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About Me

I'm a professional engineer, diagnosed with Celiac disease August 17th 2019.

  1. I'd love to see some survey's from this site and publish the data from what the celiac's on this site think about stuff like this. Like how often do they think they get gluttoned or how long do problems last when they do. 1000 people can't all be wrong...
  2. About once a month I get diarrhea for a couple days along with a lot more pain. The only thing I can think of is that either I get something like Crone's or something acting up or I'm get glutened somehow. My question is how long do episodes typically last when you get glutened? For me if that's what's happening it's a couple really shitty days and maybe 5-7 days before I'm back to normal. Considering there are asymptomatic people, I would guess a couple days for most people, but I'm guessing. I just don't know if I'm getting glutened or not and would like some other peoples perspectives.
  3. This is starting to get into the far fetched range, but cat food often has gluten in it and one of my cats likes to drink from my water glasses I have laying around after she eats. I switched my water glasses to have lids.
  4. I just was looking at some chocolate I've been buying for the past year, barkThins, and I now see on the label: May contain wheat. I sometimes have been buying things not labelled gluten free, but checking ingredients and then usually double checking on the internet to make sure it at least has the label: no known ingredients with gluten are in the item. I guess this is a good example of why you need to check the label every time and maybe is a good example of sticking to things with a Gluten Free stamp of some kind on the package. I checked chocolate about a year ago and almost none of the
  5. If your household isn't gluten free all sorts of problems can occur. For example, if your husband makes a sandwich or something bread crumbs can go everywhere and you might not even think to check for them. For example one time I made something and I noticed a few crumbs in the bottom of the measuring cup I was using and without thinking I ignored it. I ended up tossing everything I made that day just to be safe because I thought about it after. I'm currently not in a gluten free household and I'm always on the watch for crumbs on the table, counters and cutting board. Crumb on the counte
  6. I also have some problems with my throat. I don't think it's related to my celiac disease, except that the pain I have in my abdomen makes me nervous and my throat problem seems to happen when I'm nervous.
  7. My antibodies went from 250+ to about 22 after 9 months. Does she use lip balm or lipstick that has gluten in it? I even changed my hand cream as that often has gluten in it. It sounds like your doing all the things right on diet. As a general rule spices are gluten free. Soya sauce is one thing that usually has gluten in it that isn't obvious.
  8. I just read an article saying it usually takes 2 years to recover from celiac disease after going gluten free. Is this accurate? I'm pretty sure my doctor told me 3 weeks or something at the time, but I highly doubt that is accurate as I still have problems and I'm well over a year gluten free. The antibody test they do for celiac disease still was positive, but much better, after 9 months; so it makes sense to me that this normally takes at least a year to heal. I've done 2 elimination diets and currently am on about my 3rd or 4th different diet. I have been starting to feel better after
  9. OK thanks a lot. I was a bit worried. They recommend that they should be rechecked once in the first 3-6 months and then after a year and yearly after that, so I was concerned that maybe they were supposed to go to normal after 3-6 months.
  10. About 8 months ago I was tested for Tissue Transglutaminase Ab IgA and scored over 250. I still have been having problems so I asked to be retested yesterday and scored 22.3, which is still higher than the 12 that they compared too check if you have celiac disease. Does this mean gluten is likely still getting into my diet? I think I've been very thorough removing gluten, checking things like lip balm and others. I've basically been following Dr. Gundry's Plant paradox diet, with no lectins, no sugar and no antibiotics. The food I don't make myself is things like Dark Chocolate and a few
  11. Yeah, I'm pretty new to this stuff. 2 years ago I was blaming all of my problems on a hernia I had, so I my success rate as a doctor is pretty low 🤔. Things seem to be getting worse and accelerating, so something should show up soon. Hopefully it is just the pain meds and or some flaws in my diet. Another month should give me some more info. I'm going to try that diet you attached, that should make sure I am not getting any gluten in my diet. For example I had been planning on using frozen fruit and vegetables, but apparently that's not good enough. I've had so many problems in my abdom
  12. Thanks for all of the advice. I only had the blood test done for my diagnosis: Tissue Transglutaminase Ab IgA which I scored over 250. Due to problems with the health of my father I was not around immediately after the test, and apparently they do something to check for gluten in the stool before and after a biopsy, so my normal confirmation for me was not an option here in Vancouver. As I understand it, the blood test with the score I have is almost 100% accurate. I guess I could go back and ask to have a biopsy done, but I didn't really see a benefit when I talk with my doctor yesterday.
  13. I've been gluten free for 2 months now and I seem to be having more abdominal pain problems than I did before I quit eating gluten. I've been thorough avoiding gluten, but possibly I've had a few things with vinegar in them for example that I possibly could have reacted too. It seems from what I've read on this forum that I quite possibly have more issue's like other food allergies. So my plan is to start an elimination diet soon, which I'm not looking forward too. I'm simply wondering how long on this diet before I should see some relief from my pain problems? I would think this diet sho
  14. I just wanted to thank everyone for posting and responding to these kinds of posts. I'm only about 8 weeks into being gluten free and I also get discouraged by the lack of progress. My first 3 weeks were pretty bad, and then I seemed to get a bit better, but now I'm back again to pretty bad. Reading through these posts helps keep me calm and gives me some insight into trying more changes to my diet to avoid other possible food allergies.
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