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Everything posted by K-Dawg

  1. Hi there: you're not a wuss. I also stay home more than I'd like when I get glutened. It's a terrible feeling and best to just stay in, lie down, drink water, take digestive aids and ride it out alone. It's miserable and sad and it hurts me and I'm sure it hurts you. Nobody likes to feel bad and miss out on living. And, since we are kinda complaining, I'll add that it's impossible for my friends and family to understand. Recently I was with someone and felt pretty good. We went out to eat and had a nice meal. Within half an hour I was in pain, exhausted and couldn't do anything other than lie down on the hotel bed (we were travelling). It was a real bummer because my friend wanted to go to the hotel bar and have a good time. I'd been all for it and suddenly, BAM: OUT OF COMMISSION. I know the friend didn't really get it. So you are not alone. And yes, I do sometimes miss work. I try not to as my work is not at all understanding. Usually when I refuse to eat something at a work event at random regular restaurant, I get ridiculed or asked "why aren't you eating the food at this restaurant? How could chicken possibly contain gluten?" and the question is always so accusatory. it pisses me the feck off, in fact. Anyway, when I respond by talking about cross-contam, I get the eye -- roll. lol. So I think it's just not worth explaining further. Though I gotta tell ya, it's getting really fecking annoying that everytime I say "NO" to eating X, I get push back. I think that is my biggest struggle....I graciously refuse food and the people i'm with can't graciously accept my refusals.
  2. As far as I know, the poster who noted the nuance to ohip coverage is correct. My liver specialist shared the same info with me. I did not pay for my blood panel in ontario.
  3. I have been glutened at tea shops. I think, perhaps, it is due to cross contamination as earl grey is safe. Most of the shops I have been in serve scones and other products and it's pretty easy in a non-dedicated shop to have an issue with cross-contamination. I've seen scoops used in multiple mediums. BUT I don't think you should be scared of tea...it is gluten free and the bags are safe. You had an unfortunate incident. Perhaps avoid that tea shop or make your own KDawg
  4. http://www.thestar.com/living/food/article/943142--gluten-free-beer-a-first-in-ontario Link to an article on gluten free beer being sold in Ontario Canada.
  5. Im sorry you are having a hard time of it. It would be tough at 14 yrs old. That makes you...grade 9? Yes, that's a hard age. When I was 14, I just loved hanging out with friends and I felt free. I wouldnt' have wanted to be tied in to a particular diet. That said, there are so many great options these days and given that you mentioned your church group, I must say that it seems that any decent church would make it their mission to ensure you are included by having gluten free donuts available. Speak to the youth pastor. I"m sad that the church hasn't taken it upon themselves to rectify this, but I bet its' just an oversight. The church likely has a kitchen and a freezer -- if the church doesn't do it, you just go ahead (well, get your parents to go ahead) and order some donuts on-line and stick them in the freezer. KDAWG
  6. I"m sorry for your loss, MamaW. You are right, she is now free of illness, pain and sadness and has moved to a beautiful place of peace and joy. Nevertheless, it is still painful for those of us still here as we miss the physical presence of our loved ones. My thoughts and prayers are with you. KDawg
  7. K-Dawg

    Destination Wedding/elopement

    Hey -- CONGRATULATIONS -- I have been to vegas several times. I also travel to various places to visit family, etc. Prior to arriving at the hotel (and sometimes prior to booking) I CALL someone in guest services and speak to him/her directly about my food needs and ask if the hotel can accomodate. If so, book and you can eat in their hotel restuarants or get room service. Farimont has ALWAYS created my OWN menu. It is emailed to me in advance...It is left in my room AND it is provided to me when I attend at the restaurant. They have been great. Now I know you said that you didn't want to have to pack food...but I have stayed at several Fairmont hotels and they have always been very willing to pack me (in a thermal case they provide) a delicious gluten-free meal to go. And the chef usually comes out to meet me and present me with the picnic lunch. I also have severe allergies, so it is great that they are so gracious and accomodating. So when I travel and want to go on a full day outing (ex - in vegas, a heli ride to the grand canyon...which lasted 5 hours in total) I can go and know I"ll be good for food even though the refreshments provided by the heli service are not safe (and would I really want to risk it...their key is the heli ride, not accomodating celiacs). So I recommend that you can stay at any 4 or 5 star hotel/resort...just make sure you speak with guest services PRIOR to booking to determine how accomodating they will be. In vegas, I stayed at the Trump Hotel because it had the best value with a full kitchen. My strategy -- cook a bunch of chicken breasts (maybe 4) the day I arrive and buy salad fixings. Then, in a pinch, I throw the salad with chicken in a thermal bag (I have a very small one that fits in my purse) and I'm good. I was even allowed to eat my own food in several restaurants in vegas. In Vegas, there is a whole foods for convenient gluten-free grocery shopping. And Trump accomodated my allergies and gluten-free needs whenever I ordered. Wyn can accomodate also. PF Changs has a gluten-free menu. So does outback steakhouse. Both are located on the strip.
  8. K-Dawg

    Best Iron Supps?

