jenniber
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Scott Adams reacted to a post in a topic:
Disaccharide deficient, confusing biopsy results, no blood test
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knitty kitty reacted to a post in a topic:
Disaccharide deficient, confusing biopsy results, no blood test
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jenniber reacted to a post in a topic:
Disaccharide deficient, confusing biopsy results, no blood test
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thank you for that info too!! will keep this in mind if he ends up in the ER again!
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knitty kitty reacted to a post in a topic:
Disaccharide deficient, confusing biopsy results, no blood test
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Scott Adams reacted to a post in a topic:
Disaccharide deficient, confusing biopsy results, no blood test
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jenniber reacted to a post in a topic:
Disaccharide deficient, confusing biopsy results, no blood test
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Aretaeus Cappadocia reacted to a post in a topic:
Disaccharide deficient, confusing biopsy results, no blood test
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yep, as soon as i suspected i had celiac i called him to tell him he’s way more likely to have it bc he’s my sibling + bc of t1d being autoimmune. he has been to the ER so many times bc of unexplained stomach pain, so fingers crossed gluten free continues to help him! thank you for the info about the vitamins, i will pass along the info!!
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jenniber reacted to a post in a topic:
Disaccharide deficient, confusing biopsy results, no blood test
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neither of us have children or plan on it, so we’re good there!
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jenniber reacted to a post in a topic:
Disaccharide deficient, confusing biopsy results, no blood test
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Scott Adams reacted to a post in a topic:
Disaccharide deficient, confusing biopsy results, no blood test
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yes, i told my brother that, but he’s fine with never getting an official diagnosis he says! he doesn’t often take my advice LOL
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jenniber reacted to a post in a topic:
Disaccharide deficient, confusing biopsy results, no blood test
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jenniber reacted to a post in a topic:
Disaccharide deficient, confusing biopsy results, no blood test
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Scott Adams reacted to a post in a topic:
Disaccharide deficient, confusing biopsy results, no blood test
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Hi, I'm back! I went to a new GI with all of my test results and an explanation of my story! She was very curious why my initial GI did not note about suspected Celiac disease in her endoscopy notes, and why my biopsies did not mention my villi or anything about Celiac disease. She requested my biopsies from the hospital where my endoscopy was completed to...
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Scott Adams reacted to a post in a topic:
Celiac support is hard to find
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jenniber reacted to a post in a topic:
Disregarded
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jenniber reacted to a post in a topic:
Introduction
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Celiac support is hard to find
jenniber replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
same! how amazing you have a friend who has celiac disease. i find myself wishing i had someone to talk about it with other than my partner (who has been so supportive regardless) -
jenniber reacted to a post in a topic:
DH Photo Bank
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jenniber reacted to a post in a topic:
Disaccharide deficient, confusing biopsy results, no blood test
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thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks! i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me b...
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hi, i want to say thank you to you and @trents . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood t...
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Scott Adams reacted to a post in a topic:
Disaccharide deficient, confusing biopsy results, no blood test
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thank you Scott! This is very helpful. I have a message out to my doctor and i think this guide will help me interpret the results! its very thorough.
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thank you for your recommendation, this is exactly the kind of advice i am looking for. i don't know why she skipped the blood test, maybe she didn't suspect it either until she got in there and saw the damage? i am going to call the office and request the blood test you suggested. i will continue eating gluten (i only went gluten-free for one week total...
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hi all, i am new to this world, and have stumbled across this forum multiple times recently from google while researching Celiac Disease. my story: i am a 37 F. I've had gastro disturbances since i was a young child. mainly nocturnal diarrhea, keeping a list of "unsafe" foods, and random stomachaches that put me down for the count for an entire...