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JosieToo

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Everything posted by JosieToo

  1. JosieToo
    Would your family go gluten free? When I was diagnosed my husband went gluten-free too. He just said "it's not worth risking your health for me to eat gluten". At minimum, wheat flour in the house is a no go - just way to risky. Does your family understand how dangerous it is for you to get glutened?
  2. JosieToo
    I started having symptoms and was diagnosed with celiac disease shortly after a very bad virus. My doctor said that my celiac “gene” was very likely triggered by the virus and the toll it took on my body. As someone who was previously healthy and had never had any medical problems, it was shocking and scary to think that you can literally wake up one day...
  3. JosieToo
    Call ahead to the venue and see if you can be accomodated. If not, bring a bag of chips in your purse and eat (a lot!) ahead of time. That's what I do! When I explain that I have significant food restrictions, people understand.
  4. JosieToo
    No symptoms doesn't mean no damage. It's up to you to be an advocate for yourself and your children. You need to clearly provide guidelines for her. Make it easy - if she's not willing to buy new cutting boards, etc. (my parents and in-laws keep a box of kitchen-ware especially for me), then bring your own. My husband and I have a "portable kitchen" box that...
  5. JosieToo
    Would your parents be willing to visit with a reputable celiac doctor or dietician who could explain how dangerous gluten is for you, and how to protect yourself?
  6. JosieToo
    My husband went gluten-free at home when I was diagnosed. But, we still eat out. Mostly just "pecks" until full brushing!
  7. JosieToo
    Honestly, in three months eating gluten free will be a breeze. Also, attitude plays a HUGE role in how you deal with celiac disease. For me, it’s really not a big deal. I focus on what I can have, not what I can’t. Others in my circle who suffer from celiac disease are miserable and constantly wasting energy feeling sorry for themselves and lamenting the...
  8. JosieToo
    I wouldn't risk it. It's probably fine, but why take the chance? If there is ANY known potential risk I just don't do it. But I'm pretty much an anti-cross-contamination zealot!
  9. JosieToo
    I've been gluten free since August. As far as I know, I've never been "glutened". Until now? My symptoms prior to diagnosis included anxiety, difficultly breathing (tight throat and chest), heartburn, burning throat and burning eyes. Over the weekend I was out of town and eating in a much less controlled environment. Last night and again tonight I'm experiencing...
  10. JosieToo
    I'm traveling to Ireland in a couple of weeks on a press junket. Basically, we are carted around for four days to different hotels, restaurants and activities to report on them for our respective media outlets. To this end, there is very little flexibility in terms of where we are eating and no ability to "stop the tour" to buy my own gluten-free food. While...
  11. JosieToo
    From my experience, most cruise lines are generally very good when it comes to preparing food for celiacs.
  12. JosieToo
    I'm not sure if it helps, but I went through a similar phase. I became terrified after reading online comments about other "intolerances" and other diseases. I finally went to see an allergist and he told me this. "Some people have Celiac disease and other issues. Most just have Celiac disease.". I would try to avoid any speculative and anecdotal commentary...
  13. JosieToo
    Of course. I'm just looking for opinions from other members based on their experiences.
  14. JosieToo
    Hi all, I’m on a few other forums for people with Celiac Disease and I am frequently concerned by the misinformation about the disease, its treatment and the intricacies of going gluten free. I would like to put together a “first steps” guide to Celiac Disease for those who have been newly diagnosed. I would love to hear your “best practices” with r...
  15. JosieToo
    Have been gluten free since August 27th. Last two nights I’ve had what seem like allergy-symptoms. During the day when I’m out I’m fine. It’s after I eat dinner at home. Aside from shellfish, I have no known allergies and have never had seasonal allergies. Both times seem to come on in the evening and I wake up the next morning stuffed up. Burning eyes, s...
  16. JosieToo
    Thanks. She's one of my country's leading dieticians with a specialty in Celiac Disease, so I'm hopeful she'll be knowledgeable.
  17. JosieToo
    Hi all, I'm meeting a dietician tomorrow. This will be my first meeting with a dietician since being diagnosed with Celiac. I've put together this list of questions for her, but wondered if anyone else had any suggestions for good questions to ask (or that you might like an answer to!). Here's my list! Feedback appreciated. Are there any foods...
  18. JosieToo
    Yes, you can get itchy eyes from eating gluten. Ask me how I know. I've found that since I've removed gluten from my diet, I no longer have this issue.
  19. JosieToo
    So, I thought that Kraft Creamy Cucumber dressing was on the a-ok list. However, my mother just spoke to Kraft and they said that anything that says "spices" on the label should be suspect. Does that gel with what everyone else understands?
  20. JosieToo
    Thank you very much!! That is helpful. This newbie appreciates it!
  21. JosieToo
    I can find no credible evidence that confirms or even suggests that the use of wheat-containing cosmetics and related products (shampoo, face creams) can cause a reaction in people with Celiac disease. The closest I could find was a theoretical risk with lipstick/lip balm - but even that seemed sketchy at best. I've replaced my lip products as a precaution...
  22. JosieToo
    Recall in Canada Open Original Shared Link
  23. JosieToo
    Thanks. Just diagnosed and I'm a pretty Type A person - who wants to get things done!!
  24. JosieToo
    Hi all, I've recently been diagnosed with Celiac and am basically a sponge for knowledge at the moment! Sorry for yet another question! I keep reading about other food intolerances and allergies in people with Celiac disease. Are these issues that were present before Celiac or because of Celiac? In other words, is there a higher likelihood of developing...
  25. JosieToo
    Sausages, sauerkraut, grilled peppers, spinach salad. Mmmmmm.
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