Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Celiac Disease

Daveb

Recommended Posts

Daveb Rookie
Daveb
Posted

So I'm from Canada and i'm 56, was diagnosed yesterday of having Celiac Disease.  My blood work showed i am really elevated, they told me i should be under 12 and i'm at over 250.

I have to change my life style but i guess i am worried that i may have damaged body parts?  As well how do you know if something is gluten free or not?

Thanks in Advance

Dave

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ennis-TX Grand Master
Ennis-TX
Posted

Read the newbie 101 section to see about clearing out the house, pantry, fridge of stuff. Toss scratched cook ware, wooden spoons, condiment jars with crumbs, anything gluteny and clean up really well. Gluten is a protein smaller then a germ, think like blood and cleaning so the CSI team will not find the traces, bleach does not work to kill gluten, on the bright side 500F oven self clean will so you can save your cast iron cookware but running it there.

We normally suggest a whole foods diet approach at first, going with naturally gluten free foods unprocessed like fresh veggies, fruits, certified nuts/seeds (NOT processed in a facility that handles wheat Nuts.com/Mygerbs.com are great) fresh meats, eggs, and stuff like lundberg rice are examples.  Homemade batches of soups, stews, chili, cooked meats, baked sweet potatoes, are great examples of fresh whole food meals, I personally do omelettes and egg scrambles often.
We normally suggest dropping dairy and oats for a month or so to boost healing, those with celiac can have issues producing hte enzymes to break down dairy due to damaged villi in the intestines and oats even gluten-free are often still slightly CCed or in like 10% of celiacs like me we also react to oats in a similar fashion.

As gluten is found in wheat, barley, rye, and used very commonly in the food industry reading labels is a must to ALWAYS check ingredients. This becomes second nature and you find certain brand you trust later I will include a list o things I have found. Thankfully you now have stuff like Amazon, thrive market, glutenfreemall, etc to order this stuff now on.

https://www.celiac.com/forums/topic/91878-newbie-info-101/
https://www.celiac.com/forums/topic/120402-gluten-free-food-alternative-list-2018-q1/

 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Brandy.GF's topic in Related Issues & Disorders
      3

      Turkey neck

      Hi, @Brandy.gluten-free, You're not alone! I've been in the same situation. One thing I have learned is to watch my posture. Refrain from sitting with head and neck thrust forward, as often happens to people using computer screens for long periods of time, to people who smoke or vape, and to people who breathe through their mouths. I frequently find...
    2. knitty kitty
      - knitty kitty replied to LC9's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Chances of coeliac?

      Hello all! @LC9, I think further testing for Celiac Disease is warranted, especially since you have the genes and still have symptoms even on a low gluten diet. Omeprazole is a proton pump inhibitor for acid reflux, but it is also an immunosuppressive. This means that your immune system is suppressed, and you are not going to make as many anti...
    3. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      Iron loss and potential celiac.

      I'm willing to bet a sound medical-economic case could be made for population wide celiac antibody screening once or twice in a lifetime, maybe something like as part of the starting school physical and maybe at age 30. These are just guesses as to when - a series of pilot studies could validate the idea and zero in on the optimal schedule. The test itself...
    4. Scott Adams
      - Scott Adams commented on Scott Adams's article in Summer 2026 Issue
      3

      Why Life with Celiac Disease Hasn't Improved in 10 Years, According to New Study

      This may be of interest: Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:
    5. trents
      - trents replied to LC9's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Chances of coeliac?

      Often, biopsies are not done unless there are positive blood antibody results. Biopsies are often a "reflexive" medical order, meaning they are prompted by positive results from other kinds of testing. @LC9, low gluten consumption can sabotage celiac blood antibody testing, as can, as I have already mentioned, being IGA deficient. In either case, it...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,113
    • Most Online (within 30 mins)
      10,442
    Freddie Travis
    Newest Member
    Freddie Travis
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Turkey neck

