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About Alwayssomething

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  1. Cooper's Hawk is a place we frequent often when we are in Orlando.
  2. Alwayssomething

    Small fiber neuropathy

    Pins and needles and neuropathy can also be a sign of low B-12. Have you had your vitamin levels checked?
  3. Alwayssomething

    Vacation Dining

    I have been to Aruba 3 times for a least 9 days each time. The last two times I was gluten free. Although I never did all inclusive and can not comment on that, I have never had any trouble eating on the island and have never gotten sick. I do take some things with me as everything in the grocery store is written in Dutch so I can't always read ingredients. Bought lots of fresh fruit and cheese took my own crackers and pepperoni and a few munchies. I usually send an email to the restaurant and ask specific questions and take that with me when I travel.
  4. Alwayssomething

    Trouble Coping with Celiac and Eating gluten-free

    I don't know that I have a lot to offer, but wanted to address the shared household. I have successfully shared with gluten eaters for 9 or 10 years now. It is very possibly but precautions have to be taken. Have you read the newbie101 section it will give you a lot of good advice. Do you have your own separate condiments (I have bright tape on mine with MOM written on it) how about a separate toaster? I also have a separate pasta strainer and the pasta cooking fork. I would also consider myself a picky eater so I have learned for me I only like things that are already made gluten free, not a new recipe to make it gluten free. So I found recipes for things that never had flour. Peanut butter cookies, or oatmeal, I prefer to eat a junkie fruity pebbles cereal if I needed cereal instead of a knock off that was altered to be gluten free. But because of my pickiness I didn't like gluten free pasta (will eat some now) so I use bean thread rice noodles or rice whenever I can. I did find a bread I love but I still like to wrap most of my "sandwiches" in lettuce instead.
  5. Alwayssomething

    What Are You Cooking For Easter?

    Sorry, I didn't see this until today. I will share it so you have it for future functions 1 Tub of Frozen Strawberries 1 small container of cool whip (or whipping cream if you prefer to make your own) 1 cup chopped walnuts 1 Large Box Strawberry Jello Defrost Strawberries and separate juice from the berries. Make Jello with the 2 cups hot water as instructed on the box, but use the juice plus whatever cold water you need to make the 2 cups cold water needed. Let jello set up. Once jello is set up spoon it out and into a bowl add cool whip and nuts and fold it all together. Refrigerate an hour before serving.
  6. Alwayssomething

    Weight gain since starting Gluten diet

    I have the same issue, gained about 15-20 pounds. People love to tell me that it is all the processed gluten free food, but the only processed food I eat is 2-4 pieces of gluten free bread a week. Here is my opinion of why this happens, or at least for myself. When I was consuming gluten I was so sick that I never made it through a meal before I hit the bathroom, and then of course everything went right through me so I couldn't absorb the food I was taking in. Now I am consuming more food because I can actual eat without getting sick and I am absorbing things. Although in 8 years my Vitamin D nor my Vitamin B have returned to normal even with prescription meds, I seem to have no problem absorbing the calories though
  7. Alwayssomething

    What Are You Cooking For Easter?

    Rotisserie Chicken Ham Green Bean Casserole Deviled Eggs Potato Salad Spinach apple salad with this amazing dressing Strawberry Dessert The only thing we will have that will not be gluten free is Mac n cheese. Because we make it for the kids and we use a old recipe and I don't care if I don't have it, we just continue to make it the old way.
  8. Alwayssomething

    Key West Restaurant Recomendations

    It has been 4 years since I was there, but Blue Heaven was great, Satiago's Bodega is a Tapa's place, I ate successfully there, but it wasn't my thing, super busy and crowded and I learned I wasn't a Tapa fan. The best meal I had in Key West and we actually went twice was at the Southernmost Beach Café.
  9. Alwayssomething

