dani nero

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Everything posted by dani nero

  1. dani nero

    DH Photo Bank

    I thought that a thread containing a collection of the different shapes and forms of DH could be helpful to people looking for something to compare their own rashes with. So go ahead and post your rashes here to help others find a point of reference. Please add associated symptoms and a short history. I am however doubtful of this idea being a good one because some people might add photos that are not related and confuse people who are new to all this. I hope it will be ok and if it's not then it's ok to delete this thread and I apologize in advance ;-) Since I haven't seen a rash that is milder than mine I think that it's actually a proper coincidence that mine is the first one :-) These images were taken when the rash was in it's mildest form. It has sadly developed since these photos were taking, and gets pink swollen bumpy areas under the blisters. It is also starting to spread to the next finger and on the webbing between my fingers. The rash used wake me up at night with a blistery, throbbing, itching, and burning finger when I used to consume gluten. Now it mostly burns whenever it shows up with very mild itching. The water in the blisters is clear. http://rainytown.se/images/external/20120524_065253.jpg http://rainytown.se/images/external/20120524_065311.jpg http://rainytown.se/images/external/20120524_065505.jpg Important: Please note that I'm self-diagnosed, meaning this rash is based on my own speculations based on my symptoms all put together.
  2. dani nero

    First Post

    Starting a blog on this website seemed like a pretty good idea moments ago, but now that I'm posting my first entry, I'm not really sure what to say :-) An intro perhaps? Hi, I'm Dani. I am an illustrator, and I seem to like the idea of calling myself an artist as well! I am a self diagnosed celiac (or at least I think I am). My general health has improved ever since I started the diet, specifically since my periods (which were absent prior to the diet) are regular now! The hardest part of being celiac is that I have been isolated from others, which has resulted in a boring and lonely lifestyle. I believe, however, that I started caring less about that when I realized I could be happy without being surrounded by people, or at least that's what the theory was. Whether it has been verified is a completely different story. The most important thing to me is not to get sick again and not to jump ship no matter what others think or say. This resulted with having less people who enjoy my company, but I'm not going to let that affect my judgement. I guess that's enough blogging for one day. Dani over.
  3. Puppies lick everything. Their fur, toys, furniture, your hands and there is also the accidental lick on the lips when puppy is close and wants to pay respects. My pup usually eats james wellbeloved which is gluten free. She however got ill, and has been prescribed a special type of pet food and a probiotic paste to prevent vomiting.. both contian gluten. I'm in serious distresd as i don't want to live in a house that requires washing my hand after touching... so many things with risk of getting sick if i forget, nor do i wish to spend my days wiping and cleanig to decontaminate. Brushing her teeth after every meal will be too difficult as well since she has to eat a teaspoon of her food every two hours.. that's 7 to 10 times a day. I dont think her tummy can handle the toothpaste .. nor do i have the time either. Please help! Are there any celiacs out there with such issues? How do you manage? My pup is only 9 weeks, very curious and not afraid of introducing her mouth to everything.
  4. I never had stomach pains before going gluten-free. 5 months after going gluten-free however, I experienced a severe pinch/ sting in the very bottom of my stomach (by the pelvis bone) either to the left or right for two days. I assumed the pain was due to being glutened (since others specified that cramps can develop once a person has gone gluten-free). My assumption seemed to be accurate since I would experience those cramps (together with constipation) whenever I ate packed foods, but would not get any symptoms if I simply stuck to dishes which I've made at home from raw ingredients. By packed foods I don't mean chips or tv-dinners, I mean plain nuts, peanut butter, tahini, gluten-free soya sauce, vanilla essence, and things like that. I live in sweden by the way, and many (but not all) manufacturers are not very knowledgeable about cross-contamination. I have called many companies and most of them process wheat or gluten containing ingredients in factories which produce foods that are supposed to be gluten-free. In sweden, most people think that simply not adding gluten to a food is what makes it gluten-free. The thing is, it just seems unrealistic that I'm getting these cramps from almost any packed foods I eat. I'm starting to think it might be something else which is causing them, and that I'm depriving myself from eating many things needlessly. I have already tried so many brands of different foods, and the cramps usually show up. I went to the doctor complaining about these pains, and the man didn't find (or do) anything. My diet is already extremely restricted. I avoid eating sugar, soy, corn, potato, rice, lactose or legumes. I avoid eating them but that doesn't mean that I don't use corn or potato flour/ starch in cooking however. The cramps are not constant. They come and go throughout the day. I would feel a sharp pinch /sting by my pelvis either to the left or right, and my back muscles would be sore as well. They usually last for two days, and I would also experience constipation. I don't know if this is related but I usually get hungry for days once the cramps stop. I'm away visiting family in London right now. I had some marinated chicken from the store the first day I got here which was 10 days ago, and the cramps started the day after of course together with the constipation. They were severe and painful. I was so fatigued I could barely move. I had to use medicine to get my stomach going because nothing else usually works. I had already decided not to cook in someone else's kitchen before arriving here, but I ended up having to do so after what happened with the chicken. As a result, my family were regarding me as an obsessed crazy person because I kept wanting to wash everything before using it, and because I'm always worried about someone dropping something into my food while / before cooking. Just the other day, I found an open bag of wafers lying on top of my cooking things. Exactly why I didn't want to cook outside my own kitchen. I decided as a result to eat only raw foods and spare myself from worrying about people's reactions and absent-mindedness, but I started feeling really faint, so I bought myself some smoked salmon. The cramps persisted. Ouch. I went to the store again and bought nut-oat cookies this time (which also contain corn, tapioca and rice flour).. Not compatible with my no carb or sugar diet but I was really, really starving and feeling lethargic. The cramps seem to be subsiding now, but I can still feel some faint ones in the morning or evening. I am really sorry for mentioning this so please don't read on if you'll get grossed out: I was finally able to get BM on my own without medicine today and yesterday, but it was undigested food. I decided this morning to read the label of the salsa which was the same brand as the one used on the chicken the other day, and I found that it contains wheat.. meaning that I didn't just get cc from the chicken, but a full good dose of wheat. That was 10 days ago however! These cramps could be caused by some other problem that isn't being addressed. My brother thought that they could be caused by irritated bowels, and gave me buscopan. I didn't notice any change after taking it however. I'm begging anyone who has experienced these cramps or might know what could be causing them, heeeelp :-( I need to know if it's possible to be THIS sensitive.. to react to almost anything or if this might be something else. I'm worried that I'm simply depriving myself from sooooo many foods for no reason.
  5. dani nero

