@nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.

Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 

The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting. I don't think that touching or throwing bread around would lead to you ingesting enough to cause a reaction. There are case reports of farmers with coeliac disease reacting to the dust from gluten-containing animal feed but they were inhaling large amounts of dust over a long period of time in barns. Perhaps you episodes are caused by a reaction to something other than gluten? Have you had your antibody levels checked to see whether you are still being exposed to gluten?

@Jmartes71, Been here.  It's okay.  You're not imagining things, but there's no bugs or parasites in your skin.  The cats are not infecting you with anything.  That's a hyperkeratotic plug that builds up in a hair follicle which does go deep and is attached by the hair sheath that looks stringy.  It's a type of thing seen commonly in Dermatitis Herpetiformis.   Niacin B 3, in the form Nicotinic Acid (active form that causes flushing) or in the form Niacinamide will help immensely with clearing this up.  Take 100 mg three times a day, and Tryptophan (another form of Niacin) to help you sleep and heal your intestines at night.   Kidney stones can result when the body doesn't have sufficient Thiamine B 1.   Are you taking a B Complex supplement?  The eight B vitamins are water soluble.  Many people with Celiac Disease benefit by taking a B Complex to boost absorption.   The cloves are great because they can reduce inflammation, but your body needs the Bs and extra Niacinamide as well.  Benfotiamine, a form of Thiamine B 1, is also needed in higher doses to heal the intestines.  If you get your intestines calmed down, your skin will calm down, too.  Benfotiamine has anticancer potential in higher doses. Rapid resolution of delusional parasitosis in pellagra with niacin augmentation therapy https://pubmed.ncbi.nlm.nih.gov/19061687/ Tryptophan metabolism: From physiological functions to key roles and therapeutic targets in cancer (Review) https://pmc.ncbi.nlm.nih.gov/articles/PMC12139378/ Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/

Hello everyone! I am very glad to be a part of this group. I want to share a bit about my celiac journey and hear from you as well. I was diagnosed when I was around 19-20 with a confirmed blood test and biopsy. I am now 28 and since my diagnosis, I have been strictly gluten-free. I have discovered over the years many new intolerances to foods, not to mention bad joint pain and skin issues, which led me to going on the carnivore diet. I don't eat dairy, sugar, or grains, except for rice/rice flour crackers, which seems to be the only substitute I can tolerate. I feel pretty good most of the time, but every so often I have what I consider to be a "celiac flare", which always follows the same pattern: I get a mild stomachache that gets progressively worse, followed by nausea, vomiting, and severe abdominal pain that lasts hours. What is strange to me is that I didn't have as severe symptoms as I do now before my celiac diagnosis, when I still actively eating gluten, even though I felt crummy and had synotoms. Has anyone else experienced symptoms like this? I am so careful with what I eat and I never eat out. As I was looking around on the forum here, I found a post where someone asked about airborne gluten and subsequent reactions. My mom likes to feed the birds bread, and I was helping her toss bread around. Could even touching gluten or breathing it in result in a reaction like what I had? I wash my hands and keep everything separated in the kitchen, of course. It is just very frustrating, because I am so careful and when I have these flares, the pain is debilitating. Any advice or experiences you have had would be greatly appreciated. Thank you and God bless.