    Using FMLA At Work

    I used mine for the first three years I was diagnosed. I used it for several reason, one it protects me legally from a company letting me go if I exceed my sick/personal time off. Some companies even have a max of unpaid time you can take, but the FMLA allows me to use that as well and not be affected. I didn't have a manager that was treating me bad or anything like that, but companies have rules that change all the time and I didn't want to become subject to that. Also due to privacy acts, my manager received a letter with the FMLA dates and approval and I then never had to give any details about my condition or disease if I choose not to. Just keep in mind that because you have FMLA does not mean they have to pay you for time off it just protects you to not be penalized for taking time off. Now that I have my symptoms and condition under control I let my FMLA expire and have not had to use it in years.
  10. Alwayssomething


    Vanicream works great, they have a Vanicream Light as well. I like the regular one best as it goes on nice and thick and isn't oily, it is what my dermatologist recommended years ago and at that time you needed the pharmacy to order it for you. I find it at Target and CVS. My DH did not fully clear until I also changed out all my body products to gluten free as well as followed a low iodine diet (a very helpful tip I found on this site from another DH sufferer).
  11. Alwayssomething

    Vision problems

    I have something that sounds very similar in description to yours, but mine is followed by a headache and was diagnosed years ago as an Opthamalic Migraine. Mine are not caused by gluten. But since I have had celiac my prescription in my glasses has changed every 4-6 months which is rough since glasses are not covered that often, and it isn't cheap to replace lenses either I'm not sure if that is autoimmune related or what.
  12. Alwayssomething

    Gluten and inability to lose weight?

    I actually gained weight after going gluten free, and I eat little to no processed food. But prior to diagnosis I was underweight because I could not finish a meal, I never cleaned a plate or even consumed many ounces of my meal. Every meal had gluten and most of the time I would get sick a few bits in. Now I can actually eat and finish a meal and am probably consuming more calories than I ever have in my life. Now I wish I could loose some of what I have put on, but I figure this is probably where I should have been all along and I stopped fighting it.
  13. I have not been to Panama City in many years, but we were trying to return recently and I did some research. I do not have personal experience but in my trip planning notes I noted these places based on reviews on trip advisor for gluten free food. Andy's Flour Power Firefly Another Broken Egg Cafe Also First Watch is a place we have locally where I live and there is one in Panama City and they do Gluten free well at my local location. Sorry I can't give personal reviews, we like to travel a lot and I usually do a lot of research on Trip Advisor and then check out the menu for the restaurant and then sometimes I even email them with questions about the specific meal I would eat, I print those responses and take them with me so I can ask for that person, and so far only once have I had a failure. BUT I did not do that for these places yet, and right now this location is on our back burner again
  14. In 2011 I started off with Weekly injections, for one month then every other week for 5 months. Retested my B12 was barely in the normal range. Dr stopped the injections to see if my body could maintain (then I would have started oral) but it didn't. I was taught how to do them monthly at home and have been doing that since. My last test my B12 number was right in the middle of the normal range (which is where my dr wants it to be) BUT I had the blood drawn only a week after my injection and that affects it. I normally like to get my blood drawn right before my injection because I feel that is a more true reading. My Vitamin D had to be prescription to get enough and is 5000 IU a week, but it was twice a week and I am just now in the middle of the normal range.
  15. Alwayssomething


    Don't know if you are already doing this, but for me I had to stop wearing certain things to avoid the extensive pain in my legs, arms and even in my hip from neuropathy. I still can't wear some of them without getting a flare. Nothing with elastic in the arms or legs, socks were tough but I just wore the ones that were lower on the foot. This helped a lot! For me seams running up on my hip like in jeans were a huge pain trigger and I had to switch to Columbia hiking pants. Cost me fortune but it was well worth it and after years I can wear jeans again without an issue, although I don't push it and wear them every day. I have been gluten free for 7 years and still have some neuropathy here and there but nothing like before. For me nightshades cause joint issues but not neuropathy. By the way my Vitamin D and B12 are just now in the middle of the normal range where my dr wants them, but I can't stop taking Vitamin D or doing the B12 shots or my numbers slowly drop back down, I don't think I will ever be able to go without.