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      Frequently Asked Questions About Celiac Disease   04/24/2018

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What is Celiac Disease and the Gluten-Free Diet? What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

CeliacMommaX2

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  1. Catholic Communion

    You cannot continue to receive the sacrament in the traditional host, but talk to your church about having a separate pyx with the "low gluten" host (safe for celiacs even though derived from wheat according to Dr. Fasano in Boston). At most churches that offer this, the presiding priest is the one who distributes these hosts. At one church, they have a separate Eucharistic Minister who handles them (which if you can request this, would be best for risk of cross contamination).
  2. My 7 year old's vit D is low (22)... she's been getting 400 IU in her daily multivitamin and I also give her 400 in baby Carlson's drops (when I remember...) What supplements are safe and how much do you give to your kids? Thanks!
  3. Can we trust these companies? I would love to have the option of a "break" from cooking!!!! I am so sick of preparing 21 meals every week for the past 3 years with no break. I really miss the days that I could have my husband grab take out on a particularly busy day and would spend all of my extra spending money on that!!! I just don't trust anyone... are the meals prepared in a gluten free environment? Or are those meals simply lacking gluten ingredients...
  4. I believe she's been tested for other AI diseases (it took 2 years to get her to "negative"). 2 GI docs have said the DGP is unnecessary and she's never had one (only EMA and TTG). It would be nice to hear she is "healed" by checking with an endoscopy. Thanks for your insight!
  5. My 7 year old just had her TTG checked again (we were hoping to try gluten-free oats again for her). It was 55! (Up from 21 in October). She was diagnosed 3 years ago and we've had trouble getting her TTG down. (only got to 14, which <15 was considered negative). We are super strict, gluten free household, homeschoolers and never eat out. I'm trying to figure out why her TTG is 55 now! She did have a stomach bug 10 days prior to her lab check (the whole family had it, so it wasn't gluten!). Could that have elevated her labs? Her GI doc wants to repeat her EGD now... I hate to put her through that again- anyone else have thoughts on if that's a good idea? I'm just at a loss and don't know which way to go now. Any thoughts are appreciated!
  6. Hi Foreignlady! I did not have a chance to read all of the many responses you've received (also a mother of 4 young kids), but would like to share our story with you. Three years ago, my oldest was diagnosed with celiac at age 4 1/2. Her (then) 3 year old brother was also diagnosed after we screened the rest of the family (he had no symptoms). After he was also diagnosed, we also screened our 1.5 year old (she was negative). I felt crazy with seeing gluten (crumbs) EVERYWHERE! I was really anxious about it all. We chose to change our entire house into a gluten free household. I know it's a personal preference and what works for your family, but I am much more at ease doing it that way and have much less anxiety. Initially, we jumped at all of the "gluten free" options out there, but have learned to focus mostly on the naturally gluten free things to make it much more affordable. We have meat, vegetables, fruit, potatoes, rice, chex cereal for breading on meat, larabars and popcorn for treats/snacks, etc. (I could give you a huge list of our staples if you are interested!) It seems like a lot of extra work at first, but it's second nature now and really not that much more work. We almost never eat out and were even able to do a 5 day road trip using a big cooler and grocery stops along the way! We've learned to "eat out" by picking up meat, cheese, fruit, and some veggies at the grocery... it works! More of our story involves the fact that our oldest has had an elevated TTG that doesn't seem to be responding to our strictly gluten free lifestyle, so we are even more cautious of the cross-contamination issue. We keep telling ourselves that we may relax a bit once it's down to "normal" but we haven't gotten there yet. Good luck with this journey! We kept hearing the the first year is the hardest and then you adapt- we found this to be very true! It is just our road in life and we will make the best of it! I hope you are able to find the help and support you need to navigate this road- either here or in your community!
  7. I'm hoping to donate to celiac research this year. Does anyone have recommendations as to where to donate? Celiac Disease Foundation? Celiac research at a hospital or university? Thanks!
  8. My daughter's TTG levels were elevated for 2 years, then she hit 14 (<15 is negative), then went back up to 24. Her EMA is negative. I just saw the article "Can Undetectable Negative Tissue Transglutaminase IgA antibodies Predict Mucosal Healing in Treated Celiac Disease Patients?" and am all worried again about her. Does this mean she's not healing? We are above super strict, gluten free household, keep her in a bubble and don't know why her TTG is elevated. Her doctor is not concerned, so I am trying not to be, but I want me little girl to be healthy! Anyone else have any thoughts on this? Thanks!
  9. Everyone here has had great advice! Celiac has made me a stronger person in standing up for myself and my family. I HAVE protect my children as their mother, so I must stand up and do what is best for them. We travel to visit family often, and while we get lots of questions and people who don't get it, I bring our own pots/pans, utensils, cutting board, etc. Meal planning is a must when we're away and we've invested in a nice Yeti cooler that practically lives in our trunk. We bring our own ham, sweet potatoes, green beans, etc to holiday functions even when family has insisted what they are making is safe. It's just easier for me to relax and enjoy family when I know my kids have safe foods to eat. Good luck! The first times traveling are really hard, but you'll soon get into a groove.
  10. We were stressed about this as well with our daughter. It ended up taking 2+ years to get her to "negative" TTG levels (which then came up again at 2.5 years). We also live in a gluten-free household and never go out to eat. Because she started growing again, the doctors are not concerned. But as a mother, I'm always worried about it! Just do your best and I'm sure he will continue to heal. I've been told the younger a child is diagnosed, the more fully they are able to heal.
  11. I know this started out as an old post, but I wanted to comment that an encopresis diagnosis is what led us to finding celiac in our 4 year old. What helped us to beat the encopresis is Dr. Collins method- Soiling Solutions. (plus I'm sure the gluten-free diet helped!)
  12. Boston- dedicated gluten-free restaurants?

    Thanks everyone for the tips on where to eat in Boston! We had lunch at Whole Foods and were going to try to go to Legal Seafood, but they were too busy and the kids were tired. We did find a great allergen free bakery in one of the markets and got the kids muffins and blueberry coffee cake as a treat! Loved our time in Boston- what a great place!
  13. My husband and I have been convinced to go through genetic testing (if not too expensive). I have a few questions... Do I ask the doctor's office or call our insurance about how much it will cost? If both my husband and I have both genes, does that mean all of our children will also have both genes? We already have 2 with celiac, so it seems our odds are high... I wonder if we would need to bother getting the non-celiac kids tested if that was the case. Is there any reason to test a person who has already been diagnosed with celiac? (probably a stupid questions, but I'm asking anyway ) Thanks!
  14. Boston- dedicated gluten-free restaurants?

    Thanks for all the great info! Great to know about the Whole Foods nearby. My daughter has proven to be very sensitive, so we really appreciate the input! I hope someday we can actually feel comfortable going out to eat with her. Hopefully we can learn more at her appointment in Boston!
  15. Boston- dedicated gluten-free restaurants?

    Thanks!