Eab12's Celiac Blog

Eab12,

This is a blog post. . . .you might not get much response here.

You might want to start this as a thread in the forum section.

Eating low carb .. .might of been low enough in gluten to lower your antibodies levels but enough to still attack your villi. . ... and villi don't heal right way anyway.

Most people follow up on biopsy at a year to see if villi are still damaged ... and your's obviously still are. .... one confirms the other (often) and doctor's don't want to say absolutely you have celiac without them both being positive.

But for you I would say "Positive" is positive. .. but doctor's want both of them to be positive to be sure of your diagnosis. . . but for me I was diagnosed by blood serology only.... this is more common (today) than it i used to be. If either is positive then you can be positive for celiac disease ...doctor's are trying to confirm it is not a "false" positive.

See this huffpost article about this topic.

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You might want to have your stomach acid tested too ....being low in it can lead to inflammation.

I hope this is helpful but it is not medical advice.

Posterboy,

Some celiacs are seronegative.  Some celiacs never test positive to the screening TTG.  Did you received the complete celiac panel (TTG, EMA and DGP)?  I test positive to only the DGP IgA even in follow-up testing.  

Many things can cause villi damage:

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However, you probably have celiac disease because you have the genes and you are already improving on the gluten free diet.  Remain gluten free for a year and get retested.  Your doctor may then give you a firm diagnosis.  But you might find that feeling better is all the assurance you need.  

Hey, I am the only diagnosed celiac in my family and they are riddled with autoimmune disorders like RA, Lupus, Crohn’s, Thyroiditis, etc.