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cap6

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cap6 last won the day on July 1 2019

cap6 had the most liked content!

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Profile Information

  • Gender
    Female
  • Interests
    Diagnosed 3/3/2010. Well & loving life with partner of 20 years and 4 furkids.
  • Location
    Oregon

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About Me

Diagnosed March 3, 2010 at age 59. Have had issues on and off all my life and it feels so good to finally feel good!

Also struggle with Inherited  Hemochromatosis.

Retired after 20 years from Social Services

Daughter age 42 has RA but son age 38 has escaped it all. Both have also been tested for Hemochromatosis

Live a traveling retired life with a partner and four dogs.

Life is Good!

  1. I use Simple Green but honestly, I do not know of a product that does have gluten. You're pretty safe in this area!
  2. It sounds like you have made your decision and all I can do is wish you luck. You already have multiple autoimmune diseases, why take the chance of collecting more? I speak from eight years of experience. It is quite easy to eat gluten free and no more expensive than any other "diet". It's all in what you choose. You said you prefer processed foods...
  3. We used to eat at our local Road house and they had a gluten free menu. That, however, was about four years ago. They suddenly canceled the g.f. menu and said that they "tried" to keep things gluten free. I'm thinking maybe they had too mkany people complain?
  4. The purpose of this little story is to give you all a smile and to say gluten lurks everywhere, even where we least expect it! We live in a rural area with a lot of wild creatures close by. Yesterday a raven flew overhead and dropped a piece of whole wheat bread, smack, in the middle of our small doggie yard. We saw the raven fly over and we saw it...
  5. When I was flying and visiting my Dad, I was faced with a shared kitchen situation. Dad was a gluten lover so his kitchen was a danger zone. I would claim a small shelf in his refrige, put down paper towels and then then my stuff on top. Cooking in his micro was a celiac's worst nightmare! I brought my own containers and then wrapped them tightly in paper...
  6. This was an older posting so most have probably moved on - but alm260 may be back. Hawaii is an easy place to be gluten-free. If you have a kitchen hit the nearest Costco and load up on your meats, veggies etcs. Their prices are much better than local grocery stores. Check out local farmer markets for some awesome fruits and veggies. Also...
  7. At Disneyland I found even the "fast food" places to have gluten-free options. They were awesome!
  8. In the beginning it is difficult and many people don't get it. I give a quick, brief explanation and then let it go. Again, I use the words "similar to a food allergy" as that is what people understand. If someone asks about my symptoms I just say "it's not pretty" and if they push I tell them we'll talk later and change the subject. The hardest...
  9. I agree - not all food with a warning label "made in facility...etc" are bad. It could be the veggie itself. Some people can't tolerate night shade, for instance. Also, was it a pure veggie or were there other ingredients. When you add sauces/spices and such is where you can run into trouble. When eating out I usually look for a place that have a...
  10. kissing, if he/she ate gluten first then yes. Other areas - no.
  11. Foreign Lady ~ Easy does it. We can all run on a short fuse when stressed and I expect that with a new food prep issue you are beyond stressed. When I first started out I couldn't understand how one little tiny crumb could possibly hurt. But it does. That said, I know you will do everything you can to keep your little one safe. Slow. Slow. Take...
  12. Gluten withdrawal is very real. The length of time varies from person to person. How long were you sick, how severe, your age. All factors. Give yourself a couple months. I would also cut out processed foods, at least until you heal. Pure, whole foods are best. If it has ingredients - stay away.
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