Celiac.com Sponsor (A1):


Join eNewsletter


Celiac.com Sponsor (A1-m):



Join eNewsletter

Rhyo9

Advanced Members
  • Content Count

    25
  • Joined

About Rhyo9

  • Rank
    Star Contributor

Recent Profile Visitors

525 profile views
  1. Thanks for your input & for asking your doc about it. I will check her personal care products; she only rarely wears makeup (she did not go out much before the pandemic and now not at all). She doesn't purchase anything herself. There are old products she has left over from the 'before time'...
  2. Her liver enzymes were elevated just after she came home from the hospital but went down after a few weeks. Her integrative doctor (no longer sees him since he had IMO some really bad ideas) suggested NOW Liver Refresh, but we declined to use it since it includes a lot of different herbs - some of...
  3. For processed stuff I try to get gluten-free certified, but some items are just labelled gluten free; most of those claim to be batch tested. One exception was pesto which did not have any gluten ingredients - she had that one time a few weeks ago. The garlic salt we use is also not labelled gluten...
  4. um, no - she is not cheating She has not left the house since mid-March except to go to her high school to pick up her diploma with her father and to her doctor's appointment, also with dad since she does not drive. Prior to the pandemic, she took food with her to school and social gatherings...
  5. @knitty kitty Thanks so much for the coupon information; I'm looking forward to my x-mas gift. Dr Costantini also did research on HDT and was apparently a great doctor to his PD patients - always available to answer their questions. It was so sad to hear about his passing from covid earlier...
  6. Thanks for you reply - I felt better reading it. I realize I had been overly negative about the results. She has regained all her weight (from 80 to 98 lbs; she's 5' 1") and is no longer vomiting or anemic. Sometimes she does experience early satiety, however, and she is tired much of the time...
  7. @knitty knitty Thanks for the information. The first source cites the book on thiamine by Chandler Marrs which I have wanted to get for some time, but it is terribly expensive. I may get it for myself for X-mas anyway. I am familiar with high dose thiamine from Parkinson's Disease forums; my...
  8. I wish I knew what would help you. I don't have Celiac - but what has helped me with GERD is cruciferous vegetables - broccoli sprouts and cabbage juice. The fiber from cruciferous veg can be difficult to digest, but the other compounds - most likely isothiocyanates (e.g., sulforaphane) and indoles...
  9. My daughter was diagnosed a year ago and we all went gluten-free - no gluten in the house; she was also diagnosed with Oral Allergy Syndrome. Her symptoms (mainly vomiting) improved after making appropriate diet changes and also using home HEPA air filters. However, a few months ago she developed...
  10. I'm so thankful for research like this - thanks for reporting on it. ~ My daughter's main symptoms have always been nausea and vomiting, even before going gluten-free. She was admitted to hospital for intractable vomiting and weight loss and they misdiagnosed her with a rare eating disorder...
  11. Oddly enough, her blood tests showed good overall nutrient status*, which is perhaps why the doctors did not put Celiac high on the list of possibilities. It took almost 2 weeks to get the results of the antibody test and in the mean time they subjected her to what's called an 'aggressive re-feeding...
  12. Thanks for the info on that and food sensitivites. I just now got to look at some of her medical files - her Marsh score was IIIA, whatever that means. I think her anitbody titre was around 170. She's home now. I was happy that she is now 82.5 lbs (5' tall), 2 lbs more than when she first...
  13. I noticed my daughter's Celiac symptoms seem to be worse in the luteal phase of her cycle (she's still in early stages of recover and unfortunately recently got glutened). This is apparently common for women with IBS, but I have not turned up anything on untreated Celiac and symptom severity with...