    First Post

    Your dog looks like a sweet fella.  Did you start taking the probiotics yet?
  6. Yeah, what is hard for us is people's inability to think before they talk
  7. dani nero

    First Post

    I would have thought that you were already on probiotics :-O If you're not, then I really strongly think that taking probiotics would make a huge difference for you! Celiacs tend to lack a lot of the helpful intestinal bacteria due to the damage their intestines has endured. You should definitely give it a try.    Culturelle does not contain a dozen types of bacteria but it has the smallest amount of additives and ingredients, which is why it is one of the best out there. It was actually recommended by more than one person from this forum, so I'm not the only one using it.  I would recommend that you ask more people though and compare notes.    The link I gave you is just to show you the brand I take, but I wouldn't recommend ordering from that website since they are situated in europe. I order from it just because it isn't available in any swedish pharmacy.    It would be nice to see your dog. I'm not sure how to upload pics to this site, but I know that some people upload their pics to hosting sites like photobucket or something similar then put the links here. 
  8. dani nero

    First Post

    Yeah, why not :-) Sailing looks like a peaceful fun thing to me too, although people say that it's not for everyone.  Hiking is also nice and offers a great workout for the entire body. What type of dog do you have by the way? He probably really loves you for taking him on hiking trips :-) We're having too many ticks in Sweden this year sadly, so I'm avoiding the outdoors. Our area has a high risk of lyme disease too :-(    Thanks again for the compliment by the way. Really made me happy.
  9. dani nero

    Scared

    Oh congratulations :-) I'm happy to hear that it wasn't as bad as you thought it might have been. I think that you did a good job. You were aware that reading about possible diagnoses online would get you more paranoid than logic dictates, and you stopped yourself. Well done :-)
  10. dani nero

    More About Dreams

    I have nightmares about accidentally eating glutinous things, then freaking out about it. I wake up feeling so relieved that it was just a dream.
  11. dani nero

