Jump to content
  • Sign Up
Celiac.com Sponsor:


Celiac.com Sponsor:

Rate this topic

Recommended Posts

Hi all,

 

I'm meeting a dietician tomorrow. This will be my first meeting with a dietician since being diagnosed with Celiac. I've put together this list of questions for her, but wondered if anyone else had any suggestions for good questions to ask (or that you might like an answer to!). Here's my list! Feedback appreciated.

 

 

  • Are there any foods that are known to aid in healing of the intestinal lining in Celiacs? If not, are there any foods in particular that are generally known to aid in healing? Are there any foods known to reduce inflammation associated with Celiac Disease?
  • What nutrient and mineral deficiencies do I need to be particularly aware of and what foods should I be eating to guard against them? What about probiotics or digestive enzymes?
  • Are there any vitamin or mineral supplements you recommend?
  • We are hoping to try and have a baby in the near future. I would like to make sure my body is as healthy as possible. Given the larger-than-normal risks for nutrient deficiencies due to malabsorption from Celiac, and lack of eating fortified foods like pasta, what foods should I be increasing in my diet? Should I be considering any gluten-free supplements? If so, which do you recommend? If I become pregnant, are there any other dietary changes I should make at that time?
  • How many times a week should I be eating “safe” grains like quinoa and brown rice?
  • I understand that a large number of people with Celiac disease develop temporary lactose intolerance as a result of the damage to their stomach lining. Is this something I need to be concerned about if I don’t seem to have any symptoms? What are your recommendations in this regard? Should I be tested for this?
  • I’m concerned about weight gain. Is this something that I need to be worried about if I’m eating a healthy diet with a limited amount of processed gluten-free food? Is it likely I would gain weight just given normal nutrient absorption I would expect to experience as I start to heal?
  • I’ve read that other foods like corn and soy can have a similar effect on your body to wheat. Is this the case? If so, will I put myself at further risk if I continue to eat these foods?
  • In your experience, is there any merit to the idea of “gluten cross reactivity” with other foods? From what I understand, testing for this is highly controversial and there is little scientific evidence to back this theory.
  • In your experience, is there anything to the “rotation diet” as a mechanism to prevent additional food allergies from developing?
  • What’s your position on smoothies? Good for fast absorption, or lacking important fibre and too much sugar going too quickly into the bloodstream?
  • How do you feel about oats (certified gluten-free) and other grains in early stages of healing from Celiac?
  • Is being hungry often a symptom of malabsorption?

 

 

 

Share this post


Link to post
Share on other sites

that seems like a good list, josie - i am curious as to how many answers you will get from him/her.  i was recommended to a dietician/nutritionist but it was going to be like 3 weeks before i could get in for an appointment.  i had to feed myself in between that time and then the day before my appt, they postponed it!  by that time, i was already here and learned on the way.....  so, i cancelled the appointment.  but i am still curious!  let us know what they say/how well versed they are in regards to celiac :)  good luck!

Share this post


Link to post
Share on other sites

that seems like a good list, josie - i am curious as to how many answers you will get from him/her.  i was recommended to a dietician/nutritionist but it was going to be like 3 weeks before i could get in for an appointment.  i had to feed myself in between that time and then the day before my appt, they postponed it!  by that time, i was already here and learned on the way.....  so, i cancelled the appointment.  but i am still curious!  let us know what they say/how well versed they are in regards to celiac :)  good luck!

 

Thanks. She's one of my country's leading dieticians with a specialty in Celiac Disease, so I'm hopeful she'll be knowledgeable.

Share this post


Link to post
Share on other sites

My first question would be ~ How many celiacs have you counseled.  You said she specializes so you may be ahead of the ball game there.  My experience was being handed a stack of papers from the internet. 

Share this post


Link to post
Share on other sites

Hi Josie!

I know it's been 5 years since your post. I am freshly diagnosed and meeting with a nutritionist this week. I read a few books and came up with a list of questions really similar to yours. What were the responses to these questions? Do you have any recommendations for a newly diagnosed celiac?

Sincerely,

Lauren

Share this post


Link to post
Share on other sites
50 minutes ago, GlutenFreeDonutPrincess said:

Hi Josie!

I know it's been 5 years since your post. I am freshly diagnosed and meeting with a nutritionist this week. I read a few books and came up with a list of questions really similar to yours. What were the responses to these questions? Do you have any recommendations for a newly diagnosed celiac?

Sincerely,

Lauren

Hi Lauren, (gfdonutprincess)

Josie hasn't been on the forum since 2015.  So you probably won't get a response from her.  Also, she is not following this thread, so she won't get a notice that someone posted in it.  You can tell that by looking at the small round circle near the top right of the thread title.  There is small circle with a number that indicates how many people are following the thread.  If you click the larger green circle you can add a subscription to the thread yourself.  The small number shows how many people are subscribed to the thread.  Right now it has a "1" in it because I just subscribed to daily updates on this thread.  If Josie had done that some years ago she would get an email message automatically that someone posted in her thread.  But alas...

I think Josie's questions are really good ones myself.  I am curious if she was talking about Trish Thompson, who is a well known dietician with celiac knowledge.

Now you know and can sleep soundly tonight! :)

Oh, you could send Josie a PM if you like.  I am not sure if that is allowed for new members right away though. :(

Oh, please check out the Newbie 101 thread stickied to the top of the "Coping With" forum section.  It has good info for starting the gluten-free diet.

Edited by GFinDC

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


×
×
  • Create New...