Oh wow. I feel so bad for you. I wish I could call your doctors and yell at them for you.
Is there a specific reason you need a formal diagnosis? Would you be willing to live life knowing gluten makes you ill, but not have a definitive diagnosis?
I discovered at age 28 that my chronic D (tmi but my food would come out undigested about 2 hrs after I ate it), chronic migraines, bouts of uncontrollable vomiting, skin rashes, inability to gain weight, painful and horrid periods, brain fog, numbness in my hands, anxiety,.... On and on the list goes... Was cause by gluten. At the end of my