    First Post

    Aww, thanks so much for the kind words Nate! 90% of my drawings / paintings are digital :-)    I agree with all you're saying about life as a celiac.  I stopped bothering with people a while ago as it's not so easy to find and meet new people but I guess that it's something we have to force ourselves to do. Although my husband is really tired of hearing about celiac, he's still incredibly supportive and doesn't bring gluten into the house.    Pets are amazing companions.. They probably keep us from going insane ;-) What social activities have you found? I'm thinking about taking sailing lessons.. and perhaps form a travel-painting group. 
  12. Going gluten free might have adjusted your hormone levels. For me, I never got a period naturally until I went gluten-free. My hormones were all over the place and had settled due to the diet. Could be that the change of chemistry in your body + change of prevention meathod had this result on you.
  13. Probiotics, vitamins, plenty of water, and stick to foods made from scratch which include healthy fats. Let others know what you're going through to have some support, that always helps.
  14. Don't take it heart, and think of it as an experience which will only benefit you the future.
  15. dani nero

    On The Right Track!

    Myfitnesspal counts very few nutrients and isn't enough for an overall picture. There is another one called My Diet, Easy Diet Management which counts everything. 
  16. dani nero

    Scared

    Hang in there Nate and don't listen to those internet demons. They just want to make you worry and feel miserable. Just live normally, and every time you start thinking about this just tell yourself that worrying about it won't make time go faster, and won't help you go through your days until the appointment comes. Let it be business as usual until it's time to deal with this.
  17. I'm not saying that you HAVE to get diagnosed, but that you should think about it and consider it NOW before you go gluten free. Because if you find out later that you should have gotten a diagnosis for any reason, things will be a lot tougher. It's your life and it's up to you how you live it, and that is the same thing the doctors will tell you as well. They will tell you that it's your decision. I'm just saying that you should do some serious consideration, because going on a gluten free diet and detoxing now, then changing your mind later will be very hard on you.
  18. I also understood that you were writing them an angry email. I guess you weren't? :-) Thanks for the warning. I've learned from experience to read every last paragraph on the labels from every side of the package. This will come to you in time. Hang in there.
  19. Why are you mad at them? I love it when companies write the considerate message of processed in a facility that handles wheat. Taking it out on them even though they were considerate won't make your gluten-symptoms go away. Double probiotics and lots of water and rest. Get well soon
  20. dani nero

    Scared

    No point in worrying yourself before you actually see the results. Hopefully it'll be ok :-) Don't worry, try to relax.
  21. Before jumping to any conclusions and assuming that you might be having any other problems, let me point out that if you indeed have a problem with gluten, then it's not uncommon at all to start feeling poorly after the first week. It's probably just gluten withdrawal. Read this post http://www.celiac.com/gluten-free/topic/91878-newbie-info-101/ It's an intro post for celiacs, but the information in it is useful for any person who intends to go on a gluten-free diet. Since you're not diagnosed, you might want to consider taking the blood test or resuming your normal diet before the withdrawal symptoms develop any further. If the withdrawal period passes and you start feeling better again, it will be a real tough experience if you decide to go to a doctor, because most of the tests they will want to perform won't work if you're already gluten free. It'll all come back negative, so they'll ask you to go back to eating gluten, and you'll go through worse symptoms since you've already cleansed your body, and you'll have to go through withdrawal all over. So decide now if you'll want to be officially diagnosed or not.
  22. dani nero

    Do I Have Celiac?

    It's really up to you to find out the amount of gluten you react to. We can't figure it out for you because we can't feel what you feel after consuming cross-contaminated food. The blood test should help you answer that question.
  23. dani nero

    On The Right Track!

    I would advise you to get one of these apps that track how many vitamins and minerals you are consuming daily to make sure your diet is complete and not lacking any important nutrients.  The last thing a recovering celiac needs is malnutrition. Lacking vits and minerals will make you feel like crap both mentally and physically. 
  24. dani nero

    Joint Pain?!

    Yes, it isn't unusual to start experiencing new more severe symptoms after going gluten-free. It could also be however that you have overworked your muscles / joints since you were tired. Forcing yourself into vigorous workouts when your body isn't in shape for it can cause sport-injuries so you need to be careful and choose an activity that is kinder to the muscles and joints.
  25. dani nero

    Do I Have Celiac?

    It's gonna be a tough learning curve in the beginning but will become like second nature as time passes. If I'm about to eat at a restaurant, I first ask them about how they go about preventing cross-contamination. If they don't know what I mean, or tell me that they simply wash the pans that were used to prepare glutinous foods very well, I don't eat there.