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Kim69

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Everything posted by Kim69

  1. Kim69
    Whereabouts in the world are you? It looks like you are from USA from your use of the word candy. I have never heard of a low iodine diet do I googled it (and DH). I hope the lid helps you. I am sorry that you have to be on this diet. I found this website that says you can have dark chocolate, marshmallow, hard candy, jellies (tho according to the site I...
  2. Kim69

    ARCHIVED Nueropathy

    Kim69 replied to AVR1962's topic in Coping with Celiac Disease

    I am really interested in neurological problems other coeliacs suffer from. I have tingly fingers and hands, burning pain legs and arms all the time and fatigue almost all the time and occassional muscle cramps up the back of my legs. The only vit I am low in is vit d which I am having d3 drops to boost. I have been dx with fibromyalgia. I have all the...
  3. Kim69
    I am coming up to two years too. I have been posting a bit today just to let people know that your tastes and cravings can change. I still have and pain issues but am slowly working through them. It's great to hear you are doing better! Thanks for posting.
  4. Kim69
    You may not like my reply. I am about 2 yrs post dx. I found I don't deal well with any flours or cereals. My favourite snacks are a dried fruit and nut mix, date and coconut rolls (a new find at my supermarket - they are 100% date and coconut!) and I do love yogurt even tho I was told I was lactose intolerant. I gave up cow dairy for a while but didn...
  5. Kim69
    Hi sharilee. I agree with the other posters. I too was regularly in tears at the supermarket and especially when travelling (work or holidays) trying to find something cheap and easy for lunch. Be kind to yourself and allow yourself small treats. But - sorry for the but - reaccess your situation in a year or so. Hopefully you won't be like me but I have...
  6. Kim69
    It's a long road to recovery for us coeliacs. I agree ditch the herbs. To the shock of my naturopath I couldn't tolerate any of her treatments that I needed to swallow. I gave up on her for a while but she dx me with blastocystis which is a parasite. A course of dr prescribed flagyl cleared that up. I had nausea and D for about 1 yr before the $10 course...
  7. Kim69
    This is all very interesting. I have been gluten-free for 20 months and recently had a gastroscopy that showed full villi recovery and an excellent response to a gluten-free diet. Hmm that's all well and good but I still have such horrible fatigue. I havent been able to work a full days work since becoming sick 2 yrs ago (fatigue was worst symptom)...
  8. Kim69
    I wish we could get Lara bars in Australia! You guys in USA are always raving about them! I am quite jealous.
  9. Kim69
    You are very lucky to have a gluten-free household. My family refuses. My saviours are chocolate and an antidepressant (I was on it before I became Coeliac). I have serious issues with food and see a therapist who has helped me throughout. I also have fructose malabsorption which really limits my food. I miss apples and pears. So my advice is...
  10. Kim69
    OMG. That was (is?) so me! I see a therapist who specializes in working with people who have food related diseases. At one stage I was afraid of food. I actually bought food powder so I could have a liquid diet! My therapist talked me out of that. I am 20 months post gluten-free. For me my worst abdominal pains and gas disappeared when I was treated...
  11. Kim69
    Mcdonalds has a hot chocolate? Yum! I will have to check it out in Australia. Maccas is wonderful for it's gluten-free stuff. I have gone off hot chocs since becoming Coeliac because so many of them have gluten in them and it is annoying to have to ask to see the packaging.
  12. Kim69

    Hi...I go today at 4 pm to get my test results from the stool analysis...I am both excited and nervous ....will keep you posted...what have you decided to do about your results?

  13. Kim69
    Hi pondy. I was dx just over 1 year ago and have had very similar symptoms to yours. The pain under the ribs for me was gas pain. I am fructose malabsorbent, lactose intolerant and have had to cut out lots of other foods such as legumes. I was at my wits end starting to consider dx such as MS, fibromyalgia and was told I probably have IBS and another...
  14. Kim69
    Hi brandy. I just noticed you said you had a pain behind the ear? I get an extremely horrible nerve pain in my ear. It is triggered by wind - not every time but most of the time it happens. I changed to cymbalta (an antidepressant) from another AD and have been pleased to note that the pain while still occurring is only faint now. What is your ear pain...
  15. Kim69
    Hi yes, I am biopsy proven Coeliac. And I had the blood tests and the gene test too. I am having a repeat biopsy this week to make sure I am healing but I expect I am ok since I have recovered from the deficiencies I had. I got the results of a gastrointestinal function profile that cost me $500. I have yeast overgrowth but of more interest is the fact...
  16. Kim69
    I travel a lot for work and have been lucky enough to have a few holidays since I was dx 15 months ago. Buffets are tricky but if I cannot ask for a gluten-free meal in advance (I did this on a posh dinner cruise and had a beautiful meal - the chef served me personally and he seemed really pleased tohave had the opportunity to be creative) always ask the...
  17. Kim69
    I live in Australia and get plenty of sunshine yet I have struggled over the past 15 mths to get my vit d levels to just 1 point below the low range cut off (with 2000 iu). I have increased my vit d intake to 3000 iu.
  18. Kim69
    My husband made us gluten-free macadamia waffles, maple syrup and ice-cream.
  19. Kim69
    Hi Mack the knife. No it's not good if your tests are still strongly positive. It's certainly discouraging for you. I still feel crappy but at least my dr is happy with the blood tests. A repeat gastroscopy is s good idea. I am having one on Wednesday. Oh are you deficient in any of the usual suspects still? Like vit d or zinc, iron, b12?
  20. Kim69
    Ok I got my results today. I visited my naturopath today and learned that my test results are positive for yeast overgrowth and more alarming a parasite called blastocystis hominis. This parasite is apparently very common but when u are immunosuppressed or have some gut issue like I did (do?) with Coeliac disease, it can cause all sorts of problems including...
  21. Kim69
    B12 - that's really interesting. Am glad it has worked for you. My b12 is normal and it didn't occur to me to take supps. Not sure if my dr would agree to b12 shots. I am booked to see a rheumatologist in a couple of weeks. I will certainly keep your story in mind. Thanks!
  22. Kim69
    About 1 yr before I was dx Coeliac I had vestibular neuritis - very dizzy, vomiting, room spinning! A bit like your virus. I was in hospital ER for two nights while they worked out what was wrong with me.
  23. Kim69
    Hey twizzel. Am sorry you r feeling bad. Am afraid that I have a similar tale to tell. I am 14 months gluten-free and now have negative blood work so I am not getting ill from cc. I am in bed now mid afternoon sunday because I can't last a whole day without needing a rest. At work I am exhausted by mid afternoon and am having every test imaginable to...
  24. Kim69
    Hi. I liked to see a trend townwards towards normality in my blood work. These are my results. I still feel crappy but that's another issue! I have recently had tests done 1 yr post dx on a gluten-free diet. AGA IgG <10 (less than 20 is negative on this test) so happy days T-glutaminase <5 (less than 5 is negative) So both are negative...
  25. Kim69
    In reply about blood tests. I have recently had tests done 1 yr post dx on a gluten-free diet. AGA IgG <10 (less than 20 is negative on this test) so happy days T-glutaminase <5 (less than 5 is negative) So both are negative. Over the past year I have had these tests a few times and they have shown a steady decline. In November last year...
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