MIchael530btr's Blog

I do not know anything about the issue you are having but it is great that your blood work improved so much so quickly!!! Hope you figure out this other issue soon. Good luck!

Michael........I have Celiac and Sjogren's Syndrome, which is another autoimmune disease that is often seen with Celiac. It is one of those which is badly overlooked and missed by doctors. I diagnosed myself and then when I found a good PCP, she ran the blood work and discovered I was right.

What tipped me off was your mention of swollen salivary glands. Read up on Sjogren's for all the symptoms but it affects the eyes and mouth. The autoimmune system attacks the glands which produce tears and saliva, so your eyes and mouth become dry...which in turn makes it very difficult to swallow. I cannot swallow bread without liquids.

There is a blood test for Sjogren's so you should be screened. However, a negative test does not rule it out, like Celiac. It is antibody testing. I was very positive on my celiac panel and so were you so antibody screening might show something, if you have this. Good luck!

I had EoE or something similar when my celiac was at its worst. Which then became a full on eosinophilic disease. Kimuras disease most often involes the saliva glands. An IgE test will confirm or clear you of that easy enough. (thats what I have). It also often causes kidney problems (blood pressure etc). Almost impossible rare but I think you warrent an IgE test to be sure you dont have it.

Michael,

I also have swallowing difficulties after being diagnosed with Celiac.  Locally, I have had my throat stretched.  Got tired of the whole thing, went to a research hospital.  To find out I have a flap of cells growing in my esophagus.  They haven't decided what course of treatment to take, so the Drs. are watching it..  I also have the backing up of food from the stomach.  It's called Baker's esophagus.