catarific

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Everything posted by catarific

  1. What other intolerances do you find you have when you have a sensitive intestinal track? I find now that I have trouble with almonds, sometimes chocolate (even if it is gluten free), carrots, potatoes of all kinds, and fructose and high fructose. Are these sensitivites somehow related - when you find you now have one - that others follow? What sources of food intake bothers you?
  2. Wondering if anyone in the forum is from my neck of the woods.....
  3. I am finally on the road to healing..... I am hoping that those who are undiagnosed are reading this because it may help you find some answers and some relief.... I am sure many undiagnosed diarrhea sufferers do not know that their D may be caused by bile salts leaking into the intestines. Diet will not cure this - the only thing that will is medication and that medication is either Cholestyramine which is powder form or Welchol (pill form). I know some will say that this is defined as Habba Syndrome - but not all forms of bile leakage are categorized as this syndrome. My Gastroenterologist explained that this is fairly common and is easy to take care of and is not really anything to be alarmed over. What you will need to do is first have a colonscopy and endoscopy to rule out Celiac, Colitis, IBD, or Crohns disease. Blood work is also necessary and stool samples. If all come back negative - then you may be suffering from Bile Salt leakage or possibly Habba Syndrome or even gallbladder disease. This condition is also very prevalent to those who have had their gallbladders previously removed. Trust me when I tell you it is well worth looking into. I have suffered for months and am finally beginning to see some positive results. I am still thin at 98 lbs. (lost a lot of weight with this) but am hoping to soon put some back on. I did notice that I am not having digestive issues (malaborbtion) and the diarrhea is much, much less than before. I asked the doctor how long I would have to continue the medication - he said probably around a year until everything returns back to the way it should be. I must say - I can now eat many of the foods I had sensitivities and/or intolerances to - which were many. So if you are really suffering from undiagnosed diarrhea - do look into this. I hope that I am still welcome to post here - because the members in this forum are the greatest and most supportive people I have ever met! Thanks so much for all your help - it is so very much appreciated!
  4. Please keep us posted and let me know how the medication works for you. Just a side line - you may find you have a lot of gas with this - but that sure beats the alternative Lots of luck and hoping the big D is alleviated. Hugs, Sue aka Catarific
  5. I have been gluten free now since January - 3 full months - but still have ongoing diarrhea and malabsorbtion symptoms. I have had my endoscopy which visually showed no damage at all as well as a colonoscopy that was clean. I am still awaiting some biopsies from both areas testing for microscopic colitis and celiac disease. But here is the funny thing. I have been suffering from a sinus infection and was given amoxicillin for it. While taking the amoxcillin, I had no diarrhea at all, no food intolerances and no malabsorbtion. I and could eat anything (although I did not eat anything that was with gluten). But, once I stopped the antibiotics - the symptoms came back again This leads me to believe that this might be SIBO? Have any of you experienced this?
  6. Are any of you plagued with Nocturnal Diarrhea that comes on in the middle of the night? I know for myself - I usually am awoken about 1 to 3 a.m. and have to go to the bathroom either with watery, semi hard or even regular urgency. This might continue once an hour up to about 6:30 to 7:00 a.m. It is really annoying and it so disturbs trying to get a good night's sleep. I have never had an accident - but you sure know that your colon is calling you.... Is there anything you can do about this? I know I am not bothered all day - but somewhere between 7 to 8 hours after eating - this comes on.....
  7. I hope this isn't too weird, but I just wanted to say that I can relate to a lot of your posts on here (the symptoms I'm still struggling with, seemingly endless intolerances). I have little answers, but it's nice to know I ain't the only one. Best of luck in figuring everything out! <3 Also, your avatar is awesome.

  8. catarific

    Nocturnal Diarrhea

    I am not eating gluten - been free for 3 months and I do not have dairy either - but I have noticed that if I eat too much starch or sugar - I tend to have problems. I cannot tolerate potatoes, rice, cereals, fruits and vegetables or fructose very well. Problem is, when I stay off complex carbohydrates - I tend to always feel hungry. Even though I am gluten free - I still am having problems with foods. Once I have the nocturnal diarrhea - I am usually good for the day - not always - but most of the time. I do not know why it takes so long to have a reaction and why it happens during the night....
  9. catarific

    Can We Get A Chat Room?

    I know some of the forums come with chatroom software. Not sure if this one does. When I ran a graphics forum, there was an option to have a chatroom which we sometimes used. The only way a person could get access was by being a member of the forum so we did not have the worry of outside people coming in.
  10. I have tried using the Silk Vanilla Almond Milk and as long as I use just a small amount in cereal I am okay. But, yesterday, I made the mistake of having a glass of milk and had diarrhea for the better part of yesterday and some again this morning. Have any of you had a similar reaction? Which substitute have you tried that works well for you and that you would recommend? Thanks.....
  11. catarific

    Can We Get A Chat Room?

    I think this sounds like a wonderful idea. Before hand, you could have an agenda of topics to discuss and then make a date for the chat. What a fun way to meet other members, too
  12. If you are interested in Elaine Gottschall's diet - here is a link to a web site that tells you something about her book including a list of legal and illegal foods. Her diet does require you to give up a lot, though. http://www.breakingtheviciouscycle.info/legal/legal_illegal_a-c.htm
  13. catarific

