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Latest Celiac Disease News & Research:
Everything posted by butterfl8
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ARCHIVED I'm Terrified Of This Dx... :(
butterfl8 replied to a84c72's topic in Coping with Celiac Disease
As miserable as you have felt, you will feel that much better, and more. I was also extremely fatigued, but it came on so gradually I didn't even consider it a problem. I also got hit with the 'high cholesterol' business. I was thankful for the dx, because this was something that could be managed without drugs, without surgery, etc. All you have to do... -
ARCHIVED When Was Your Celiac Triggered?
butterfl8 replied to Victoria6102's topic in Coping with Celiac Disease
I can combine the long term symptoms and the trigger! My trigger was some virus that attacked the abdominal lymph nodes. A twisting, pulling pain at various spots on my stomach. After a week, not only did I not get better, but the pain changed and got much worse. Now it was a stabbing pain, and I started on vicodin. The dosage kept increasing in order... -
Luksusowa is a good potato vodka.
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ARCHIVED Rudi's Slider Rolls
butterfl8 replied to Celiac Julie's topic in Gluten-Free Foods, Products, Shopping & Medications
Open Original Shared Link I only have the bread, that's all I can get here, and I've never had a problem. I know that they do have wheat products as well, could that be what you got? The link is for the gluten free side, and I don't see 'slider rolls.' Just multigrain hamburger buns. This is the organic side, with the listing of 'potato slider rolls... -
ARCHIVED Just So Tired Of It All
butterfl8 replied to BitterGrad's topic in Coping with Celiac Disease
Does it absolutely SUCK that you have to take your own food everywhere, and explain why? YES. A thousand times YES. But it is also your choice to restrict your participation, and thereby, your kid's involvement, due to food. My husband was an active alcoholic, and because I was an undiagnosed celiac at the time, the restriction in our social lives was... -
ARCHIVED Going To Try Giving Up Lactose, Too
butterfl8 replied to Pisqualie's topic in Coping with Celiac Disease
I've really enjoyed Carol Fenster's cookbooks. I have "1000 gluten-free," and there are MANY MANY MANY selections in there without dairy, and vegetarian entries are noted as well. I believe that every recipe has dairy free alternatives listed for the dairy-full ones. I have a friend who has a dairy allergy, and made a chicken shwarma meal without the yogurt... -
ARCHIVED Gallbladder Issues?
butterfl8 replied to mommyof4's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
So I was dxed Celiac in July '09. This last fall I had my GB removed. By the time I got in for the HIDA scan, I was only eating rice, vegetables, fruit and NO fat dairy. SUCH A BAD IDEA, but hey, it was the only way I could get through without pain. I failed the scan, my GB failed to recieve any bile until they pumped me full of morphine. The thing was... -
ARCHIVED Celiacs Who Don't Eat gluten-free Make It Hard For Me :(
butterfl8 replied to Victoria6102's topic in Coping with Celiac Disease
I so understand what you're saying. My mom, sister and I all have Celiac, but my sister doesn't get reactions like I do, and is not careful at all. So her in-laws can cook 'safely' for her level of sensitivity, but for me? I don't eat ANYTHING they have prepared. Also, it's possible this other kid may not realize his current symptoms are gluten-related... -
I think it's about 24 dollars--but it lasts FOREVER!!! Well worth it. You would want the fair--I'm a paleface too, so I understand the "just give me the lightest shade you have" routine. I bought a new tub of foundation about 6 weeks ago. That was when I thought I was running dangerously low. Guess I wasn't! I wouldn't be surprised if the previous tub...
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I know sometimes with depression it's hard to get out of the pit. Here are some of our more hopeful stories. Your story is amazing. All of that trama, stress, and pain, but now you have a way to feel better! I'm not trying to trivialize your pain, just to give you some hope. This diagnosis may be just what you need to feel amazing. Give the diet...
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ARCHIVED Hida Scan Results
butterfl8 replied to kristina8387's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you go gluten free before getting tested for celiac, the results will be inaccurate. Celiac testing shows the effect gluten has on the body, if you're not eating gluten... That said, it is possible to have gallbladder problems that are seperate from celiac. My gallbladder didn't cause any problems for over a year on the gluten-free diet. No problems... -
ARCHIVED Raynaud's Symptoms Feel Worse Since Starting gluten-free Diet
butterfl8 replied to Mrs. M.'s topic in Related Issues & Disorders
I was dx'd celiac 2.5 years ago, and the first two winters were pretty bad. When the temp was above 45(F), no problems, but once it hit 45 and below, I'd have lovely white fingers. That is, if you consider 'corpse white' lovely. This winter it hasn't been as bad, probably because I've spent less time in the cold, but also I try to keep my core temperature... -
Your bird dog looks so soft and fluffy...my god if it was real...it would be a riot to watch it eat!!! LOL ...I want one..!!! LOL!
