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CeliacMommaX2

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Everything posted by CeliacMommaX2

  1. CeliacMommaX2
    We have 2 children diagnosed with celiac at ages 3 & 4. My husband and I just did genetic testing for ourselves (expecting 1 or both of us to be positive). We both came back negative! Any ideas why? Could our children be misdiagnosed? Both had elevated TTG & EMA that improved on a gluten-free diet and one had very clear damage on her scope ...
  2. CeliacMommaX2
    I would love to have a Nima sensor, but can't justify the cost for the few times we'd like to use it. Is there an alternative that's less expensive? We can only think of a handful of times we'd like to test and don't want to spend close to $300 for that! Thanks!
  3. CeliacMommaX2
    Thank you for all of the input everyone! I really want to make oats work being a busy mom of 4 little ones (2 with celiac). But maybe I need to re-think the risk. I wish there were healthy breakfast options that were quick/easy to prepare (and that my kids would eat)! I'm tired! ?
  4. CeliacMommaX2
    We are reintroducing oats for my 8 year old. We cut gluten-free oats after her TTG remained elevated after 1 1/2 years of being strictly gluten-free. What are the safest oats to give her? I'm nervous with all the talk of the "mechanically separated" processes. Thank you!
  5. CeliacMommaX2
    It's a tough disease because to be diagnosed, they need enough damage to their gut. So if you want a diagnosis in a really young child, you have to make them sick enough to get a positive result. My son was 3 when we tested him (older sister had just been diagnosed). He didn't have any symptoms, but TTG and EMA were elevated, so we scoped him and he did...
  6. CeliacMommaX2
    My 8 year old has had a TTG level that has only been negative once in 3 1/2 years (14, <15 is negative). She has been up and down a lot and in the past year her TTGs were 22, 55, 19, 20. Her EMA has been negative for about 1 1/2 years. She is still underweight, but doesn't really have any clearly celiac symptoms even when we got higher TTGs over the...
  7. CeliacMommaX2
    My 7 year old's vit D is low (22)... she's been getting 400 IU in her daily multivitamin and I also give her 400 in baby Carlson's drops (when I remember...) What supplements are safe and how much do you give to your kids? Thanks!
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