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Christine0125

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Christine0125

  1. Christine0125
    Missy - I was 34 with my first bout with optic neuritis (now 43). I'm not sure I really missed anything in the 9 years as I don't have any significant symptoms and sure hope it stays that way as I hear some are symptom free for very long stretches. The things the neurologist asked was any feeling of pins and needles, lack of balance/coordination, any bladder...
  2. Christine0125
    I like the Neurologist ok but have had limited experience with him so I guess you could say the jury is out. I got the impression that he didn't go into a great detail as an appointment with such a diagnosis is obviously overwhelming - what I know is that 8 years ago I didn't have spots and now I do although he said "a couple" so I didn't light up like a...
  3. Christine0125
    I was diagnosed with celiac just over 3 years ago at age 40 but had mild symptoms for years that I brushed off. Symptoms finally intensified and I got tired of bring told I had reflux, a bad gall bladder, hormone fluctuations and asked to be tested for celiac. So darn frustrated to have yet another condition to deal with.
  4. Christine0125
    Anyone else have both? I had my 2nd bout with optic neuritis in late February (ophthalmologist first though uveitis). 1st was 9 years ago and at that time MRI was clear. No other MS like symptoms but MRI showed a couple inflammatory spots enough for the neurologist to diagnose. Hoping that along with the gluten-free diet (which it sounds like many MSers...
  5. Christine0125
    My celiac daughter goes to middle school next year. She does have a 504 but I need to schedule a meeting with the school and determine how to handle as she has some kind of "life skills" class that includes cooking. Following this topic... great ideas.
  6. Christine0125
    Gummy multi-vitamin and gummy probiotic. Her labs were perfect when last checked with this combination.
  7. Christine0125
    I just had optic neuritis in Feb/Mar which causes severe blurriness - this was my 2nd time (1st time was pre-celiac diagnosis). At first the ophthalmologist indicated it was uveitis which can also cause blurriness but when it didn't improve with drops, diagnosed it as optic neuritis. I'm not sure if it's my celiac or something else autoimmune going on with...
  8. Christine0125
    Great info - thanks! I take Culturelle daily. Have you found taking it at night more effective? Do you have a brand of digestive enzymes you recommend? I think I may need to add that to my regimen.
  9. Christine0125
    Any tricks you have for how you narrowed down your intolerances? I'm so bad at keeping a food log. I was diagnosed over 3 years ago and feeling pretty good until recently (with some ups and downs). Now I'm dealing with bloating a few times a week. My doc suggested trying the low fodmap diet but I notice that a lot of the items that many with celiac are...
  10. Christine0125
    Yep - I have online lab results. Like I said, mine have always been normal to high. Last labs showed B12 981 pg/mL range 211-946. Since it was marked as high, I stopped taking the supplement. Trying to be patient - no change yet (but it's only been 24 hours) with the drops.
  11. Christine0125
    Miralax has helped my daughter . Probiotics seem to help me with regularity. So sorry to hear she's suffering so bad and unable to get the necessary tests. What about good old fashioned prune juice?
  12. Christine0125
    Thanks for the link. I had been taking B12 supplements when first diagnosed but my last couple labs showed my levels in the high range and had stopped thinking that I was getting plenty in diet alone. I think I'll start that back up with the history of eye issues I've had.
  13. Christine0125
    Quick update for those following the topic. I just got back from the ophthalmologist and he doesn't think it's optic neuritis this time. He does see a lot of inflammation in my right eye and diagnosed it as uveitis. He says it's common to have uveitis with various inflammatory bowel disorders. I have steroid eye drops that he expects to work pretty quickly...
  14. Christine0125
    Will do! Can you give me a quick list of the foods that you've found to be inflammatory? Up until recently, as long as it was gluten free, I was feeling great! I'm sure coffee is at the top of the list but I'm not yet ready to give that up. EEK!
  15. Christine0125
    Thanks - I hope others chime in as well. Computer screens and bright neon lights (such as grocery stores) are bad. My eyes adjust and feel normal with more dim/natural light or when I'm wearing sunglasses. I did make an eye appointment for this week (I was overdue anyhow). I also happen to have a celiac followup with the GI next week. I've been having...
  16. Christine0125
    9 years ago before diagnosed with celiac I had a case of optic neuritis. My eyesight was completely blurry and required IV steroids. I had follow-up appointments with the neurologist but MRIs did not show signs of MS. After diagnosis, I had done some research and turns out there can be a link between optic neuritis and celiac (auto-immune inflammation...
  17. Christine0125
    My daughter has been diagnosed about a year and half. She's had some continued ups and downs related to the celiac and is currently on miralax as she was getting a lot of stomach cramping/constipation. That seems to have helped a lot with the frequent tummy pain however we're now dealing with a lot of anxiety. She is nervous in any situation where she...
  18. Christine0125
    We do a lot of wrap sandwiches. The Toufayan gluten free wraps are awesome with turkey, provolone, bacon and a little ranch dressing. I also do sandwiches on canyon bakehouse bread, cheese sticks w/ salami and chips or crackers. I usually put a fruit of some kind plus a piece of chocolate or a handful of M&Ms. We order a bunch of nuts and dried fruits...
  19. Christine0125
    Are you using a toothpaste without SLR? I started using one when I suffered from canker sores before my diagnosis based on a recommendation from a dentist. It helped some so I still use it (I believe Pronamel is what I use). I only get them occasionally now and they are far less severe!
  20. Christine0125
    Cruises are great for gluten free! There are even some that leave from NYC and Baltimore. I've cruised 2x since my diagnosis and my daughter has cruised 1x since diagnosis. She's ready to go back - she felt rather special with all the extra attention and desserts made just for her!
  21. Christine0125
    I use Pamela's baking mix which contains almond flour but I haven't ventured into any recipes from scratch. May look into it and do some trial and error during the holidays.
  22. Christine0125
    My daughter was diagnosed 1 year ago and has been gluten-free ever since. We are 100% gluten-free at home and her bloodwork all looks great so I'm fairly certain she is not getting gluten in her diet. The problem is she is still not gaining weight. She dropped off the chart for weight and BMI. We had a follow-up yesterday and her doctor told her to start...
  23. Christine0125
    Anyone use a food log app? There are several out there but would like to hear if anyone uses one in particular (don't want to spend $1.99 if it's a total waste). My celiac daughter is having some ups and downs and I want to try and track her foods so we can look for triggers and I figure it will help when we go for her next appointment in December. I figure...
  24. Christine0125
    She very well could be getting cross-contaminated at the lunch table although she purposely requests no nuts in her lunch so she can eat at the less crowded peanut-free table. We did a 504 plan for her which I could update to have her sit separately although that's a tough call based on the social aspect of elementary school. I'm certain she's not experimenting...
  25. Christine0125
    My daughter is a girl scout. For S'mores, I send her own graham crackers. For burgers & dogs, I send a bun and usually there are chips/fruits/veggies she can eat but I usually have an extra stash just in case. We had a planned overnight this past summer at her summer day camp and although it got cancelled due to a widespread stomach virus, I contacted...
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