    I also have a very sensitive stomach. I now use Proferrin. Google it. I find it to be great. It is heme iron polypeptide and you can take it with food, etc. So great. And high sbsorbancy. Good luck KP
  9. K-Dawg

    When You Travel

    PS -- sometimes it's easy (e.g. New York city -- so many gluten-free or gluten-free Friendly restaurants...no need to spend big bucks on room with kitchen...just got a reg hotel room and paid the extra $ for a mini fridge where I kept snacks (like camp food) so taht I could hike around all day and not worry
  10. K-Dawg

    When You Travel

    Hey there: 1) Pre-plan -- I look up a whole foods as I know I can get gluten-free food and snacks. I have vacationed several times and the pre-planning saves me. I travel with a binder with the addresses of the Whole Foods (from state to state) and gluten-free restaurants (and locations of fast food places I can eat at for the road trip...Wendy's or Outback, etc) 2) Snacks - I bring my own snacks. Always. For flight, it's cheese, crackers, trail mix, a pizza (that I cook at home..I like cold pizza mid-flight). 3) I always book a resort with a full kitchen -- I clean the pans (scour) them OR I buy my own. Note of caution - be careful with convection ovens. If I can't get a full kitchen, just a kitchenette, I'll buy a hot plate from a hardware store, usually with 2 burners and a really cheap toaster oven. YOu can cook ANYTHING in a toaster oven!! I just leave them at the hotel. 4) I sometimes pack (in my suitcase) my fav corn pasta! MMMMMMMMM 5) Toaster bags (in case I can't find a toaster oven..yes, it has happened) Good luck and have fun KDawg
  11. Oh thank you so much!!! I just google mapped this and you are right -- it is en-route. I appreciate it. KDawg
  12. Hi All: I'm hoping to get some help from some Miami and/or Islamorada gluten-free residents because I"m heading your way this December. I am a Canadian (from Toronto) and I"m going to the Florida Keys this December for a vacation (sighs in relief at the prospect of being without her blackberry for an entire week). I am landing in Miami and will drive to the island resort (where i have a full kitchen). I have discovered a Whole Foods in Coral Gables, which I"ll basically drive by on my way to Islamorada (so it's the perfect place to stop and stock up on some gluten-free grocery goodies). I also found an Outback Steakhouse in Islamorada. Do any of the locals have some insight or suggestions for me? I hate fish (lol) Thanks KDawg
  13. I agree with all the other posters (above) who have suggested that you bring your own food. I think this is the smartest choice. You could prepare your own turkey (or get some from a gluten free restaurant or caterer) and carve it up to take with you. If you have a cooler, you're set. I have a cooler that plugs in and I have a car with an outlet...so I'm able to take the cooler from house, to car, to destination and keep my food cold (I got mine at a hardware store). In your shoes I would prepare my own thanksgiving dinner, buy some great gluten-free rolls from a local bakery and take my own meal (and I usually make MORE than I need so that there is an abundance of food for me and it feels celebratory) Good luck Kdawg
  14. I have also had that sort of conversation....I remember my dad getting into it with me and saying something like "the label says MAY contain gluten, not that the product DOES contain gluten" and he was suggesting that I should give it a go! lol. I finally said, "Dad, I'll pass. I'm happy with my lettuce wraps right now" In the end I appreciate that he just doesn't get it. I mean, there is some sort of huge block for him. He is a smart guy, but this 'gluten free thing' just doesn't jive with him for whatever reason. No big deal. I simply REFUSE to engage in any conversation with him on it. If I am at his house, I bring my own food, cutlery, dishware, microwavable container, etc and if he asks "would you like this or that...do you think it contains gluten" i don't even bother trying to educate him. I just say "no thanks, Dad. I'm good" At the end of the day, he is not going to ever appreciate the nature of celiac disease and that is okay. I know he loves me and now that I've given up trying to educate him, there's no more of those idiotic stress-filled conversations. phew. KDawg
  15. K-Dawg

    Celiac Vaccine?

