Jmartes71
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That's one of my biggest fears because the knowledge of how serious is completely laxed and we the patients suffer. Thank God this poor women got the results of winning that case.It should be mandated that any doctor, care facility and every ER know exactly what celiac is.NOT just a food consumption allergy as downplayed. Its not a choice its medically necessary...
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I went to ER on the 30th because I didn't want to wait and saw dr at desk for intake. I went for NOTHING!. ER Dr was very nice but made it seem as if I was a nut case rater than coming in for real issues calmly explaining its staph! Staph, by look no blood test, no skin test. No looking in my nose and throat was given a prescription for jock cream and some...
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Scott Adams reacted to a post in a topic:
Skin issues
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Jmartes71 reacted to a post in a topic:
Skin issues
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Jmartes71 reacted to a post in a topic:
Skin issues
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Jmartes71 reacted to a post in a topic:
Skin issues
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Thankyou I did find out the Infectious disease is the route to go rather than dermatologist. I did reach out to two major hospitals and currently waiting on approval for one of them in Infectious Diseases to call me. I also did have implants ( I didn't know and sense not properly in my medical. Neither did surgeon)in 2006 and there was a leak 2023 during...
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Jmartes71 reacted to an article:
How Testing for the Two Celiac Risk Genes Can Speed Up a Celiac Diagnosis
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Hello, Ive been to the dermatologist ( two different ones) and now made appointment, soonest is NOVEMBER. Ive been dealing with skin issues for a while and its getting worse because nothing has worked.I feel the bumps, gently squeeze and a itty bitty hard thing is coming out.I took a picture and did close up and in the MANY pictures ive taken this past...
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Jmartes71 reacted to a post in a topic:
HLA-DQ2 POSITIVE it's nothing
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Scott Adams reacted to a post in a topic:
HLA-DQ2 POSITIVE it's nothing
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HLA-DQ2 POSITIVE it's nothing
Jmartes71 replied to Jmartes71's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
As far as asking I shouldn't have, My son should have per my husband considering the hippa violation at this point it's like violation?The medical bs anyways.......No one here in the valley gi understands celiac and it's a waste of time 26 years to be exact that's how long I've lived in the valley and that's how I got to this point. Considering they want... -
Jmartes71 reacted to a post in a topic:
HLA-DQ2 POSITIVE it's nothing
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Scott Adams reacted to a post in a topic:
Juce Super Fruit & Veggie Vitamin Blend
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FYI Do NOT ingest.I bought thinking it would be fabulous because it has all the multivitamins in a mix that one can mix with your choice of drink.That ine scoop with Itty bity ingredient Barely grass did me in.It has all the labels stating dairy free glutenfree soy free , organic ect.Its NOT SAFE.
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Ginger38 reacted to a post in a topic:
Shingles - Could It Be Related to Gluten/ Celiac
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Ginger38 reacted to a post in a topic:
Shingles - Could It Be Related to Gluten/ Celiac
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Got results or rather heard results that my son is HLA-DQ2 positive per pcp yesterday and the Downplaying is just unbelievable.If I didn't get the knowledge from this site I would still THINK celiac was just a foid consumption "allergy " .Please i don't want to be ranking or be dinged. I just want knowledge for patient to know or rather DOCTORS to understand...
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NOOOOOO NO NOOOO I was 23 years old.i have Not eaten wheat sense diagnosed in 1994.Been reading labels ever sense and in 2007 found more food issues. Menopause has changed my body completely and asking for help has turned into a medical NIGHTMARE. Wondering why my skin and eyes are having issues. Is all on me learning because blood work fine.Yet again for...
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I just looked today at my records from past celiac circus and what I thought was my current gi i had locally.Im not at all surprised that they put i was negative for sibo from past dr which isn't true. I gave them the positive results along with the other results of my tests requested by the none bay area googled specialist. All I wanted was doctors closer...
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This is completely INSANE! I thought i had established gi care close to home and wondered why my celiac diagnosis is still at a standstill. I went to my pcp and its up to the gi specialist. Per pcp to sign off on it. Even with the materials given amd told him what i knew , it was pointless on my part.The gi specialist I thought i was going to continue, isn...
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Jmartes71 reacted to a post in a topic:
Second chance
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Jmartes71 reacted to a post in a topic:
Second chance
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knitty kitty reacted to a post in a topic:
Second chance
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Not yet, been waisting time on western doctors. I went yesterday to my pcp thought we were on same page, I gave him the downplayed confirmed celiac medical note from bay area. As a patient I shouldn't have to Chase my medical, my medical SHOULD stick to us.Im am so exhausted and angery how medical has been, my whole way of thinking of our system is completely...
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Im not a doctor and my term isnt right.All I know is I had what ever lovely procedure I know I had it in down the throat and the bottom biopsy. Im tired of and not feeling well and my blood looks fabulous though STULL HLA-DQ2 Positive and past biopsy Positive. Dealing with this is literally insane im begging for help.im at the point where just what ever
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Thats the thing, diagnosed in 1994 before foods eliminated celiac by biopsy colonoscopy at Kaiser in Santa Clara now condo's but it has to be somewhere in medical land.1999 got married, moved, changed doctor's was with former for 25 years told him I waz celiac and that.Fast forward to last year.i googled celiac specialist and what popped up was a former...
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Jmartes71 reacted to a post in a topic:
Second chance
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Current careteam is still up in the air about my celiac thanks to me googling "celiac specialist" what popped up was once known as a good name hospital back in the days. I went in for answers for my declining health, it was the autoimmune part that did me in, being a former bus driver.I read that in my medical records so easily downplayed, i refused the...
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Scott Adams reacted to a post in a topic:
Second chance
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knitty kitty reacted to a post in a topic:
Nateral remedies
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knitty kitty reacted to a post in a topic:
Nateral remedies
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Nateral remedies
Jmartes71 replied to Jmartes71's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
OMG THANKYOU thats like written gold right there that you sent!