      By knitty kitty · Posted

      Hi, @Brandy.gluten-free, You're not alone!  I've been in the same situation.  One thing I have learned is to watch my posture.  Refrain from sitting with head and neck thrust forward, as often happens to people using computer screens for long periods of time, to people who smoke or vape, and to people who breathe through their mouths.  I frequently find myself stretching my neck forward when looking through my bifocals.  I try to remember to keep my ears over my shoulders and not breathe through my mouth. I use tallow balm to soften the skin.  My favorite is Vintage Traditions tallow balm.  Tallow balm is similar to our own body fat and is therefore better absorbed and used than mineral oil and petroleum based products.   Most importantly, I found this weird exercise called "Mewing" which has worked impressively well for me.  Doing this exercise has helped immensely with my breathing, and tightening up the muscles in the jaw and neck area.  Another benefit is that doing the exercise prevents Resting B**ch Face!  Hope this helps!  
    • knitty kitty
      Chances of coeliac?

      By knitty kitty · Posted

      Hello all!   @LC9, I think further testing for Celiac Disease is warranted, especially since you have the genes and still have symptoms even on a low gluten diet. Omeprazole is a proton pump inhibitor for acid reflux, but it is also an immunosuppressive.  This means that your immune system is suppressed, and you are not going to make as many anti-gluten antibodies, which can account for your negative blood tests.  Anemia affects red blood cell production, but also white blood cell production, which can affect antibody production, and can result in false negative blood tests. Do discuss with your doctor discontinuing the PPI Omeprazole and undergoing a proper gluten challenge where a minimum of ten grams of gluten is consumed daily for a minimum of two weeks.  A slice of white bread has about 1.5 to 2 grams of gluten.  Less than ten grams will cause symptoms, but will not get the antibodies to move out of the intestines, where they are made, and into the blood stream, where they can be measured in testing.   Do get the complete panel of tests as @trents said.  Do get an endoscopy with biopsies as @cristiana said, because a great deal of the changes are microscopic and look "normal" with the naked eye.   Do get checked for nutritional deficiencies.  Iron deficiency anemia goes hand in hand with Vitamin B 1 Thiamine deficiency.  All eight B vitamins, Vitamin C, Vitamin D, and some minerals like magnesium and copper are also low in people with anemia and Celiac Disease.   Wishing you well on your Celiac journey! Cheering from the sidelines!
    • Aretaeus Cappadocia
      Iron loss and potential celiac.

      By Aretaeus Cappadocia · Posted

      I'm willing to bet a sound medical-economic case could be made for population wide celiac antibody screening once or twice in a lifetime, maybe something like as part of the starting school physical and maybe at age 30. These are just guesses as to when - a series of pilot studies could validate the idea and zero in on the optimal schedule. The test itself is minimally invasive and essentially zero risk, cost would be modest, and a lot of suffering and serious health damage could be averted. (As a side benefit to us, the current celiacs, there would be a lot more people diagnosed and finding ways to make the adjustments we currently make)
    • trents
      Chances of coeliac?

      By trents · Posted

      Often, biopsies are not done unless there are positive blood antibody results. Biopsies are often a "reflexive" medical order, meaning they are prompted by positive results from other kinds of testing.  @LC9, low gluten consumption can sabotage celiac blood antibody testing, as can, as I have already mentioned, being IGA deficient. In either case, it would be helpful to get IGG blood antibody tests run instead of the default IGA. I will attach a primer outlining the various tests that can be ordered to detect celiac disease.    
    • cristiana
      Chances of coeliac?

      By cristiana · Posted

      Hi LC9 Welcome to the forum. You are not the first person I've come across who was sent for an endoscopy but no biopsies were taken.   I vaguely remember someone on this forum had the same thing happen to them, and another friend of mine who is unable to eat gluten was sent for one and they just looked with the camera! I found it extraordinary, but it does happen.  It is very frustrating for people in this position as no-one has endoscopies for fun! Given that your twins have been diagnosed and you have these symptoms,  I think in your shoes I'd probably first want to double check no biopsies were actually taken.  In the UK where I live biopsy results can take quite a while to be reported back to the surgery/patient.   I think mine took a few weeks.  Also, not sure if you live in the UK too but if you do, unfortunately all sorts of issues are occurring at the moment within the overburdened NHS and all sorts of things can go missing, such as referrals, test results etc.  But if you are absolutely sure that no biopsies were taken, I would have thought that would be the next step?  Do you agree, @trents? Cristiana
×
×
  • Create New...