rain
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Latest Celiac Disease News & Research:
Everything posted by rain
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I forgot to add, during bike rides I've tried everything - bananas, lunch, no lunch, bars. Nothing works. I also find that if I wait for others to eat lunch that seems to aggravate things too, though that might be because I drink too much water since we're stopped.
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Thank you for your replies! I'm certain it's not over-exertion since it happens other times as well, though it always helps to just sit sill. I'm honestly not very particular about what I eat before, just so long as I get enough calories in to hold me over. I usually eat later in the evening too just to be sure. My next ride I'm thinking of eating...
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Hi, For the last few years (after diagnosis) I've been getting awful naseau during long bike rides or hikes. I can't figure out what to do. It's frustrating because now I am able to build muscle, but the nausea just wipes me out. Everything I read online addresses nausea after a workout, not during. It usually starts once I eat, so I suppose I could not...
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ARCHIVED Do You Ever Cheat On Your Gluten Free Diet?
rain replied to karinp's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I found the first 3 months the hardest because I got a headache every time I tried to prepare something to eat. The lifestyle adjustment was misery making. But after that it's been easy. The only time I eat gluten is on the occasion when I go out for asian food and get something that has soy sauce in it. I have found that I feel fine after but I its not good... -
ARCHIVED 2 1/2 Years And New Questions
rain replied to rain's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Wow, thanks all. I didn't really expect any responses since my complaints seem so random. I appreciate your insights & I'll follow up on them. Thanks again! -
ARCHIVED 2 1/2 Years And New Questions
rain posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Its been 2 1/2 years since I went gluten free. I've seen very huge improvements overall but I have some new symptoms and some complaints. I still have some odd skin rashes on my face. I can't figure out what is causing them or how to heal them. Neither can the doctors. They are sort of like very dry patches. The other is the yo=yo weight. I'm small, so it... -
ARCHIVED Still Snacking Too Much
rain replied to rain's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Ahh.. So THATs why I can pour on the olive oil! It sounds like you eat like I do -- lots of veggies. Thanks for the tips. -
ARCHIVED Still Snacking Too Much
rain replied to rain's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I tried the low carb / paleo /etc for a number of months. I learned that I can't eat light weight carbs (white rice, potatos) on a regular basis and that I feel better if I moderate my carbs. But it never solved the snacking -
ARCHIVED Still Snacking Too Much
rain replied to rain's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I have actually tried the paleo diet - it didn't help. (I really am working on this!) Pricklypear I will follow up on your suggestion about hypoglycemia/diabetes. My sugar tests normal but I have the sense that there is something about sugar that I dont' know how to manage. I'll look into a glucose monitor. -
ARCHIVED Still Snacking Too Much
rain replied to rain's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thanks for your thoughts.. I am not low on vitamins, I've had that checked. And though I still struggle with constipation, I know for sure if I don't snack that tends to subside. I'm trying to change food combinations. My newest strategy is to cut back on sugar even more than I had. But it's hard because I feel so up and down and my stomach feels so hollow... -
ARCHIVED Still Snacking Too Much
rain replied to rain's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
My weight is fine and has been consistent for a long time. The eating feels a bit anxiety filled, but I think its frustration from not feeling satiated if that makes sense. Compared to before when I eat I do feel like I'm absorbing my food, so I have come a long way... I guess I just have a very long way more to go? -
ARCHIVED Still Snacking Too Much
rain posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I'm trying to figure out what needs to change in my diet so that I stop constantly snacking. My diet is healthy but I can't seem to last in between meals and I snack on nuts, dried fruit, chocolate, chips.. it's driving me crazy. I've been gluten free for 2 years and have done a lot of different things with my diet as my body has changed. My thoughts are... -
ARCHIVED Healing Neurotoxicity
rain replied to basilicious's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I had tingling and numbness that actually got worse after I went gluten free and scared me for over a year. However at the 2 year mark it's a very mild symptom. I took sublingual b-12 which helped a lot in the beginning but after that I focused on diet and supplements. I have found the healing process to be very slow but steady. One thought is to take a look... -
ARCHIVED My Hand Goes Numb? Why?
rain replied to heidi g.'s topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I'd second the b-12 sublingual suggestion. I had numbness for a long while and b-12 and being gluten free made the symptoms almost completely go away. -
I gained about 6 pounds 8 months prior to going gluten free. My body was getting really sick then, and then much worse after going gluten free. Many of the symptoms have now lifted - not all though and one of them is this weight gain. I do not want to diet because my weight was basically the same for 20 years prior to this weight gain. I want to understand...