    Last para. of the article reads as follows: "The Australian team has begun an early-stage clinical trial using these peptides in a vaccine that aims to desensitize celiac patients and make them tolerant of the compounds. The group expects to report preliminary safety results later this year." Glad you posted this -- very interesting.
  16. K-Dawg

    Packed Lunches

    hey there: I was a vegan and going gluten free as a vegan is VERY difficult, particularly if you have other food intollerances. I'm not clear on why you would completely take out the possibility of sandwhiches. As a student, a sandwich is a pretty easy 'go to' food. Find a bakery that makes good fresh gluten free bread and take sandwiches to school each day! There are gluten free deli meats. Can you have cheese? If so, pack cheese or make cheese sandwiches. I appreciate that gluten-free bread can be expensive, but I think it is worth it (in your situation), particularly as you need portable food. Snacks = fruits (bananas are one of my favourites) and veggies. When I was a student, I used to love packing baby carrots and sugar snap peas. I have a peanut allergy, but you may be able to have nuts, etc. Pack that. Trail mix (there are good gluten-free ones OR to save money, make your own). How about gluten-free yogurt? I am sure you have the capacity to pack some things that need to stay cool (I used to pack yogurt in my lunches, using a lunch bag designed for the purposes of keeping food cold). How about left overs? If you have a big stir fry, why not pack the leftovers? Do you like corn pasta? I find it works well for things like beef strognaff, etc. Sure, you'll eat it cold. So..still tastes good. You can put it on a good corn version of the rice cake (I hate rice cakes, but the ones made from corn are really good). Let's call it a corn-cake. On that note, take corn-cake. Buy some cream cheese (assuming there is a food court that sells these things) and put some corned beef (deli meat) on it. Great combo. Very yummy. If you have the capacity to keep things cool, pack tuna or salmon. mmmmmm. You can use lettuce as a bread substitute. I also find that you can buy gluten free hard shell tacos...pack for lunch along with left over stir fry. At lunch, mix crushed up taco shells with the stir fry. Pack salads. KDAwg PS - almost forgot: Cook up a gluten-free pizza and take that. Kinda expensive and not as healthy, but it works. quote name='Hamster101' date='24 October 2010 - 02:22 PM' timestamp='1287955371' post='648742'] Hi there. I haven't known about being coeliac for very long and as such am still adjusting to the lifestyle. My first move was to replace all my old non-edible stuff with gluten free versions - something I'm now weaning myself off of - but I really need some advice for when I'm away from home. I was brought up on the ease of the sandwich as a packed lunch staple, but obviously now I am finding it much harder to do that when I'm trying to cut my replacement-food intake. I go into University from 7.30am 'til 5pm (7.30 being when I have to be on a bus to the station) and as such have no access to a kitchen, a fridge or a microwave for the whole day I am away from home. What kind of food can I pack that isn't too much of a hassle to prepare? I'm stuck for ideas and could do with some advice. On that note, I am struggling to find things that arent direct replacements of bad foods (pastas, breads and other wheat based things) to eat. Currently my diet revolves around peas, sweetcorn and bags/ tins of chilli con carne, and rice of various flavours. I occasionally have fresh meat, as frozen all seems to be packed with wheat, but that is expensive and my family cannot afford to keep it up. Other than becoming a gluten free vegan, what can I do to help improve my diet and save my family some money?
  17. K-Dawg

    I Said "gluten", Not "cheese"

    Kayo - your post made me laugh so hard -- "yes, everything is gluten free, even the bread" O.M.G. That is usually my sign to run out the door because you KNOW that even if you order a gluten-free meal, somewhere down the line someone will gluten it via cross-contamination, etc. I just can't get over it...even the bread is gluten free. awesome funny (and, of course, terrible) KDawg
  18. K-Dawg

