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jhol

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Everything posted by jhol

  1. jhol
    hi thats really interesting. i wouldnt say my skin was yellow ,just a slight light tan. its odd coz sometimes i think it looks darker, then others times lighter. i was thinking that its my eyes and im not focusing properly. ive got an appointment next week though so i should get some answers.i think my triggers are tomato,s and chocolate. both things i shouldnt...
  2. jhol
    hi thanks for answering. do you know what foods triggered your rash? are certain foods a trigger or is it different foods for different people? i think tomato,s and chocolate affect me especially my eyes - they go really bloodshot. im not happy about taking medication because i was thinking of trying an elimination diet an im not sure if it will affect...
  3. jhol
    well update on my derm appointment, face rash is rosacea, palm rash is pompholyx eczema, weird knuckle growth is benign knuckle pads-nothing you can do about it. the "tan" thing he,s going to check again when i go back in 8 weeks and when i asked if the rosacea can affect your eyes ( coz ive got an appointment next week)he basically said no. so why...
  4. jhol
    hi looked at symptoms , id say 80% were right but its the skin colouration im not sure about. it says you get patches of darkened skin and its most noticable in the creases - like on your palms, knuckles,knees. theres nothing like that at all. anyway ive got my fingers crossed for friday
  5. jhol
    got derm appointment on fri so hopefully i,ll get some answers about it then. not sure about the addisons didnt quite add up.
  6. jhol
    this is a really interesting thread for me. ive been having trouble with my eyes for over 4 years now. it started with what i thought was recurrent conjunctivitis. then one day my eyes were completely dark red and i went to the walk in center . the doc there sent me straight to the eye hospital. went there 4 or 5 times and they didnt really know what...
  7. jhol
    thanks everyone, this is something ive noticed for a while,sometimes it looks more tanned than others and because ive had a bit of trouble with my eyes (not yellow by the way) i kinda thought it was the lighting or i was imagining it. i,ll check out all the ideas thanks. i have mentioned it to the doc and they did ring me this morning to do another...
  8. jhol
    hi this has been happening for quite a while now,but sometimes im not sure and i think im just imagining it. so some background- i absolutely hate the sun, if its sunny im usually in the house. i would never willingly go out in it unless absolutely necessary. the sun feels like its burning my skin and hurts my eyes.it makes me feel physically sick...
  9. jhol
    hi from what i gathered pre diabetic means im definately on the way to being diagnosed with diabetes. my mum already has it. all my tests have been negative. so no celiac although i know i have a problem with it. my mum on the other hand has all the auto immune diseases associated with celiac and is being sent for a camera down the throat by the doc...
  10. jhol
    look up palmoplantar pustular psoriasis. i think i have this on my palms. its not as bad as some of the pictures show and i dont have it on my feet. ive had it for 16 years and im still undiagnosed!!!! got a dermatology appointment - at last- next week. mine doesnt itch, its just unsightly ,annoying and painfull when it flares up and the skin flakes and...
  11. jhol
    hi everyone this is interesting because i was just gonna start a thread on diabetes. after all the negatives ive received, i just found out ive got to go see the nurse at docs because im pre diabetic. i didnt realise there was a connection to celiac. not even sure what pre diabetic means . ( mum has been diagnosed with it though) guess thats another...
  12. jhol
    hi bartful great minds think alike i forgot about the newbie 101 thread - think i might have another read of it. it can only help.
  13. jhol
    hi there, try not to worry too much, a lot of people go through a withdrawal period when they first give up gluten. this could be the cause of your pain. the other explanation could be contamination. sometimes people react to tiny amounts of gluten more severely once they have cut it out. recheck all the foods that you are eating- make sure they are...
  14. jhol
    thanks for your reply my employer is absolutely not understanding. i go in for the results of the disciplinary on friday. i do have the union to help and ive got an appointment with the doc,s. i was thinking of asking her if she could write a letter explaining whats going on. not sure if it would help though
  15. jhol
    hi, didnt know where to put this thread- so hope its in the right one!. im having big problems at work. disciplinary,s because im not " performing" the thing is out of all the testing ive had done everything has been negative. not celiac, no allergies, no lupus. im at the end of my tether , what can i say to that?. ive got no comeback as to why...
  16. jhol
    hi, not sure if this will help at all- but i react in the same way to dairy. dark repetitive thoughts, i really struggle to get them out of my head even though the sensible me knows ishouldnt be paying them any attention. i dont do dairy now lol. on another note- i started a thread a while ago on the difference between high oleic sunflower oil, and...
  17. jhol
    oh forgot to mention that ive started to "grow" lumps on my middle knuckle of my middle finger. worst on my right hand but my left is starting to go the same way. thats why the doctor tested me for auto immune disease. but the only thing they,ve found is the low b12- dont know if the knuckle thing could be coz of that ?
  18. jhol
    hi thanks for answering i am doing gluten free - since january. i felt fantastic at first then other symptoms kicked in. gave up dairy, soya and nightshades. but any testing i had done was all negative. i still have joint pain and so tired. but now im b12 deficient im now thinking that all my problems are down to that and maybe im not gluten intolerant...
  19. jhol
    so once again i get a negative result!!! not sure how long i can cope with all this .im so fed up at the moment. i dont have lupus but my blood sugar is a tiny bit high ( the nurse said its hardly worth commenting on)- but they are gonna do a diabetes test anyway. my b 12 is low so ive got some tablets to take. when the doc was looking at the computer...
  20. jhol
    kinda got some results, the nurse rang and said some of the tests are borderline and i need to have tests in 6 months, my b12 is low and i have to have tablets for a month to see if it changes. and they couldnt do all the tests coz they ran out of blood??? so i have to go back on tues to have more blood tests!! so i dont know if this happens a lot...
  21. jhol
    yep, ive also tried the nomato sauce recipe, im rubbish with computers so i cant put the recipe up but its easy to find on here. you can use the basic sauce and add beans to make baked beans. tasted ok- an im not that good at cooking
  22. jhol
    hi thanks for answering, im not celiac, all my tests have been negative up to yet. i was 99% sure i was so i went gluten and dairy free anyway. i had about 6 weeks feeling fantastic and its been downhill from there. had to give up nightshade veg as well coz i felt they aggravated my joint pain and made my face and palm rash worse.i even had allergy tests...
  23. jhol
    is there anyone on here that knows anything about lupus? is there some kind of connection with celiac/ncgi? ive googled it and it does seem to cover many of my symptoms including the face rash.just gotta wait for the blood test results now its odd but im so hoping its positive-coz then at least i,ll have some sort of answer and can start to sort...
  24. jhol
    do you eat dairy, a lot of celiacs find they have to give it up or become lactose intolerant. another thing is nightshade vegatables- potato,s, tomato,s, all peppers, aubergine- these can cause joint pain hope you get an answer.
  25. jhol
    hi , i havent been to the site for a while, may have a look later on.the fair doesnt sound good - if you cant get gluten free at a celiac fair where can you get it?? i cant do dairy either or potato-which is in nearly all gluten free goods.its plain wholefoods for me .
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