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ARCHIVED Itching But No Rash
rain replied to sleer's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I had a crazy itch with a mostly a non-DH rash for over a year. Some of the locations, my thighs and stomach, would itch with no rash. A rash would develop after I itched. It started at the same time I went gluten free. 3 rounds of antibiotics (Doryx twice - that seemed the best) pretty much cured it. (My face is still very sensitive so I am using a cortisone... -
ARCHIVED Still Dealing W Constant Hunger
rain replied to rain's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thanks for all your thoughts. I'm discovering that part of the issue is acidity. I started taking prilosec and have felt the hunger feeling subside. I'm hoping that all the rest of the symptoms go with it. I'm also guessing that I just need to give my body more time to heal. I noticed another shift in how I feel this past week... -
ARCHIVED Still Dealing W Constant Hunger
rain posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I've been gluten free for 16 months and it's been a roller coaster. The symptom I'm battling now is constant hunger. My antibody levels are normal. I've gained 5 pounds (I'm small framed so I can assure you the rolls show and I'm not dieting. Along with the hunger I feel bloated and physically my belly feels full. I'm hungry whether I eat a lot, or exercise... -
ARCHIVED Constant Hunger After Some Hard Workouts
rain replied to rain's topic in Sports and Fitness
Hi, I'm just seeing your post so maybe you've gotten answers already? But I really wanted to reply because the constant hunger has eased up! And I really think, like so many others on this forum have reminded me, that it was just a matter of time. Finally I'm really seeing my body shift to having a healthy appetite. I had the constant hunger thing before... -
Is anyone out there dealing with changing eating habits from grazing to meals? Before diagnosis I couldn't eat a full meal without getting a stomach ache, and I was chronically light headed so I'd eat sugary things as well. Now I don't have those symptoms but I can't seem to shake the habits.
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ARCHIVED Emergency Food At Work
rain posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I'm really curious to hear what folks do for meals at work when you're unprepared? For example I was just super hungry yesterday at about 2:00..I wandered around the different delis and bought some chicken and rice but I'm sure I've been glutened. Ideally I'd keep something in the freezer for just these situations. (I'm still learning..) -
ARCHIVED Breathing Symptoms
rain replied to SAVANNAH21's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Yes, very definitely. I should add I am asthmatic. However, the shortness of breath would happen without wheezing and my inhaler was only marginally helpful. It was about 9 months after I went off gluten that the symptom went away and seems to be gone now. I am taking an inhaler but it's because in the course of examining my lungs she discovered my lower... -
ARCHIVED Constant Hunger After Some Hard Workouts
rain replied to rain's topic in Sports and Fitness
I work out a couple times a week, over the summer longer bike rides and hikes if I have the time. But it's the shorter, harder workouts that cause that feeling of relentless hunger. It's a weird feeling. I can't concentrate, can't eat enough, and feel a bit dizzy and emotional. But the weird thing is the feeling happens only once or twice a month. And my... -
about once a month I'll exercise and end up feeling hungry non stop for a day or even a few days. Yesterday I think it happened because I took over an hour before I ate dinner. But I'm not sure. I'm wondering if this is because of the celiac. Or is it because I'm not eating the right food...? It doesn't make much sense to me because I don't think I exerted...
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Thank you for your replies! I'm taking the amino acid capsules made by Bluebonnet and sold at Whole Foods. I dont take them daily and take less than the recommended dose. There are Branch AAs in it but also some others. Unfortunately I don't have a doctor that would be helpful about this but I'll do more investigating.