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moosemalibu

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moosemalibu last won the day on April 25 2014

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About moosemalibu

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    Moderator

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  • Gender
    Female
  • Interests
    weight lifting, cycling, swimming, kayaking
  • Location
    Northern California

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  1. icon cyclinglady reacted to a post in a topic: Testing and Low BP
  2. moosemalibu
    I also have orthostatic hypotension and I was sedated for my endoscopies (have had 2) and colonoscopy. Certain sedatives/anesthetic drugs decrease blood pressure more than others and some have very transient changes. Discuss the anesthetic protocol concerns with your doctor. They may find a cocktail...
  3. moosemalibu
    Sorry to hear of your woes! Ask your doctor regarding tests for your gall bladder and perhaps discuss possibility of colitis? If they ran the correct Celiac panel and your biopsies look good it may not be Celiac. But 2 biopsies is not a lot but for some reason most doctors don't do a large portion...
  4. moosemalibu
    I just got a zojirushi bread maker as a wedding gift. I made my first loaf today. The flours I used were sorghum, rice bran, brown rice flour, along with corn starch, xanthan gum, yeast, molasses, honey, salt, eggs and water, vegetable oil. I used a recipe from a gluten free bread machine recipe...
  5. moosemalibu
    OMG - I don't know why I don't get notifications on comments. To answer your question - I am extremely dietery compliant and my celiac panel ran in April was totally great, all low low low. I make all my own food and I don't eat out in restaurants. Too risky for me. I have been having chronic isues...
  6. moosemalibu
    I am thinking that the inflammation in the gut alone could probably cause pain that could be interpreted as back pain. I have had back pain for a lot of my life - the only thing that helps is working out my back specifically with weights. My weight lifting and celiac diagnosis kinda coincided around...
  7. moosemalibu
    Well... yesterday I had my second endoscopy performed. My GI doctor wanted to check up on my small intestine to see how its healing, as well as check my esophagus to rule out eosinophilic esophagitis. He took multiple biopsies and said my SI looked atrophied but otherwise I looked good. The combination...
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  10. moosemalibu
    I am a week into my Entocort steroid therapy for microscopic colitis. I can say that I have no discernible side effects from this drug. It has slowed down my bowel significantly. I am no longer running to the bathroom 8-10x/day. I probably go about half that amount now. The quality of the bowel movements...
  11. icon moosemalibu reacted to a comment on a blog entry: Budesonide For Mc
  12. moosemalibu
    I started budesonide treatment today. I wrote another blog post if you are curious! ;) Thanks for asking!
  13. moosemalibu
    Thanks!! I am excited for a positive change in health status! :)
  14. icon moosemalibu reacted to a comment on a blog entry: Budesonide For Mc
  15. icon moosemalibu reacted to a comment on a blog entry: Budesonide For Mc
  16. moosemalibu
    I saw my GI yesterday. He and I agreed to start me on Entocort EC/Budesonide medication. It is a slow release 3mg capsule that is not dissolved by the stomach pH and instead gets broken down and absorbed in the intestines. It is supposed to have a local effect versus systemic and is considered safer...
  17. moosemalibu
    Sadly just had gluten free chicken strips and oreida fries for dinner tonight. We ran out of Thanksgiving leftovers and have yet to venture into the grocery stores to replenish.
  18. icon moosemalibu reacted to a comment on a blog entry: Yup... I Have Microscopic Colitis
  19. icon moosemalibu reacted to a comment on a blog entry: Yup... I Have Microscopic Colitis
  20. moosemalibu
    Thankfully my doctor double-booked my appointment into his schedule and will see me tomorrow!
  21. moosemalibu
    I just got the message from my doctor that I have microscopic colitis. I had a colonoscopy last month with biopsies. The colonoscopy prep was not nearly as bad as what people have told me it would be. Honestly the best part of my experience was the prep. The scope was not so great - I woke up several...
  22. icon moosemalibu reacted to a comment on a blog entry: Colonoscopy
  23. icon moosemalibu reacted to a comment on a blog entry: Colonoscopy
  24. icon Scott Adams reacted to a blog entry: Colonoscopy
  25. moosemalibu

    Colonoscopy

    moosemalibu commented on moosemalibu's blog entry in moosemalibu's Blog

    thanks! I appreciate the hugs. :)
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  28. moosemalibu

    Colonoscopy

    moosemalibu posted a blog entry in moosemalibu's Blog

    Well... my diarrhea has continued and not improved despite resolution of most of my other celiac symtoms. I'm going in to be tested for microscopic colitis next month. I just want to have a normal phucking bowel movement. It's been soo long I don't even remember what one looks or feels like! Hoping...