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kabons

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About kabons

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  1. Hey there, I call it "having the cereals"... when my stomach has been sick (likely from gluten issues), I can't stomach anything but dry gluten-free cereal and smoothies. Sometimes for days. It can take a long time to feel normal again!
  2. Hi there, This won't be helpful in terms of your questions... but I'm disappointed on behalf of your family that your naturopath didn't suggest Celiac testing before having your daughter go gluten-free. Especially since you found a link between gluten and her pain?
  3. Hi Chris, Have you been tested for Celiac?
  4. Hi there, Have you noticed severe reactions to gluten after eating it? If not, I would encourage you to do a gluten-challenge and get tested. If you are symptomatic, the reactions will often get worse the longer you avoid gluten, and it will become more difficult to ever do the tests. The benefit of finding out for sure if it's celiac is you will know whether to just avoid, or make major changes for your long-term health.
  5. Thanks for your response! I guess my story is more complicated than just a 'diagnosis'. I had very typical celiac symptoms for years and finally got a blood test taken for celiac (back in 2015). By that point it was pretty obvious to me that I was reacting to gluten and stopped eating it. My blood tests came back mixed- one was very positive, the other negative. By the time I saw a gastroenterologist, I had been on a gluten-free diet for 6mos or so. He basically said that based on my symptoms and the blood test I likely was Celiac, but he couldn't confirm it. I refused to eat gluten again to have the scope done. So, it never made it to my medical records... I don't get any support from doctors, follow-ups etc.
  6. Hey everyone, So, I was diagnosed about 5 years ago and ever since have been sharing a kitchen with 2-3 other single girls. I have never made the effort to switch out any utensils etc. in the kitchen because it felt too overwhelming. However, lately I've been trying to think about it more as I continue to have lots of digestive issues/stomach pain and I'm wondering if I should be more careful. The meals we share are gluten-free but my roommates occasionally prepare their own food that has gluten- we use all the same utensils, appliances, and even sink cloths/sponges. My symptoms when I accidentally eat food containing gluten are quite severe. However, I don't really know how cross-contamination affects me so I've never worried too much about it. Anyway, my two questions are as follows: 1. How necessary is it to use separate kitchen utensils? What is the science behind this? 2. If I need to have some dedicated utensils, what are the worst culprits that I can start with?
  7. Hi everyone, I hope you're all having a better Tuesday than me :P. So after nearly 2 years of knowing that I am most likely Celiac, I have narrowed down my reactions to gluten into three categories. 1. When I realize I accidently ate a significant amount of gluten. Symptoms are pretty immediate and almost identical to the stomach flu- vomiting, terrible stomach pain, body aches, lower back and knee pain, headache and stiffness, diarrhea. This will usually last about 24 hours before I can start trying to eat food again. 2. When I realize I ate a small amount of gluten (i.e. a hidden ingredient in something). The most prominent symptom here is a burning pain in my lower abdomen. 3. When I know I must have eaten something off but cannot identify it. This is usually a more mild version of 1 and 2. Mostly nausea, tiredness, stomach discomfort, and a ridiculous amount of terrible smelling gas. Today is a number 3 day. It has felt like my stomach has been constantly churning all day. I keep on feeling like I'm finally going to poop but then it's just gas. Just like the rest of my symptoms, I have absolutely no idea what to do for this! Are there any products you guys could recommend for settling my stomach and relieving the gas? Also, if you have any suggestions for #1 and 2 I would so gladly appreciate it! Doctors have been thoroughly unhelpful with symptom relief. "Just don't eat gluten" is their suggestion. If only they knew how it feels to get glutened... Thanks guys! Kristen
  8. I was diagnosed 4 months ago, but have been gluten free for about 10 months. I think I am finding that my sensitivity is getting more intense, which sucks. One positive thing (ish) is that I think I am understanding my body more in terms of how I react. Although, it's a little different each time depending on different factors, especially how much I've eaten. And over time the symptoms have changed too. But lately I've been experiencing an intense pain when I accidently eat something with even a little gluten in it (ie flavouring with barley). Anywho, I'm really curious what 'glutening' pain feels like for other people. People often talk about the sickness associated with it (which i definitely also get) but not as much the outright pain. For me, the pain is a stabbing/cramping pain in my lower left side, which sometimes switches btw the right and left. I also feel it at my sides and sometimes lower back. It almost feels like it's in my ovaries (I also have endometriosis so I'm pretty aware of the presence of those guys). It throws me off because it seems like such an odd location for me to be feeling it. Is this normal!?
