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Celiacandme

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Everything posted by Celiacandme

  1. Celiacandme
    Keep us posted on your results. I hope you don't have to wait too long. Are you planning to have your son tested? Do you feel your father might get tested? Wishing you all better health.🍀
  2. Celiacandme
    You might also be sensitive to other things while you are healing. Dairy, for example. It won't harm you from a celiac standpoint but is inflammatory and could be bothering you. Have you been keeping a food & symptom journal? Might be worth it for a week to see if you notice something you are eating prior to the times you feel your worst. I hope you start...
  3. Celiacandme
    My gastroenterologist had me incorporate VSL#3 to help with similar issues. It can take a long time to heal. I also found adding kiwi to my diet was soothing to my stomach. For me, it was important to avoid other inflammatory foods. Dairy, corn, etc, were aggravating to my stomach. Bone broth has been another life saver for me over the years. I do know I...
  4. Celiacandme
    I hope you don't have to wait too long until her endoscopy. Is she able to bring her lunch with her in the meantime?
  5. Celiacandme
    Terry, I was diagnosed with Celiac disease and Barrett's from the same scope back in 2013. Did your endoscopy biopsy result confirm celiac or are you still waiting for that result?
  6. Celiacandme
    Thanks for taking the time to respond, Scott.
  7. Celiacandme
    Hello there, it's been ages since I signed into this account. Wanted to see if there were other celiac patients that have gone through perimenopause/menopause and chose to take estrogen or wear an estrogen patch? I know all of our bodies are different but curious how it went or is going for you. Thanks so much.
  8. Celiacandme
    Yay for a painfree day, bartfull! Did they start you on plaquenil or something when they diagnosed you with lupus? I hope you find that today is pain free as well and that good days always continue for you!
  9. Celiacandme
    Great news! Yay!!!
  10. Celiacandme
    This will definitely take some time. I'm sorry you are going through this. I can sympathize that it is difficult to deal with this while you want to care for and enjoy your young child. You need to be gentle with yourself and give your body time to heal. It can be a long road. As your wife learns more she'll understand more. It is difficult to understand...
  11. Celiacandme
    I'm just curious if anyone here has had to take immunosuppressants because of their celiac disease? If so, were you able to come off it after some time? What made the determination that your body needed to take it? Did you notice a difference? If anyone has anything to share regarding celiac disease and immunosuppressants, I'd love to hear it. Thanks...
  12. Celiacandme
    Since you were diagnosed last year remember your body is still adjusting and working on the healing process. Celiac disease can send inflammation to all areas of your body. I hope that the inflammation you are experiencing is caused by this. Are you eating dairy? Let us know how it goes with the immunologist this next week. A rheumatologist, like ravenwoodglass...
  13. Celiacandme
    Bartful - It sounds like you really like this doctor - yay! Have you heard any results yet? If they suspect lupus some tests that CAN BE associated with lupus are PT, PTT, DRVVT, Hex Phase Phoso Neut, and they'd want to run your complement levels (C3, C4, perhaps others). C3, C4 could indicate disease activity in your body but do not specifically mean...
  14. Celiacandme
    For those of you that have determined you can't handle sulfites - how did you determine? What kind of symptoms did sulphites cause you? Was this during the healing process for you and were you able to add them back in?
  15. Celiacandme
    You never know. If I were you I would schedule an appt with my gp. Explain to them your bathroom issues, etc, and request that they run the full celiac panel on you. Keep eating gluten so it will be accurate. I would tell them you'd really like to be tested because of the fact that you are having some issues and your grandmother has it. Good luck. Keep us...
  16. Celiacandme
    Thanks for updating us. Glad you have an answer now. I hope you are feeling better soon after adjusting to your new gluten-free lifestyle. Healing vibes coming your way!
  17. Celiacandme
    Are you anemic?
  18. Celiacandme
    I use Alterna haircare products and have been happy with them. I always check for gluten free on their bottles and usually it either states free of Gluten on the front of the bottle or Gluten free on the back at the bottom. There may be some of their products that are not gluten free. I'm not sure. (I feel like some of their products for color treated...
  19. Celiacandme
    I agree with cyclinglady...you have so many positives I would almost be surprised if they did not diagnose you with celiac. I'm not surprised your rheumatologist didn't test you for the celiac blood work. They really (or I should say they ones I've seen) focus on rheumatology related diseases. I know that can be frustrating. Also, your rheum might not know...
  20. Celiacandme
    I appreciate that you are 15 but every case is different. I'm surprised your doctor said that because you are 15 you should heal a lot faster than someone older. Even in a 7-year-old. One might think that because they were diagnosed early they wouldn't have as much damage or would heal faster but that is simply not necessarily true. Some 7 yr olds are diagnosed...
  21. Celiacandme
    If it was me, since you've just been gluten free this time for one week, I would call today and tell them you want the blood test run. It's a simple blood draw. Make sure they run the full celiac panel. I do believe it would be helpful to know these levels. I know they suggested going gluten free but I'm surprised they didn't run the blood tests when they...
  22. Celiacandme
    That's great that your GI doc routinely looks for celiac. I agree with the others - you've got a great doctor! You had an endoscopy at the same time as your colonoscopy? The book Celiac Disease: A Hidden Epidemic by Peter H.R. Green, MD and Rory Jones is a good one to check out. It easily could help you both learn more about the disease and why it is...
  23. Celiacandme
    I'm sorry that your vitamin had gluten in it. So glad you caught that now! Keep us posted on the results from your blood work. Glad you went in for testing. You may very well be deficient in something! Vit D, iron, etc...
  24. Celiacandme
    I also hope you are feeling better soon!
  25. Celiacandme
    Happy Birthday to your daughter! I don't have any other suggestions. I realized looking at this thread that I've never heard of Pamela's brand. I'll have to look for it. I live in an area where there are Wegmans grocery stores and their line of gluten free baking products are so good. Especially their brownies. I tend to grab those if I need to whip up some...
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