    Just Diagnosed

    Ok - so I"m 34...not even close to being a teen! But I wanted to welcome you to this forum. I know you'll find good advice here as well as support. Your good friends will support you. KDawg
  19. I'm going to copy and paste an email I received in October 2009 - I am in Canada - not the US Thu, Oct 15, 2009 at 12:10 AM ..... Thank you for taking the time to write to us. Danone has only 1 lines of yogurts that contain or may contain gluten: Activia. Some Activia flavors contains gluten and nuts, consequently, even if we do two complete rinsings between flavors, its may contain trace of nuts. This is only for the multipacks. On the other hand, the 650g containers are manufactured on different lines (no cross contamination possible between flavors). The Activia 650g: plain, vanilla, strawberry and prune are gluten and nuts free. All the other Danone product are gluten and nuts free. As a guideline, we always write on the ingredients list if a yogurt contains gluten or nuts. You can be assured of Danone's consideration for all comments and questions from its customers.
  20. K-Dawg

    Fries- Fast Food Chains

    The McD fries thing is weird. I work downtown Toronto and there is a McD's near my office. I went there for fries a few weeks ago. I asked the girl behind the counter if the fries are done in dedicated fryers (cuz I always like to confirm before putting food in my mouth...what if a policy changes?) and she gave me a weird look. So I asked, "Do you fry your french fries in seperate fryers?" and she said, "yes" and I said, "so you don't fry anything else in them?" and she said "... pause....NO". Because of the pause, I asked "never?" and she said, "Well, we're not supposed to, but sometimes we do." I then told her I had celiac disease and could get sick if I ate fries cross-contaminated with items that have gluten. I was so sad...esp cuz I had no lunch as my plan had been to get McD's fries. Has anyone else ever encountered this? Maybe it was a one-off? KDawg
  21. I never expect my relatives to cater events in a gluten free manner. I typically bring my entire meal, today being one of those days!! lol. When they offer and take it very seriously, being aware of and taking steps to avoid CC, I am grateful. I'm also grateful that I can go to these events, with my own meal, and feel GOOD the entire time...no feeling sick after dinner and wanting to get out of there and go home. When I was first diagnosed, I was overwhelmed..it seemed impossible to figure this diet out and I just don't expect anybody else to do that...especially in the time frame I needed to do it. Not everyone needs to be an expert! Just me. Over time, my relatives have become more educated. But, no. I don't expect other people to understand all the issues related to the gluten-free diet or celiac disease. I just expect them to be gracious when I say, "thanks for making that pie, but I"m unable to eat it because....." KDawg
  22. K-Dawg

    Calling Torontonians

    Hey -- So I know of a few Torontonian celiacs....and I have even bought my dogs boots from one of you!!! I'd like to meet some fellow celiacs from my neck of the woods ... or, if there are any of you doing regular get-to-gethers, lemme know! KDawg
  23. Recipe a coworker found for almond flour chocoloate chip cookies. So easy, even I can make them: 1. In a large bowl, combine almond flour, salt and baking soda. In a medium bowl, combine grapeseed oil, agave and vanilla 2. Stir wet ingredients into the almond flour mixture until thoroughly combined. Fold in chocolate chips and almonds. 3. Spoon dough 15 ml (1 tbsp) at a time onto a parchment paper-lined baking sheet, pressing down with a fork to flatten. 4. Bake for 7 - 10 minutes, until lightly golden. Let cookies cool on baking sheet for 20 minutes. Store in an air tight container. Ingredients: 625 ml (2 1/2 cups) almond flour 2 ml (1/2 tsp) salt 2 ml (1/2 tsp) baking soda 125 ml (1/2 cup) grapeseed oil 125 ml(1/2 cup) agave nectar 125 ml (1/2 cup) dark chocolate chips 125 (1/2 cup) sliced almonds
  24. K-Dawg

    Food Pantry Issues

    Well, the person you spoke to at the sally anne should be ashamed of him/herself. The idea that you would be spoken to rudely is disgusting to me. And the idea that you would be sent away without the help you require! SHAMEFUL! Do you have Saint Vincent de Paul in your neck of the woods (if I have the spelling right). It is a Catholic run service and, frankly, I find that the Catholic run assistance and outreach programs are much more client centred and helpful. At this juncture, you are going to have to be your own best advocate. You know what - you need to attend at a large well organized food bank, the bigger the better, and by pass the volunteers! Speak to the social worker, director or nutritionalist. It is uancceptable that they are not meeting your dietary needs. Take medical documentation with you. I am right fecking angry about this. The problem is that foodbanks typically carry crappy food, lots of regular pasta cuz it's cheap and canned goods cuz they are not perishable. Most of the canned goods will work for you. But you should have been given a certificate for the grocery store so you could buy meat, potatoes, rice, etc. GRRRR. If you get nowhere, PM me. KDawg