatening. ps - There does NOT have to be an external allergen (like a food allergy)... in some people, heat alone is enough to cause a reaction.
  2. I've been using Carlson "Solar D Gems"... lemon-flavored cod liver oil in gelatin capsules (they actually taste good). Free of gluten, heavy metals, and PCBs. Here are the ingredients: Cod liver oil, natural lemon flavor, beef gelatin, glycerin, sorbitol, water.
  3. I've been pregnant three times and lost one child (Jibril) at 17 weeks. I never had pre-eclampsia, but I'm positive that my loss was related to undiagnosed hypothyroidism and celiac disease. The tricky thing is that a lot of OB/GYNs have NO CLUE about autoimmune disorders (which is ironic, since pregnancy can be one of the triggers). They think you can run a bunch of tests one time and that gives you all the answers... which is just not true. Disorders like lupus and celiac disease can be very complicated and take years to diagnose! One book I can recommend is the "The Autoimmune Conn
  4. How old are you? Could you be starting menopause? I've been reading about this lately... most women go through menopause in their early 50s, but you can experience symptoms for as long as ten years before that happens! Also... premature ovarian failure (aka premature menopause) tends to cluster with celiac disease and hypothyroidism. In extreme cases you can go through menopause when you're still a teenager Here's one of the more helpful websites I've found: http://www.earlymenopause.com/
  5. Hi mother of Jibril, I am logged on as DNP student currently working of my dissertation on celiac disease. Gathering data to create an awareness of the effects of celiac disease on families. Your posting raises some interesting areas to pursure. I would like to include it as part of the qualitative research with your permission. If so, please email me directly at doeykelly@aol.com. Thanks HK

  6. They said they wouldn't be able to tell exactly what kind of infection unless they took the whole lymph node out for dissection... which is a possibility if the swelling doesn't go down soon. I'm definitely being cautious about candida. I'm taking an enteric-coated probiotic, eating yogurt every morning, and keeping sugars to a minimum. Your suggestions have been very helpful!
  7. Thank you for thinking of me! Thanks to Patti too I agree with you about the general link to cancer. My dad's family has been plagued with it. Two siblings (out of eight) have died from breast cancer, one when she was only 29. Her two kids were just a little bit older than mine are right now. I've been thinking about her a lot. I also think about her daughter, who was a year younger than me and committed suicide in her 20s. Depression and alcoholism run in the family too... more signs of gluten intolerance, I imagine. Last week it occured to me that I could get past records
  8. A little update... On Thursday I had a biopsy of that lymph node. It's not lymphoma! :D It's not any kind of malignancy at all. They did see some macrophages... so it looks like some kind of infection. Hopefully it will go away on the broad-spectrum antibiotic I'm taking. Not thrilled about antibiotics... but I'm taking probiotics in between doses and going VERY easy on the sugars/fruits (plus no yeasty/moldy foods). What a HUGE relief.
  9. Thanks for getting back to me! My son is ten months old... I suspect he'll be breastfeeding for at least another year. Last month I had a biopsy for an itchy (gluten-enhanced) rash that I thought was DH, but the results came back as "acute dermatitis"... I found a definition that said it's "a rash caused by inflammation somewhere else in the body, often in the presence of a fungal infection." I also have yeast overgrowth on my scalp... my dermatologist gave me a prescription shampoo for it. I've been SUPER cautious about gluten and corn for the last month, which has helped. Now t
  10. OK... so your "evidence" is a TIME magazine article about a scientific study that has not yet been peer-reviewed or published. Only seven people were willing to stick with the sugar-free diet and two of them still died. Have the other five people gone into remission? It's probably too early to tell. I'm no statistician, but I have to tell you that this study has some flaws... 1. The sample size is WAY too small to get any valuable data. Seven people is meaningless (when it comes to science... nothing against them personally) 2. It's not a random sample... you can't force people to s
  11. I know this is your particular drumbeat... http://junkfoodscience.blogspot.com/2008/0...use-cancer.html I think yolo's suggestions are generally very healthy and consider the well-being of the whole person... physically, mentally, and spiritually. Stress causes autoimmune disorders to flare... freaking out could really set me back
  12. This is good advice I'm already doing some of the things you mentioned... vitamin D (4000iu per day), fish oil, digestive enzymes (plus Betaine HCl)... I'm adding more garlic and dark green vegetables to my diet and I've cut way, WAY back on all processed foods and sugars. I love the sauna... I wish I had time to go more often. What I'm wondering about is the herbs... are they safe to take while breastfeeding? I had a bad reaction to caprylic acid (chills, headache, swollen lymph nodes, achy feeling all over). After reading about how candida absorbs mercury, I'm a little worrie
  13. There is a connection between celiac disease and lymphoma: https://www.celiac.com/articles/1007/1/Celi...homa/Page1.html Sjogren's Syndrome (an autoimmune disorder that clusters with celiac) also increases your risk of lymphoma. I've been reading about this lately because I've had a painless, swollen lymph node in my neck for more than two months... I have an appointment with an ENT on Tuesday. I'm hopeful that it's just an infection. I have good reasons to think that it is just an infection, but I'm also a bit worried because my platelets have been dropping lately. There is
  14. Maybe a stone from your gallbladder, liver, or kidneys?
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