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      Frequently Asked Questions About Celiac Disease   04/07/2018

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

cap6

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cap6 last won the day on March 25 2016

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About cap6

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    Diagnosed 3/3/2010. Well & loving life with partner of 20 years and 4 furkids.
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  1. cap6 started following Ferritin, Desperately Seeking help or advice, Gluten Free In Hawaii and and 7 others
  2. When I was flying and visiting my Dad, I was faced with a shared kitchen situation. Dad was a gluten lover so his kitchen was a danger zone. I would claim a small shelf in his refrige, put down paper towels and then then my stuff on top. Cooking in his micro was a celiac's worst nightmare! I brought my own containers and then wrapped them tightly in paper towels before putting in the micro. Same with a small counter space. I put down paper towels & stacked my stuff on top. I covered everything with another layer of paper towels as Dad liked to pick things up with his gluten fingers. ha Me and the paper towels - best friends! Sounds like you are aware so purchasing the few new items for your child shouldn't be a problem. Red toaster for the child!

  3. Gluten Free In Hawaii

    cap6 replied to dmb2151's topic in Gluten-Free Travel

    This was an older posting so most have probably moved on - but alm260 may be back. Hawaii is an easy place to be gluten-free. If you have a kitchen hit the nearest Costco and load up on your meats, veggies etcs. Their prices are much better than local grocery stores. Check out local farmer markets for some awesome fruits and veggies. Also most nicer restaurants have gluten-free options.
  4. At Disneyland I found even the "fast food" places to have gluten-free options. They were awesome!
  5. In the beginning it is difficult and many people don't get it. I give a quick, brief explanation and then let it go. Again, I use the words "similar to a food allergy" as that is what people understand. If someone asks about my symptoms I just say "it's not pretty" and if they push I tell them we'll talk later and change the subject. The hardest for me has been a group I belong to and our monthly pot lucks. I always take something and eat my own. Most of the women know I am celiac but they still come up and let me know that their contribution is gluten free and to be sure and try some. I've come to the place where I just smile and say "thanks for thinking of me": and then do my own thing. Bottom line - most people are just trying to understand, they don't get it and why get upset. Give the basics that they might understand and then Life is Good. Sometimes someone is struggling themselves and really wants more info which is when it is appropriate to have a more private conversation with just that person. Not discussing my poop & vomit at a dinner table! Well, one could....... lol!
  6. I agree - not all food with a warning label "made in facility...etc" are bad. It could be the veggie itself. Some people can't tolerate night shade, for instance. Also, was it a pure veggie or were there other ingredients. When you add sauces/spices and such is where you can run into trouble. When eating out I usually look for a place that have a gluten free menu or a higher end restaurant that has a chef as opposed to a cook. Big difference. A chef once spoke with me and explained the difference. A cook just prepares the food. A chef looks at a food "allergy" as a challenge to make the meal perfect. Also, I use the words "food allergy". We all know celiac is not an allergy but the food industry understands when you say "this is a food allergy and I can't take chances". Give yourself a chance to heal. You mentioned that you are newly diagnosed. In the "new" stage sometimes anything and everything will bother you. Your body needs time to heal and adjust. And not just weeks, but more like months.

  7. Sex

    cap6 replied to Jocelyne's topic in Gluten Intolerance and Behavior

    kissing, if he/she ate gluten first then yes. Other areas - no.
  8. Foreign Lady ~ Easy does it. We can all run on a short fuse when stressed and I expect that with a new food prep issue you are beyond stressed. When I first started out I couldn't understand how one little tiny crumb could possibly hurt. But it does. That said, I know you will do everything you can to keep your little one safe. Slow. Slow. Take it each day at a time. You'll screw up. We all do. At 8 years g.f. I've screwed up. Personally, I would try to do as much gluten free for the entire family as possible. Obviously some "gluten-free" speciality items are going to be expensive and that's when you could do separate meals, reg pasta for everyone and g.f. for your daughter. In the beginning try to go as simple as possible. Less stress!! Grab some g.f. crackers for all the kids. Peanut butter (check the label!), veggies, eggs, meat, cheese - all the good stuff for snack that are g.f. Try, if you can, to stick with whole foods. When you add all the ingredients, sauces etc is when you run the risk of gluten having been added to a product. One meal, one day at a time. And the best to you and your family
  9. Gluten withdrawal is very real. The length of time varies from person to person. How long were you sick, how severe, your age. All factors. Give yourself a couple months. I would also cut out processed foods, at least until you heal. Pure, whole foods are best. If it has ingredients - stay away.
  10. Have your iron levels been checked.
  11. Very interesting post! When first diagnosed my ferritin levels were so low they talked about iron infusions. Lucky to bring it up to acceptable levels with prescription iron supps. On and off through the years I would feel the old tired feeling and go back on the iron supps. Flash forward 8 years and I had those old tired feelings again so went in to have my irons levels tested. This time my ferritins were 1200, normal should be about 50. Seems I have genetic hemochromatosis, an inherited disease (a gene from each parent) where my body keeps on making too much iron., Now I have to go in for weekly bloodletting of 1 pint a week until the levels go down , then monthly maintenance blood lets for life. All of this said, I would find a good hematologist to assist you. Don't mess around with iron!
  12. There are some that may not agree with me, however, here goes...... Beans (lentils included), oats, quinoa can be difficult to digest. They can also cause glycemic spikes. I am not saying not to eat these items, just be aware, especially if you are fairly newly diagnosed. Eating difficult to digest foods can cause glutened type reactions. Everyone is different and our reactions are all different. 8 years and I still can't eat oats. It took me (and I am older......) about 3 years before I could eat beans without the "glutened" feeling.
  13. Some time back I met an elderly lady that was one of the banana babies. She had recently been rediagnosed with celiac. It is amazing at the strides that have been made in just the 8 years since I was first diagnosed. Hope for the future that as many won't endlessly suffer.
  14. As was explained to me - Your gut heals and yes, you probably could eat gluten again and not feel any ill affect, for a while. However....! The damage is starting all over again. Like picking a scab off of a sore. Sort of a nasty comparison but accurate. Celiac never goes away. Google the banana babies. Very interesting as it fully explains why celiac was once thought to be a childhood disease,

  15. Ovens?

    cap6 replied to lilo's topic in Celiac Disease - Coping With

    I wouldn't worry about the oven. We moved in a rental house short term while waiting for our current home to go through and I wiped out the oven and then used it. No problems. When visiting a friend who cooks pies all the time I just pop a loose piece of tin foil over my stuff. I think covering the stuff is more for my mental health than anything else!
  16. Wouldn't! Couldn't! Shouldn't! Oh my! I hear what some are saying about keeping areas clean, but no way. I get not wanting to cook for a big group but a couple pretty easy, and cost effective, thoughts are a simple crock pot or two of chili, taco bar, potato bar or a salad bar. I just did a Xmas party for 22 people, only 4 of us are gluten free, and did crock pots of chili. for bread I bought gluten free hamburger buns, sliced them and then quartered them. It made great bread garlic bread..