    Rice Sensitivity

    It also could be the amount of rice being consumed. I have recently learned about the Low Fodmap Diet which does allow the consumption of grains during meals but it does say that the rule of thumb is to not have more than a half of cup to one cup (cooked) per meal. Sometimes that works. Try eating less and see if the same reaction occurs. Also limit the amount of carbohydrates being eaten at the same time. If you are having rice, do not have a starchy vegetable or bread. Only have one carbohydrate during the meal instead.
  14. After posting this question, I have been doing some research on SIBO (Small Intestine Bacteria Overgrowth) and came up with three very interesting links I am going to share. If you think you may have SIBO, you should see a doctor who can prescribe the correct antibioics for you. SIBO is confirmed by a hydrogen breath test. I have an appointment with my doctor in two weeks and hopefully he can help me with this. But, in the meantime, I have done my research and this is what I found: Symptoms: •excess gas, •abdominal bloating and distension, •diarrhea, and •abdominal pain A small number of patients with SIBO have chronic constipation rather than diarrhea. When the overgrowth is severe and prolonged, the bacteria may interfere with the digestion and/or absorption of food and deficiencies of vitamins and minerals may develop. Weight loss also may occur. Patients with SIBO sometimes also report symptoms that are unrelated to the gastrointestinal tract, symptoms such as body aches or fatigue. The symptoms of SIBO tend to be chronic. A typical patient with SIBO can experience symptoms that fluctuate in intensity over months, years, or even decades before the diagnosis is made. The interesting part of this is the dietary approach to what foods to avoid and what foods are good to eat. This is where we get into the Low-Fodmap Diet. On this diet, gluten free cereals and gluten free bread are advocated. Also limiting dairy and fruits with excess fructose is part of this diet as well. And most artificial sweetners are a no no. The links describing the diet are here: http://thefoodielist.co.uk/wp/the-low-fodmap-diet-for-ibs-sufferers/ http://www.gidoctor.net/diet-ibs-sibo.php And a great little chart outlining the foods to avoid and those to eat can be found here: http://www.healthyfood.co.nz/articles/2010/march/are-you-intolerant-to-common-foods/fodmap-intolerances-0310.pdf There does seem to be a definite link with gluten free diet and eliminating the symptoms of SIBO.
  15. If you have SIBO (Small Intestine Bacteria Overgrowth) you may have problems with the Honey Nut Chex and Chocolate Chex. With SIBO you also will have a fructose intolerance and should avoid honey (in the Honey Nut Chex) as well as fructose (or corn syrup) which is in the Chocolate Chex.
  16. How long did you take this and did it clear up the condition for good?
  17. sounds great - hoping the one near me had it too - I love those mixes!
  18. Maybe you should also get an updated colonoscopy - who knows - maybe that might show up why you are having these recent problems. It is not out of the realm of possibility to have celiac and another form of GI distress - you might want to check it out. Hope you are feeling better soon.
  19. Today I had a colonscopy and endoscopy. The doctor said that he could not see any damage but did send a biopsy of my colon to test for microscopic colitis and a biopsy to test for celiac sprue. My question is - if there were damage to the villi - would that not be visible during the examination? Or is it general procedure to send out a biopsy when a patient tells the doctor about gluten intolerance, food sensitivities, etc. I had been doing great the past two weeks prior to the exam - but the day before the prep, I had a very, very, bad bout of diarrhea. I told my husband - I could probably now go to the colonscopy without having to prep. Anyway - I was really shocked when the doctor did not see any colon inflammation - yet on his own, (without my saying anything about the flare), he is testing for microscopic colitis. Is this something a doctor regularly might do if a patient has complained of diarrhea for a long extended period and the colonoscopy showing no inflammation?
  20. I did take the blood panel previously which was negative. I opted to do both the colonoscopy and endoscopy - but the colonoscopy showed no irregularities to the naked eye. So that is why he is testing for microscopic colitis. I have no idea how many biopsies he took. It never even dawned on me to question him - but regardless - I still have opted to stay Gluten Free with or without a diagnosis since I feel so much better and have seen such an improvement over the past few months.
  21. When you have inflammation, you might find that you have sensitivities to many more foods than you thought possible. But once the inflammation starts to heal, you will find that you can start reintroducing some of the foods back. You might want to look into a good, strong, probiotic as a supplement as well as gluten free vitamins (because of the lack of eating those foods that are bothering you). I have had a flare up or food poisoning in September 2010 and afterward, I could hardly eat any foods at all. I had fructose intolerance as well and intolerance to nightshade vegetables and a bad reaction to any fruit, vegetables (whether raw or cooked), rice, red meat, dairy products, oil, margarine, butter, chocolate (gluten free), soy, corn, gluten free rice cereal, gluten free cake, and more. Now, finally, I can eat fresh fruit and vegetables, gluten free french fries, gluten free cake and chocolate , fried gluten free fish, gluten free cereal, vegetables. I have not yet tried reintroducing red meat or dairy yet. But what really made the difference is the probiotics and believe it or not, ampicillin. I had a sinus infection and was put on ampicillin - once I started taking that and in conjunction with my probiotic, within 5 days I could see a difference . I am going in two weeks to have a colonoscopy and endoscopy nonetheless to see what is going on. Who knows - maybe I have colitis or crohns and it is responding to the antibiotic. All I know is that after 6 months of diarrhea and food intolerances - the healing began after taking ampicillin with probiotics.
  22. Prior to September 2010, I had always been constipated. Then all of a sudden I had this terrible flare up (or food poisoing, whatever) and then I had been D since until very recently. I came down with a sinus infection and my doctor prescribed ampicillin (small doses - 250 mg) because of my D. But now - the D has totally stopped - how weird - and I am back to C again after 6 months suffering with D. And the malabsorption issues seems to have stopped and the other food tolerances have too (fruit, corn, rice). Yesterday I had a fruit salad with banana and pineapple and the day before strawberries! It is definitely in the C phase again - after the antibiotic. Is this normal?
  23. I have tried eating the gluten free Rice Chex with no luck . I used almond milk with it. I even tried eating the cereal dry to see if it was the almond milk - same reaction - upset stomach - diarrhea. Are there any cold cereal gluten free alternatives that are easier to digest? Thanks!