scorpio

Thanks Gilligan for your response. I've basically tried everything but to no avail. It's such an annoying symptom. I plan on just moisturising all the time since it helps. I tested negative for Sjogren's Disease so it is definitely not that. I feel like it might be eczema since I have had eczema around my lips before. I will keep you posted though if anything...

Thanks for your reply Ollie's Mom. I am a mouth breather but i've been a mouth breather all my life and my lips only started peeling about a year and a half ago. I did try breathing through my nose for a while but i found it really hard because I have sinus so my nose is always blocked. I think I might try again and this time purchase nose breathing strips...

Hey Larkie! So I've used the steroid cream for about a month now and my lips still constantly peel (now daily unfortunately). So it didn't work for me But it did reduce the inflammation and redness on my lips. i've decided that i'm going to gently exfoliate my lips every morning (just using vaseline and a cloth) it makes my life so much easier and that way...

It's called advantan ointment - i think it is 0.1% methylprednisolone (a steroid). Yep i will see if it makes a difference but i do agree that for EC we must find the cause to permanently get rid of it.

Yes the skin on my lips does get white when i get water on it. I have a moisturiser that softens the skin and it comes off - is that okay to use? I've tried the vitamin b complex it doesn't make a difference to my lips. I went to an oral specialist today and she was did a swab test of my lips but she said something must be triggering the excess peeling not...

HauntedEyes - unfortunately those food allergy tests are not available here in Australia (well not that I know of) and i can't seem to figure it out through an elimination diet. I'm taking iron supplements at the moment with vit c (i've been taking them for a year) but they have not made a difference to my lips. Yes i definitely agree doctors don't know a...

Larkie - i don't actually exfoliate everyday - i have a 3-4 day peeling cycle so on the 3rd or 4th day i just moisturise a lot using coconut oil (sometimes lanolin lip balm) and the skin loosens up and usually comes off easily. I do think that this is an internal problem (or an allergy) so i guess it wouldn't hurt to loosen up the skin a bit so that it...

gluten-free Lover - Thanks for your response. I have been tested for other Autoimmune diseases but nothing came up. I've been using SLS free toothpaste and just recently changed my shampoo and conditioner to one that is SLS free. I guess i could try a fluoride and sls free toothpaste and see what happens. It is such a terrible condition most the time there...

Larkie - Thanks for your response. I've been to two dermatologists and an allergist, they all gave me steroid creams to apply which didn't have any affect on my lips. I've booked an appointment to see an oral specialist next week hopefully she will be helpful. I've also read about the liver and colon cleansing but i'm not sure if it's safe - that will be...

Thanks for your reply HauntedEyes! Since being diagnosed I've had low iron (though not anemic) which hasn't change even on supplements. I suspect that it maybe a food allergy but i just can't figure out what food maybe triggering it because the peeling seems constant. If you don't mind me asking, what foods do you react to?

I agree with Greenbeanie definitely take photos when your lips are at the worst to show to your derm. Across - I've stopped using lipstick and I don't use petroleum either, the only thing i've been using is Lanolin (made from a company called Lanolips) it's the only thing that helps me hide this issue and makes it look like i have normal lips. I might...

Hey Cap6, 5 years of suffering with this is a very long time. I do think that celiac triggered the lip problem, so I'm hoping that a bit more time on the diet will heal my lips (although i'm doubtful). I'm thinking it might be related to a food intolerance, have you tried going on an elimination diet? Right now i'm trying my luck with herbs and then will...

Thanks for your response Madhuri. I'm taking a B complex at the moment that provides me with the daily requirements of those vitamins - should that not be sufficient? I guess I could try taking B2 and B6 separately just to see if that makes a difference. How long did it take (after taking the B vitamins) for you to see results? I've also had a blood test...

Cyclinglady - My parents also think that I should wait and just give my intestines time to heal rather than stress about this. They do think celiac disease is causing the peeling lips because it occurred at the same time as the severe constipation and it led to my diagnosis. It could be possible that for the peeling to stop the antibodies need to be below...

Thanks for your reply Murphy203. I was afraid someone would bring actinic cheilitis up lol. From my understanding actinic cheilitis is caused by sun damage but I haven't really been exposed to much sun to be honest (I'm only in my early 20s). I've also checked pictures of actinic cheilitis it looks quite different from my condition. Also, I've read that actinic...