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kabons

I didn’t have a bad reaction!?

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Hey everyone! I just had a really weird experience. So, I’ve been diagnosed Celiac for 5 years. I was highly symptomatic before diagnosis (constant stomach issues, joint pain). Since quitting gluten, I’ve had a few accidental encounters (a little barley in soup etc.) that resulted in severe burning pain. I also often have a few weeks at a time with general digestive issues that I think could be caused by accidental glutening. I always tell people that I react severely because I always have.

So, I just found out that a few days ago I had 2 (maybe 3) little balls of gluten-filled cookie dough. I thought it was gluten free because it was next to a box of gluten free cookie dough. I can’t remember at all what day I ate them. I can remember one day having a bit of stomach pain and joint pain, and have been more tired and headachy than usual the last few days. Other than that - nothing! No vomiting, diarrhea, intense pain or days of indigestion.

So, what the heck!? Has this ever happened to you... that you just randomly didn’t react as badly to a significant amount of gluten? I know I should be thankful (and I am), but I’m also seriously so confused. I feel also like my family isn’t going to take me as seriously because I didn’t have a bad reaction. 

 

 

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Celiac.com Sponsor (A8):

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After your gut fully heals, many celiacs, including myself, may have few or even no symptoms if they ingest gluten. Of course there are those who will have severe symptom with even the smallest amounts, but for those who reach this point I've seen it give some people a false sense of security, and made them lower their guard regarding their strict gluten-free diet. I would chalk it up to maybe being in this lucky group, but would not lower your guard and would stay vigilant with your diet.


Scott Adams

Celiac.com - Celiac Disease Board Moderator

Founder Celiac.com

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43 minutes ago, Scott Adams said:

After your gut fully heals, many celiacs, including myself, may have few or even no symptoms if they ingest gluten. Of course there are those who will have severe symptom with even the smallest amounts, but for those who reach this point I've seem it give some people a false sense of security, and made them lower their guard regarding their strict gluten-free diet. I would chalk it up to maybe being in this lucky group, but would not lower your guard and would stay vigilant with your diet.

That’s interesting! The last time I definitely got glutened was about a year ago and the reaction was severe for a small amount. Is it possible I’ll react badly sometimes and other times not? 
 

Regardless, I’ll continue to be careful... the pain I had this time around (which not as bad as I would expect) was bad enough to motivate me to steer clear. 

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