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cap6

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cap6 last won the day on July 1 2019

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  • Gender
    Female
  • Interests
    Diagnosed 3/3/2010. Well & loving life with partner of 20 years and 4 furkids.
  • Location
    Oregon

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About Me

Diagnosed March 3, 2010 at age 59. Have had issues on and off all my life and it feels so good to finally feel good!

Also struggle with Inherited  Hemochromatosis.

Retired after 20 years from Social Services

Daughter age 42 has RA but son age 38 has escaped it all. Both have also been tested for Hemochromatosis

Live a traveling retired life with a partner and four dogs.

Life is Good!

  1. I use Simple Green but honestly, I do not know of a product that does have gluten. You're pretty safe in this area!
  2. It sounds like you have made your decision and all I can do is wish you luck. You already have multiple autoimmune diseases, why take the chance of collecting more? I speak from eight years of experience. It is quite easy to eat gluten free and no more expensive than any other "diet". It's all in what you choose. You said you prefer processed foods...
  3. We used to eat at our local Road house and they had a gluten free menu. That, however, was about four years ago. They suddenly canceled the g.f. menu and said that they "tried" to keep things gluten free. I'm thinking maybe they had too mkany people complain?
  4. The purpose of this little story is to give you all a smile and to say gluten lurks everywhere, even where we least expect it! We live in a rural area with a lot of wild creatures close by. Yesterday a raven flew overhead and dropped a piece of whole wheat bread, smack, in the middle of our small doggie yard. We saw the raven fly over and we saw it...
  5. Since moving to Central Oregon we eat out more than in the past, mainly because we have to drive 30 minutes to get to the next "big" town and like to indulge in a lunch out. That said, we have found more and more places that offer a separate gluten free menu which makes it so much easier. Even when ordering off of the g.f. menu I always state "I am ordering...
  6. This is something learned with experience. You may want to go with a simple coffee that offer less chance for cross contamination. Starbucks offers so many different drinks and do not "celiac" wash the equipment.
  7. I always say "allergy" as the establishment will take extra precautions. A lot of people eat g.f. by choice or have gluten intolerance and maybe don't have to be as careful . It's just easier to say "allergy".
  8. Again it is so different with everyone on reaction time. The first couple of years for me I swear I could feel it hit my gut almost immediately, now it takes a few hours.
  9. Everyone reacts slightly differently. Everything you describe sounds quite normal for a glutened reaction. For myself, I feel slightly sick to my stomach, then I get diarrhea, followed by cold, clammy sweaty chills, then comes the vomiting and think I am going to die followed by passing out followed by several days of constipation. This is followed by renewed...
  10. Oh my!!! Don't think I will risk voicing my concerns about all of the unhealthy ingredients that were consumed and that could have caused the problems or that we shouldn't blame the slightest thing on cross contamination. Nope. Keeping my mouth shut here.
  11. All of the above is why I really push for eating whole fresh foods. Nothing processed. There should be no ingregient list to read. Healing is hard enough without subjecting our bodies to other ingredients that don't belong in our food. Heal first then try adding a food product. Just my little food rant for the day!
  12. Barilla is safe and most likely it was was of the other ingredients in it that bothered you. Possibly even the brand of pasta you used. Corn based pasta can be difficult to digest. Just a thought.
  13. I like the picture suggestion! Like, why didn't I ever think about that!!! We just moved to a new state which means new health insurance so I will prob start this over again - this time with pics.
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