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ARCHIVED New To The Gluten Free World
butterfl8 replied to Littllemel's topic in Coping with Celiac Disease
I was miserable by the time I was diagnosed. Like you, I had long-term issues that were under control and didn't bother me, then it all went to heck. Starting out on the diet is horrid, and I'm thankful I don't have to go through that again. What kept me going was knowing that in order to feel better, all I had to do was eat better! No worries about something... -
ARCHIVED Can Getting Glutened Trigger A Gallbladder Attack?
butterfl8 replied to MitziG's topic in Related Issues & Disorders
That sounds like gallbladder evil-ness to me. Do you get other symptoms from gluten? Fatigue, muscle aches? Did you have those symptoms this time? After 2 years gluten free, my gallbladder (all of a sudden) went out of control pain-wise. Hadn't really had a problem with it before, but never ate a high fat diet. This was caused by the fat from hamburger... -
ARCHIVED Unsupportive Family B/c No Diagnoses
butterfl8 replied to BrittLoves2Run's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I was dx'ed 2.5 years ago. My sister was dx'ed after that, and my mom's testing was messed up so they don't think she has it. She knew better however, and went gluten free. That said, I am the most sensitive person in my family. It took (what felt like) forever for my family to accept that. Things they could eat, like various resturants or from shared... -
ARCHIVED New And Already Emotionally Exhausted
butterfl8 replied to Adalaide's topic in Coping with Celiac Disease
The good news? Yay for wonderful hubbys! Since you were so sick prior to Dx, I would think and hope that your in-laws are a bit more accomedating. I would suggest that you (or, if you're more comfortable with it, your husband) talk to your in-laws and just let them know what adjustments you NEED. So that you aren't that horribly sick EVER AGAIN! If they... -
My GI sends out a notice once a year. In 2010, I was doing well enough that he said for the next notice, IF I was still doing ok, I could just call the office and let them know, "I'm fine." In 2011, however, I was having gallbladder issues, and so kept my appointment. So come this year, as long as I'm ok, I'll probably skip the appointment. Depends on...
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ARCHIVED Please Recommend A Great Cookbook
butterfl8 replied to Debbie48's topic in Coping with Celiac Disease
Another vote for Carol Fenster! YUMMMMMMMY! She has a specific cookbook for easy (or maybe fast) meals, I got that for my mom. I have the 1000 gluten-free recipes. -Daisy -
ARCHIVED Glutened At Xmas Party
butterfl8 replied to Nadtorious's topic in Parents, Friends and Loved Ones of Celiacs
You can tell them that you don't expect them to buy new dishes just to cook your food. That might get across the lengths we have to go to stay safe. And I've always found telling them that the same spatula used to serve "gluten-free" hamburgers will make me sick. And you can also mention that you get sick for a week from even the slightest hint, and you... -
I had my gallbladder out the friday before Thanksgiving, and it was just this week that I'm feeling back to pre-GB issues level. So give yourself some time to heal! Hopefully the docs are right, and you'll be feeling better soon. I was still eating a very bland (NO FAT!) diet for about a week after. Just take the time to heal. Hope you feel better...
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Just my story, take from it what you will. I was using a lotion, didn't really care about the ingredients. I kept feeling just a little bit sick in the morning. I knew the Udi's muffins were ok (certified gluten-free), so I started trying to figure things out. The lotion. I would put it on, then go downstairs and eat breakfast. Changed lotions and no...
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ARCHIVED Gallbladder Problems
butterfl8 replied to Joe0123's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I was just at my GI today for Gallbladder pain, and the way he described the difference between the two tests is that the US looks at the structure. This is what showed your stones/sludge. The HIDA is to examine the function of the gallbladder. So, I suppose overall, your gallbladder is funtioning within limits, despite the stones/sludge. Best of luck... -
ARCHIVED Interpreting Faq's And Company Responses
butterfl8 replied to T.H.'s topic in Super Sensitive People
Shelley Case wrote 'Gluten Free Diet,' and brings up some EXTREMELY valid points. For example, rye is really only used for making rye bread. We shouldn't expect to find rye in a corn/wheat facility. The taste of rye is just too distinctive to be used for other purposes. As for barley, the book points out that it is actually a pricey ingredient, and companies... -
Well, I must revise my above statement. However, eating half a bag of chips is really never a good idea, but what's done is done. Poor Boulder Canyon Chips are now (at the very least) on my caution list, if I can restrict myself to less than 1/2 a bag. So they probably won't be bought again! I did notice an increased selection at the store, and the increase...