  9. I'm 20, a student, and I've been seing a naturopath since September. Long story short, I went off gluten initially to treat my endometriosis and figured out in the process that I react strongly to gluten. Realizing that explained a few years of symptoms, this past year being the worst: - stomach cramping/bloating/gas/nausea/loss of appetite - acid reflux - horrible joint pain - crazy unexplained weight loss (I think I've lost about 35ish lbs now) - exhaustion - numbness/tingling in my toes - headaches - bad canker sores - low iron and B12 (as I figured out a few months ago) - muscle cramps and spasms - brain fog and concentration issues etc, etc. My naturopath eventually decided it was pretty probable I had celiac, especially since I responded to a gluten-free diet. So I went back on gluten for 2 weeks (which ended up being completely brutal) and got tested. The blood results came back this week. The tissue transglutaminase IgA was negative, the deamidated gliadin IgG was positive, (66.7... reference range <12, whatever that means). So, now she's going to get me to go find a GI to get the endoscopy.... but I'm really not feeling it. The thought of having to go back on gluten again (now I've been off it a month again) is really sickening. I don't think I can physically do it. What do I do? Do I really need a diagnosis?
  10. This is the first time I’ve ever written all of this out, which may end up being therapeutic for me. I’m 20 years old. When I started university two and a half years ago I started to really struggle with stomach pain as well as extreme fatigue (I could sleep all day and not feel rested). I think I mostly ignored these symptoms until the end of my second year when I started to lose a lot of weight unintentionally and rapidly. I lost 20 pounds in four months and was starting to also notice I had less of an appetite. The tiredness was still an issue, I could never make it through a day without having at least one nap. I also started to struggle with frequent headaches and occasional numbness in my toes. It was around this time that my periods started to become pretty severely painful . Five months ago (the beginning of this school year) I started to really struggle with a multitude of symptoms. Between the severe pain, nausea, fatigue etc. associated with my period and the digestive issues, headaches, toe numbness, chills, canker sores, loss of appetite, weight loss, and pelvic pain I was experiencing off my period- I was a constant mess. I had lost about 40 pounds at this point and was sick and tired of being sick and tired. So I started seeing a naturopath. Four months ago she started treating me at first for what she strongly suspected was endometriosis. She got me on a lot of supplements and had me start an anti-inflammatory diet. Among the things I needed to cut out was gluten. It has been stressful to be a student trying to live on such a strict (and expensive) diet. But initially I saw a lot of my symptoms start to go away. About a week after I started the diet, though, I started to get intense joint pain in my legs. I asked my naturopath about it and she said it could be my body detoxing from foods that I was actually intolerant to. Over Christmas (three months after I started the diet), I tried really hard to be good but slipped a few times on the diet (ate some dairy and some wheat crackers). I found my body reacting a lot and the joint pain started again, as well as pounding headaches and stomach aches. I had diarrhea for a few days and the joint pain has lasted two whole weeks! I was encouraged that I thought I found out that gluten was the culprit for at least some of my symptoms, but now I just don’t know. Why is the joint pain so persistent even though I’ve been so good with the diet!? Did that one slip up do this? Man, suffering with endo is enough without these constant, unexplainable digestive issues. To be honest, it’s becoming quite depressing. I’ve lost so much weight I barely recognize myself, I feel sick virtually all the time, I deal with so much pain from my periods and now I have constant knee pain off my periods! It’s really just too much sometimes. I don’t like to complain, but it seems like every day I’m suffering with a new symptom. It’s not fun for me and it’s not fun for the people who love and care about me. Sometimes I just feel like a huge burden. Could gluten still be the culprit? What steps should I take next?
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