Jmartes71
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Latest Celiac Disease News & Research:
Everything posted by Jmartes71
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That's one of my biggest fears because the knowledge of how serious is completely laxed and we the patients suffer. Thank God this poor women got the results of winning that case.It should be mandated that any doctor, care facility and every ER know exactly what celiac is.NOT just a food consumption allergy as downplayed. Its not a choice its medically necessary...
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I went to ER on the 30th because I didn't want to wait and saw dr at desk for intake. I went for NOTHING!. ER Dr was very nice but made it seem as if I was a nut case rater than coming in for real issues calmly explaining its staph! Staph, by look no blood test, no skin test. No looking in my nose and throat was given a prescription for jock cream and some...
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Thankyou I did find out the Infectious disease is the route to go rather than dermatologist. I did reach out to two major hospitals and currently waiting on approval for one of them in Infectious Diseases to call me. I also did have implants ( I didn't know and sense not properly in my medical. Neither did surgeon)in 2006 and there was a leak 2023 during...
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Hello, Ive been to the dermatologist ( two different ones) and now made appointment, soonest is NOVEMBER. Ive been dealing with skin issues for a while and its getting worse because nothing has worked.I feel the bumps, gently squeeze and a itty bitty hard thing is coming out.I took a picture and did close up and in the MANY pictures ive taken this past...
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HLA-DQ2 POSITIVE it's nothing
Jmartes71 replied to Jmartes71's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
As far as asking I shouldn't have, My son should have per my husband considering the hippa violation at this point it's like violation?The medical bs anyways.......No one here in the valley gi understands celiac and it's a waste of time 26 years to be exact that's how long I've lived in the valley and that's how I got to this point. Considering they want... -
FYI Do NOT ingest.I bought thinking it would be fabulous because it has all the multivitamins in a mix that one can mix with your choice of drink.That ine scoop with Itty bity ingredient Barely grass did me in.It has all the labels stating dairy free glutenfree soy free , organic ect.Its NOT SAFE.
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Got results or rather heard results that my son is HLA-DQ2 positive per pcp yesterday and the Downplaying is just unbelievable.If I didn't get the knowledge from this site I would still THINK celiac was just a foid consumption "allergy " .Please i don't want to be ranking or be dinged. I just want knowledge for patient to know or rather DOCTORS to understand...
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NOOOOOO NO NOOOO I was 23 years old.i have Not eaten wheat sense diagnosed in 1994.Been reading labels ever sense and in 2007 found more food issues. Menopause has changed my body completely and asking for help has turned into a medical NIGHTMARE. Wondering why my skin and eyes are having issues. Is all on me learning because blood work fine.Yet again for...
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I just looked today at my records from past celiac circus and what I thought was my current gi i had locally.Im not at all surprised that they put i was negative for sibo from past dr which isn't true. I gave them the positive results along with the other results of my tests requested by the none bay area googled specialist. All I wanted was doctors closer...
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This is completely INSANE! I thought i had established gi care close to home and wondered why my celiac diagnosis is still at a standstill. I went to my pcp and its up to the gi specialist. Per pcp to sign off on it. Even with the materials given amd told him what i knew , it was pointless on my part.The gi specialist I thought i was going to continue, isn...
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Not yet, been waisting time on western doctors. I went yesterday to my pcp thought we were on same page, I gave him the downplayed confirmed celiac medical note from bay area. As a patient I shouldn't have to Chase my medical, my medical SHOULD stick to us.Im am so exhausted and angery how medical has been, my whole way of thinking of our system is completely...
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Im not a doctor and my term isnt right.All I know is I had what ever lovely procedure I know I had it in down the throat and the bottom biopsy. Im tired of and not feeling well and my blood looks fabulous though STULL HLA-DQ2 Positive and past biopsy Positive. Dealing with this is literally insane im begging for help.im at the point where just what ever
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Thats the thing, diagnosed in 1994 before foods eliminated celiac by biopsy colonoscopy at Kaiser in Santa Clara now condo's but it has to be somewhere in medical land.1999 got married, moved, changed doctor's was with former for 25 years told him I waz celiac and that.Fast forward to last year.i googled celiac specialist and what popped up was a former...
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Current careteam is still up in the air about my celiac thanks to me googling "celiac specialist" what popped up was once known as a good name hospital back in the days. I went in for answers for my declining health, it was the autoimmune part that did me in, being a former bus driver.I read that in my medical records so easily downplayed, i refused the...
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Nateral remedies
Jmartes71 replied to Jmartes71's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
OMG THANKYOU thats like written gold right there that you sent! -
Nateral remedies
Jmartes71 replied to Jmartes71's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Diffently going to ck out, my sibo is bloating me again.I can actually feel my organs on my left move.Im seeing my pcp this morning Ill bring it up.I do have appointment with reg dietitian but not til June which was found on here.Its frustrating because its like a life switch on celiac when menopause hits, tolerance level is zero. This is why im im concerned... -
Im very big on nateral remedies and just read that my go to herb is a no no and was wondering if factual or fiction. I read on Google, I know don't read or take to heart, however it stated that Echinacea isn't good for those with compromise autoimmune because it can cause inflammation. Has anyone else heard of this?Ive been battling sibo so wondering if any...
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Ive been dealing with skin issues and been told it was staph because I was employed as a bus driver during that horrid time that im still actively healing from currently years later. Biopsies they don't want to say its inconclusive they say.Their creams don't work.I do notice Yarrow Pom from Doterra works but of course thats expensive.Prayers
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Hello, I'm I crazy, nieve, or atomistic? I reached out to my former pcp of 25 years on the medical app today.Reading on the National Library of Medicine 75.6 physicians don't know celiac disease.To be fair he is primary and with the lack of knowledge, I did reach out because he was my Dr for 25 years.I do prefer his app than the one I currently have that...
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Domino's and Mountain Mike also has glutenfree pizza.However the issue is the cross contamination. Not worth a few minutes of yum yums i n the taste buds with a painful explosion later.
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No they just said stop all supplements two weeks before.Its so frustrating im not at all happy with my "care team",because im not being seen for my sibo infact my appointment was dropped, I even asked about it and they said Dr prescribed you meds and I stated yes but I again had a reaction.I feel bothersome. I need to find another gi but its useless because...
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Currently having to stop because of mri imaging and past medical stuff that was told to stop with vitamins that would interfere. I keep asking if im diabetic because of the Ketones and when I looked up it mirrors my issues but im negative supposedly. Its all because Im not eating gluten because formerly diagnosed celiac back then just food consumption. Issues...
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Thankyou. I have cyclosporine 0.05% OP single use drops and Erythromycin ophth ointment 3.5 Gmail for eyes. Dermatologist gave Pimecrolimus cream 1% and Clobetasol Propoonate USP 0.05% it doesn't help at all.i do see a difference taking Yarrow Pom but its too expensive!
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Thankyou.
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I APPRECIATE you validating everything because this is a nightmare and the only reason why im fighting is because I don't want future generations to deal with this bs and medical should take responsibility for their lack of actions. Autoimmune disorder aka " food allergies " should be a mandated reportable disease for the safety of the patients.
